Hi, I am new to this group, I was seen in the e.r January 30 of this yr. was told I had Hyperthyroidism. Then a couple weeks later was told it was caused by Graves disease! I have mild TED in my left eye. My eye looks pretty normal now, thank-goodness! All my Hyper symptoms are gone and have been for about a month! The first Endo I saw pushed for RAI, which I will never do!! She was very rude to me, rolling her eyes at me, turning her back to me when she would talk to me! She also put me on a low dose of ATD medicine before my levels were within normal range, which then I ended up more Hyper than I was when first being diagnosed! I was so furious! Then I seen the second endo, who put me on 30 mg. of methimazole, well after 13 days of treatment, my levels were normal besides my TSH was 0.02 range 0.4000-5.800 but from what I have read it can take a while for your TSH to be normal , when you have Graves. Well Anyway my labs on May 18 were FT3 7.4 range 2.4-3.9, FT4 2.0 range 0.6-1.2, TSH 0.01 range 0.40-5.80
June 1, they were: TSH 0.020 range 0.400-5.800 , FT3 3.48 range 2.77-5.27 , FT4 0.58 range 0.58-1.65
June 16, TSH 0.080 range 0.400-5.800
June 29, TSH 8.150 range 0.400-5.800, FT4 0.31 range 0.58-1.65
Now I was put on 20 mg of methimazole as of June 30! I find it hard to understand why would the Endo have me on that high of a dose still , when clearly I am HYPOthyroid? I feel so nauseated, fatigued, constipated, the balls of my feet hurt, I got a refferal to see a third Endo Dr. but I talked to their office today and they tell me its going to be another 5 days before they set me up a appointment!! I am so irritated! So I have to suffer and wait!! I also am anemic now, have low calcium, my Parathyroid hormone is elevated due to low calcium. I am on 2,000 mg. of calcium a day. I take iron too, and a bunch of other vitamins. They did a 24 hr. urine calcium it was normal. I have high hopes I will go into remission or just go HYPO, I have alot of family members on my moms side with HYPOthyroidism. Any suggestions or info. would be greatly appreciated! Thank-you =)
Its unfortunate there was no FT3 done this time to ratio that with the recent FT4 but the TSH indicates that you are not getting enough communication to the thyroid hormone to be feeling well.
What you were prescribed may not be the right med. Call the doctor back and if anything - redo the labs immediately with both the FT3 and FT4 and TSH