My 12 year old daughter has HRHS, PS, TA, VSD, ASD. She had her Fontan in 2003. She had a dance today at school. She now has chest pain. Pain is constant but worse with deep breath. HR is 128. Her color is good, no breathing difficulties. She does feel nauseous. Does this sound like exercise intolerance due to her Fontan? How do I know if I should be concerned?
Hello and welcome to our site! It sounds more like she is having pain because she may have pulled a muscle due to the dancing. I based that answer on the fact that the pain is constant as well as getting worse when she takes a deep breath. That type of pain is usually due to muscle or ligament/catiledge problems as opposed to heart issues. One thing for you to consider: if this is exercise intolerance ask yourself: Is my daughter keeping up with her peers in all other aspects in her life. When you go shopping at the mall, is she always dragging behind you or is she always needing to sit down and 'rest' for awhile before continueing? Do 'small' activities seem to wear her out? What about in school? Talk to her teachers and ask them if they have noticed any changes in her abilities to keep up, especially her gym teacher. (Teachers can be objective, sometimes that is hard for a mother.) Does she have a hard time walking up stairs, riding a bike or swimming? Children who are suffering from exercise intolerence due to their heart conditions can't do many of these things. Having said all of this remember it is always better to check with your daughter's pediatric cardiologist, so give his office a call and at least speak with his nurse.
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