restless leg syndrome???

[realms]

can anyone tell me why RLS starts at night when all you want to do is sleep?? i not only get it my legs,i get in in both arms...........it's driving me NUTS!!!!!!!!!!!!!!
any advice on what can help to alleviate this awul case of RLS>>>>>>>>> thanks LISA

[CRZYINAZ]

What does the bar of soap do ?

[Beccatha]

I tried the bar of soap in the bed. I rubbed it a little on the arms and left leg and made sure it was touching my leg when I went to sleep. It helped a little at first, then after 3 days it gave a lot of relief. I made sure it was about half way in the bed when I made it. I used dial gold but I think you can use any brand. I am extremely  skeptical about off the wall suggestions, however, desperate times called for desperate measures. Haahaahaa...actually I waited until my mom tried it first for Charlie horses because that is the solution for them there horrific cramps! Please try it and actually rub it a bit on the problem spots. I hope it works for you and any others posting on this subject. SWEET DREAMS!!!

[macksabratt]

have you had someone rub your arms and legs down good with muscle cream ?Iknow once I got the icey hot sleeves and had hubby rub my arms and legs down with muscle cream it felt alot better.Those icey hot sleeves on my arms and legs were wonderful.Hot bath in epson salt helps some too.I hates it during my w/d cold turkey I had it in my arms and legs and it was awful.If ever I went cold turkey again I would buy 4 boxes of icey hot sleeves ,muscle cream,bananas,and epson salt.

[CRZYINAZ]

Well the pills "Restfull Legs" are not helping at all I now have a intense headache partly I am sure form my med. condition the Arm twitches have slowed down durring the day but after I am asleep and I get woken up for anything OMG it is bad the best way to describe it is slight electricity without the burn kinda a tingle going up and down my arms  but worse on the right>

[Dezdon]

I just ran across another good explination of what my w/d feel like from another post. "like lightning bolts shooting through my bones" . Is this what you folks mean by RLS?
peace,
-Dez

[starfish1963]

I forced myself to ride a bike, swim laps, walk whatever it took and it helped tremendously.  I didn't take anything for it so it was hard the first week but this too shall pass
God's richests!

[Dezdon]

When you guys talk about RLS, what exactly is it you feel? Is it just a jumpy thing like a twitch?

In my w/d's my legs, arms and back get this thing where it feels like the my bones are literly "twisting" inside. Its almost violent and I have to either shake my legs or arms or adjust my back. I dont mean just move them (my limbs and back), I have to flail excessivly to get a temporary relief.

I understand what you said about "walking the halls of yoour house at night" , I too have to do this for my legs, I cant just lay there.

I have heard other people mention "cramping". Mine are kinda like that, but not, if that makes sense.

I do take Lyrica for my feet anyways. I have neuropothy in them that feels like spasims anyways. Like Im being poked with a needle. The Lyrica does help a little with the w/d I experince.

Its funny the w/d are kinda different for everyone. If it wasnt for the "twisting" I feel during w/d's, it would almost be a piece of cake.
peace,
-Dez

[macksabratt]

I have no idea but it did help me with the rls.My mother has had rls for some time now and she told me about it.Then I read about it at peoplespharmacy.com and people said it worked so I tryed it.That along with the other things I did would help me get some rest at night.I hope it works for you.

[macksabratt]

I can tell you this if I ever went cold turkey again the first thing I would do is go and buy like 4 boxes of those icey hot sleeves,epson salt and muscle cream.I still keep the bar of soap in my bed (change it once a month) and will continue.My mother has rls (not from w/d) and I know it has helped her.I know it sounds weird but if you go to the people's pharmacy you can read about it.I hope it helps.

[SilverSoul]

RLS is such a miserable condition, it's like going through hell some nights. I feel for you all that suffer with it like I do. Thanks for the suggestions though, Im going to try them

[macksabratt]

I can tell you that I truly think time is the only thing that takes it away,I do know for a fact that the icey-Hot sleeves when put on your legs and arms at night does help enough to rest.I bought 4 boxes the last time I went cold turkey off of 140 mg of vicodin and it helped enough so that I could sleep a few hours.The only thing that takes it away is time.I think I had rls in my arms and legs for the first week when that went away I had ADHD head for a week then my w/d's were over.I also took hot epson salt baths and had my hubby rub my arms and legs with muscle cream then put a sleeve on each arm and leg and I also put a new unwrapped bar of soap (I know this sounds odd)under my bottom sheet in my bed(where my feet were) and that I think helped too.I read that on a site called people's pharmacy,people who suffer from rls put the soap in their bed and it helped them.So I gave it a try and I do think it helped some.When I went cold turkey I was a mess and would have done anything to get rid of the symptoms.I hope you find releif soon .

[CRZYINAZ]

I agree I am used to all the other stuff too I got some of the restfull legs pills I took 3 earlier and so far nothing has changed I got a headache that is it I will update tomorrow to let ya know if they work

[scaredmommie]

rls is the reason everytime i went ct i would use again, i have stomach problems, so im use to throwing up, nausea, and the runs, i suffer from migrains for for 10 years so the headaches didnt bother me, the cravings i had where ok but then i dont think i really made it long enough on ct to really get strong cravings i only made it 2 days the longest, what really got me was the rls i had it 24/7 in my whole body it felt like and it was so bad at night, i wuold move sooooo much that my husband slept on the couch, and the no sleeping really didnt bother me cause i have had problems with sleeping since i was really little, so if wds did involve rls i think i would have no problem with wds cause im use to the rest of them

[CRZYINAZ]

Hello I have been on MsContin for abt 2 yrs for neuropathyAutonomic neuropathy
Diabetic neuropathy
Femoral nerve dysfunction
Peripheral neuropathy
Sciatica and degenerative disc disease that gives me relly bad headaches in the base of my headHead and face reconstruction
Head injury
Head lice
Indications of head injury
Radial head injury well the Dr wanted me to take 3 pills aday 30mgs but I was scared of getting addicted and the withdrawls so I only did1 per day so then I said well this aint even helping so I went backBack pain - low
Back strain treatment and asked for something different he gave me Methadone 5mg and I have taken it for abt a month really unregular because it didnt help either well long story shorter lol I stopped cold turkey on Friday 8/29 it has been 5 days almost and the withdrawls are barely starting ? I had general aches and feeling cold and Sweating
Nausea and vomiting but the worst is restlessRestless leg syndrome arms omg it is driving me crazy what helps? thanks

[worried878]

One of my dear friends has parkinsons...the mechanism or true rls is very similar...one of the reasons it acts up at night is because ur mind is not occupied...if u ever watch a parkinson patient, they do not tremor when they are concentrating on something...until the later stages that si

[realms]

thank you to everyone for all your suggestions. i guess after 12 years of taking up to 100 T 1's a day i am getting off lucky....i have tried most of the suggestions and know luck...i work out with weights everday and it doesn't seem to make a difference.....oh well, as you all say, it will take time....i have had RLS for years, but NEVER this severe!
does anyone know if the fact that i am on Paxil 30mg o.d. may play a role in my RLS???
i have been on this med for 5 years now.........thanks again everyone! i don't know what i would do without you!!!!!!!!!!!!!!! Lisa

[Mikeinthesouth]

I have it in my left arm as well as my legs it is seriously a horrible side effect that takes time to lose that from wds. I can only guess it has something to do with our brains stopping to produce dopamine from all the opiate abuse and it takes time for us to straighten out regarding hormone production. Get up and walk I can remember nights of walking the halls of my house so tired I thought I would fall over unconscious but could not slepp because of the rls. Wal-green's sells a homeopathic pill manufactured by Hyland's it is called Restful Legs and I bought some and it eased a bit not alot but anything is worth the effort. It might work well for you. I suggest giving it a try.

[worried878]

support hose or Teds i think they call them...does seem like the compression would help

[CoreyK]

I had rls and it drove me nuts. Someone told me to try the stockings that you wear in the hosptial after an operation...those long white tight ones. I went to Walgreens and bought them. They really worked great for me.

[CadillacJack]

You can do many of the things mentioned above. They'll probably help you. I hope they do. But like Sarah said, time is the healer of all things. And it will pass soon. I don't know your history, but mine was fairly heavy, for a LONG time. The RLS was probably 10 days, give or take. I hope you do well with what you are doing
Best wishes

cj

[worried878]

oh...may want to scratch that magnesium citrate as it caused many people to have the runs...it is used as a laxative in higher doses so would not be a good idea during detox (:

[worried878]

There was a study conducted at my hopsital recently on RLS.  My pain mgt doctor was in charge and it lasted a month and the patients came back in on a weekly basis. I helped him record the data as after being on the forum i saw that many have this from opiate withdrawal, although many people also have it from other causes like my mother and it can be very annoying and cause a lack of sleep than is much needed during detox.
It was noted that the majority of the patients had an iron deficiency and had low levels of dopamine. One elderly lady who had it very badly was on a parkinson drug for it called levadopa.  My pain doctor wanted to use natural supplements and avoid.  It was also noted that the more active the people were as far as an exercise regime, the less severe the symptoms were for them.  Below is what he prescribed for them.
All are over the counter supplements.

IRON-  taken with vitamin C and zinc to aid in the absorption of the iron
Folic acid 400-800 mg along with B-12 500-1000 mcg
Magnesium - 800 mg at night or magnesium citrate 100-250 mg at night taken with a small glass of tonic water
Choline -1000-2000 mg a day (choline increases dopamine in the system and is also believed to decrease the urge to smoke)

Nicotine, alcohol and caffeine were to be avoided

[Sarah231]

Time.

I had it terribly in both arms and legs.
Took all of the above suggestions, but in the end it will be time that takes them away.

I used for over 10 years and mine were gone after about a month.

[louise65]

you need to put ALOT of epsom salts in a hot bath and soak, it was the only thing that worked for me, good luck