POLL Hashimotos daily performance even normal TSH

[rohit_786]

I like to run this POLL to see where are other people who are suffering with Hashimotos/Hypothyroid stand in their daily life..I am male 37 years old dealing with this Hypothyroid/hashi for last 2 years since then even i have normal TSH level for couple of months but still have hard time

1. Get up in the morning even have enough sleep.

2. Tired/Fatigue even in the middle of day i would say around 2pm

3. Muscles /joint ache . Feel like achy body even not enough physical work.

4. Feel like flu .
5. Lack of motivation to do things.

Please list your symptoms , Is this normal in autoimmunity condition ?.Please share your symptoms and tell me in scale of 1 to 10 where you stand , is this normal to feel that way once you have hashi ?. Does lingering symptoms be there ?

[handlher]

Your lives are all familiar. Is it a syndrome or what?

I just saw the rheumatologist for the first time last week.  He diagnosed fibromyalgia and ran a slew of tests.  Results (apparently no surprise):

Iron Low (13 before my heavy period)
Vitamin D Low (15.8)
C-Reactive Protein High (18.8)

Couple of weeks ago discovered rapidly elevating TSH levels (.67 -5.25-15.5) in two months and Hashimotos.

I am new to this and relieved to hear I'm not alone, but totally confused about what any of this means.

[rohit_786]

Thanks AR for your response , honestly speaking the issues i am having is depression because others are feeling good after few months of thyroxine but still feel same way or worst. I am taking 4000IU of vitamin D every day (D3) i hope that do the trick.
Muscles aches and fatigue is the major complain i have , my level is good now but the problem is it doesn't stay at same point for longer.

Others please response.

[AR-10]

Vitamin D is essential for proper thyroid function and also for good mental health. Low vitamin D slows the production of thyroid hormones and fuels depression.

I have been taking thyroid hormone medication for four years. I was diagnosed two years ago with Grave's, and then Hashimoto's, and then BOTH. I'm not sure that I am typical of a Hashimoto's patient, but I am responding anyway. LOL!

I had RAI in January to blate my gland, and I am supposed to be on the road to better health with a dead thyroid. My GP has told me it may take another year for my body to heal fully, and right now I am unable to work more than an hour a day. "Work" is sort of an exageration, because "work" is anything that involves physical activity. I have made a living doing physical labor all my life, and now vacuumning the carpet, cleaning the garage, pulling weeds, taking a shower, all those things are called work.

My levels have not been stable for two years, but they have been fairly close for about three months. A little high or a little low, but close.

How do I feel?

I get about 8 hours of sleep every night, but in the past six hours was always enough. I take a nap every day that averages an hour and a half. I feel good in the morning. I get up about six and by the time I take my Synthroid and wait an hour, take more pills and wait an hour, shower, rest, dress, it's usually close to 9:00AM before I can leave the house.

This is my "active period" of the day. I can either spend time until lunch running errands or doing that one hour of work we were talking about.

My muscles ache all the time. If I am too active I get tendonitis that hangs on for several days. Shoulder joints, elbows, wrists, fingers.

I still have anxiety and depression, controled with Alprazolam, but it's there. A lot of this is probably situational, as I am not very happy about being unable to work, and I sure can't afford to stop working. I haven't worked since October, so I worry about money a lot.

Motivation is a big problem. I don't have any.

I think my hair quit falling out. :o)

I'm still a work in progress.

I have to say though that I meet people all the time with thyroid problems and they look healthy to me. They seem to be getting along fine. I even pry and ask questions about their health sometimes, for the same reason you started this thread.

To find out if I'm ever going to feel normal again. Most of them tell me they are doing just fine.

    

[rohit_786]

I do some difference b/w 2 years back and now  but again don't feel same way before i even diagnose thyroid , so that is why i confuse if my dose is optimum , my TSH and FTs are fine , i don't have any other autoimmunity/ my cortisol level is fine so no adrenal issue, my calcium level is fine  but only thing which is currently in low side is Vitamin D level it is right now 23 (26-80) . Do you think that could be the reason for everything ? or with time when i level get stable for longer period of time i would start to feel like before .

[helen1207]

1. hard to get up in the morning, that's for sure,
2. sometimes 1-2 hours after i got up,  i started to feel tired again. especially my eye.
3. in the morning, when i first got up, my heel aches, it will get better throughout the day, and my knees feel stiff.
4. not sure of the flu part
5. lack of motivation, damn yes.

other symptoms:
1. tightness around the throat area
2. hair losses, bad dandruff
3. easy to loss temper
4. palpitation(not fast, but sometimes really slow)

[5thave]

I have only discovered I have Hashi's a few months ago. I have been hypo for years and they are always elevating my meds because I am never stable. Now that we found I have Hashi's I am on a few extra things, iodine drops and Rehmania Complex. I do not know the results yet of these additions.

1. I always have a hard time getting up but that could be because I like 9 hrs of sleep but rarely get it.

2. Always get mid day fatigue. Have been doing cardio at 12:00 seems to help and then an afternoon green tea tab with B vitamin complex. Makes a big difference.

3. Have noticed muscle aches in the last 6 months have increased. Not just from working out either. I have had to cut back on gym time because of it. I take Ibuprofen to help with it when I really need to. I didn't know this was from the Hashi.

4. Some days i do feel fluish, all achy, cold or feverish, extreme exhaustion. Pops out of the blue and lasts 24 hrs. Have this more often in the last 2 years than in my whole life. Almost feels as if the body is going through a detox. I drink lots of water, get lots of rest and use ibuprofen to relieve the symptoms. Is this from Hashi's I have no idea.

5. Lack of motivation YES, but lately it is getting better since they upped my meds. I used to be full of energy and could go go go, maybe I am just getting older..... NEVER! ha, lol!

6. Should we stay away from caffeine? That would be impossible for me! I would never make it.

[stella5349]

1  Many hypos have that sluggish feeling in the AM after waking. It should subside after about 30 minutes normally

2  your fatigue at 2pm is a classic sign of adrenal fatigue. I would get your cortisol checked with a 24 hr saliva test

3  Muscle and joint problems usually point to still being hypoT . TSH ranges are one thing but your number needs to be your numbers to rid symptoms.

4  We have weak immune systems so a bug in the air can linger with us along with nausea boing another sign of hypoT

5  Lack of motivation is another sign but needs to be over come. You need to adjust to an optimal level in order to still push to get things done.

[kackymarie]

I am a 33(this month) year old female and have had hypothyroidism for over 10 years.  They just figured out I had Hashimoto's 4 years ago, but are pretty sure I have had it as long as they hypo.

1.  I always have trouble getting up in the morning even with plenty of sleep.
2.  I am not tired or fatigued in the middle of the day any more, but I have improved my eating habits and quit drinking all caffeine which helped me a TON
3.  The only joint pain I suffer from is in my knee, but it is due to surgery a few years ago, not thyroid issues
4.  Never had that problem
5.  Lack of motivation used to be a huge problem back when I was a stay at home mom before my husband left me, but after the divorce I solved that by getting OVER INVOLVED IN EVERYTHING - not necessarily a good thing.......I work full time as an accountant, college full time, kids in activities, chaired the school auction by myself, teach jr high youth group at our church, got married last year, have a small christian community hosted at my house every other weekend.......yeah Im all kinds of nuts!  But seriously, the motivation got better with a healthier diet.  I actually went on Weight Watchers to learn to eat the right foods and I no longer eat any fast foods or drink any caffeine.  It has helped tremendously.
6.  I suffer from anxiety and low levels of depression, but am not sure if that is thyroid related or hereditary
7.  I get HIVES head to toe every so often, used to be all the time, but then my doc put me on allegra twice a day and it seems to help as long as I keep my levels normal.