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granulomatous mastitis User Group
New member from New Zealand
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
229 members
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New member from New Zealand

Hi there - just found this group an I am so amazed!  My GM presented nearly 5 months ago.  It just came up over night but I was very fortunate to get in with a fantastic specialist who diagnosed it within a week - albeit after a few rough days thinking it could be inflammatory breast cancer.  I am 43 and it has been 7 years since I finished breast feeding my youngest son, so I guess I am right at the end of the spectrum with regards to the typical demographic.  My third lesion is about to break through - so another dressing to apply every day!!  My prolactin levels are raised so I am on some drugs for that, I have been on antibiotics this whole time to prevent any secondary infection but I am planning on coming off those this week and will just watch and see what happens.  My health otherwise is ok.  I hate that I can't do the exercise I love - running and swimming.  It's a crazy condition, isn't it?  I find it to be more uncomfortable than painful, constant awareness as opposed to acute episodes.  I know it is going to be a long recovery period, but some days you just get sick of it.  I haven't really changed my diet or tried any natural remedies yet.  Now I have found this site though, I will definitely see what others are trying.  Take care.
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Hi there. It was great to read your post as your situation seems similar to mine, including the fact that I am a kiwi. I was interested in the meds you are taking to reduce prolactin levels and whether these are working. I developed gm at 40 years old 8 years after stopping breast feeding my last son. I have had the condition since April 2013 do would be grateful for any tips about what works and doesn't.
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