Re: Re: Do Neuro Docs Know What Arnold Chiari Malformation Is...?
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Posted by CCF MD on February 19, 1998 at 13:00:40:
In Reply to: Re: Do Neuro Docs Know What Arnold Chiari Malformation Is...? posted by Med Help International on February 18, 1998 at 21:25:02:
: : I get the feeling this is a rare condition. Could you tell me what hospital in the US has Neuro docs that know how to treat this condition. I keep getting no input on this condition. I would like to know if this condition produce symptoms. Do the symptoms closely match Multiple Sclerosis. I need some answers. Pls help, I am so desperate for treatment. I have no quality of life. I can barely get out bed anymore. Also, if this condition is not serious why would my neurologist recommend a Mri Scan of my brain anually. This really confuses me. He has told me not worry -"I am not paralyzed yet". Is that what I can expect from this condition. I just what some up front answers no beating around the bush. I plan to ask my doctor next week for refferal to outside facility. Do you have any reccomendations. Thank you Sincerely Anneliese Reitz
Click on below
http://www.medhelp.org and plug in the search term
There are some articles and support groups you can contact.
See answer to your question posted on the 16th.
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