I am having a problem getting doctors to understand that my pain is real. Well only some. My situation is very complex. I have 14 brain abnormalitites, disorders, and disease process. One of them is Adult Onset Obstructive Hydrocephalus. I suffered a seizure black out spell mid 2002 and my life was turned upside down. I began to have horrible head pains, aches, and symptoms every day. Prior to, I rarely remember even taking tylenol for headaches. Many of the things found as abnormal are considered to be birth defects that laid low until this spell. I do have a poorly defined cerebral aqueduct (aqueductual stenosis) and I'm missing the septium pellucidum and agensis of the corpus callosum. I believe my aqueduct possibly collapsed that night or became blocked causing the ICP and hydrocephalus. It took them close to 2 years to figure out all the rare findings and repeated a spinal tap done early on which showed 2x the normal pressure. I was shunted in the right area of my skull in to my laterial ventricles. Initally, I had great improvement. About 4 months later, the symptoms all returned but my shunt was working fine and still is. I also have Chiari malformation, empty sella syndrome, psuedotumor cerebri and more. I am thinking it is one of these other issues causing similar symptoms.
What I get as a response from DRS is that I have a working VP Shunt so I should not be complaining of headaches. It seems simple to me to figure out there is a host of other abnormalities that are rare and have little known information about. How can I explain to these DRS that my pain is real? How can I get them to understand that narcotics due work best for me? I have tried Neurontin, Topamax and other things that had horrible side effects...like leaving me feeling like a zombie with daily rebound headaches.
I am scared. Any suggestions? My biggest worry is that I will end up turning to the streets and I DONT WANT TO DO THAT, but I DONT WANT TO LIVE IN PAIN!
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.