are my symptoms night thryoid storm????

[kristy33]

I was diagnosed as hypothyroid in dec 2007 and for whatever reason have not been able to get the right dose of levoxyl.....i was initially put on 100 mcg and tested still too high tsh, so was increased to 125 mcg and now I tested as hyperthyroid ....My TSH was 0.01, Free T4 1.61  (not sure what the free t4 means, any help would be appreciated)

For around 2 weeks every evening I am experiencing night sweats, fever, rapid heartbeat, shakiness, fever, not able to stay asleep, bizarre dreams, and it happens every night like clockwork.  I am exhausted.....haven't sleep for a couple nights now.

My endo told me to go off all meds for 3-5 days which I did and then start a dose of 88 mcg.  I continued the symptoms off the meds and I just started the 88 mcg and am still having them.   The doctor wants me to hang in there and get re tested in 6 weeks from the new dose.  How long do you wait if this goes on every night?  My doctor thought i had hashimoto's but he said my antibodies did not indicate it, so i don't have a clue what i am...hypothryoid but unable to find the right dose.....???

Has anyone experienced these symptoms for this long?  Also, could anyone interpret my latest test results
Your TSH was 0.01, Free T4 1.61  (which happened when I was on too high a dose)....thank you.

[stella5349]

If you can - I think moving your meds earlier may be better. Try taking them at 6 if possible (everyday) and do not eat 2 to 3 hours after you take them.  Last test TSH was really low 0.01. a lower dose may be best very soon.

[kristy33]

I take my meds pretty consistently at 8am, about 1/2 hr before eating.  I don't eat a big breakfast, cereal or toast and fruit, fairly light.

Since I am home recuperating from back surgery on march 3rd, there are mornings that I get up later.  Actually last night, I took some tylenol pm and I slept throughout the night.  I slept till 10am this morning, which is a miracle for me and I feel very rested today!!.

My last blood test was taken around 11am, but did not take my meds before the test...that is interesting that you think my meds are working later in the day.  One thing I do notice is that after I eat anything I feel a little warm and clammy......

I talked to my doctor yesterday and he said I did have Hashimotos even though my antibodies were normal, not sure how he determined that.  

I will be retested in 6 weeks and then discuss results with him....now that I have started the 88 mcg.  I am hoping since I slept last nite, that the worst is over.

Last test results: TSH was 0.01, Free T4 1.61  

[stella5349]

What time are you taking your thyroid meds? Do you take it first thing when you wake up? On a totally empty stomach? and if so.. how long do you wait until you eat after taking your meds?  Do you feel a "surge" in the early evening? around dinner?

It sounds to me your stomach is not releasing the thyroid medication until later in the day so you may be feeling the effects of the drug in the latter part of the day.

Somehow we need to get the meds to release for you earlier. Either that - or (long shot here) you body is sitting on the T4 conversion until later and then the T3 is kicking in--- in the evening.

Out of being curious - do you remember what time of day you took your test?

When I was Grave's hyper storming was terrible I totally know how you feel.

[marcal]

You poor thing. My heart goes out to you. Unfortunately, I can relate to what you are experiencing. I have alot of the same symptoms you are experiencing and am going it alone right now as I got am feed up with my endo. I certainly am not the best person in this group to tell you about what is happening but I can surely relate to what you are going through. these are good people here and they will try to help you become better informed.

[kristy33]

I am not sure about the thyroglobin antibody test, but initially my doc said i had hashimotos just based on my symptoms and my TSH of 90 when I was first diagnosed -- then he ran some antibodies tests (not sure which ones) and then he said he was surprised that they came back in a normal range, what does that mean?  The antibody test was done after 4 weeks of meds.  would that change the result?

Also are the are the symptoms I am experiencing anything I should go to the hospital for, i live alone, and when I am struggling through the night with the fever, heart palpitations, sweating, insomnia, is this an indication of thyroid storm which I have been reading about on this forum..

I also had back surgery on march 3rd so I am also recuperating from that, but I feel that my back is healing and I am doing well and has nothing to do with these symptoms.

the bottomline is, should i just deal with the symptoms for a couple more weeks, or what symptom should I go to the ER?  it is kind of scary living alone...so i just want to do the right thing.

[AR-10]

You were made hyper by taking too high a dose of meds. Lowering the dose will solve the problem, although you may go hypo if the lower dose is too low.

The Hyper symptoms may take a few weeks to go away.

Your TSH says hyper, and your T4 is just under the upper limit of the lab range, which will make you feel hyper.

Thyroid storm is a very critical medical condition, and if you had one at home you would die.

Did your doctor run a Thyroglobulin antibody test?