My grandson is 4 years old now. He's had 2 valve replacements, g-tube fed, had fundoplication procedure to aspiration issues & other respiratory issues/repairs along the way. He's now on a heart monitor because his EEG/EKG showed some abnormalites. We're told his value has showing signs of leakage. I can't seem to find much info on what to watch for or what to expect. I know he'll need another valve replacement. We're scared. Know nothing about life expectancy or what his chances are with this upcoming surgery. He's autistic & lovable (which I'm told is rare) he doesn't speak & won't know or understand what he's soon to experience. So I'm searching for resources to educate us so we can try to understand what we're dealing with & to better understand what to expect. I'd like to know life expectancy stats but can't find any case details that fit my grandson's situation. Can u help?
I don't have enough information from what you are telling me to be able to give you any answers to your questions. I don't know his heart defect, and am not able to review his studies. I recommend that you discuss this specifically with your grandson's pediatric cardiologist. If there is concern about the information, or there is a feeling that you are not getting adequate information, it is certainly reasonable to obtain an second opinion.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.