ADULT ADEM OR MS?

[santana8]

HAS ANYONE HAD ADULT  ADEM? I HAVE BEEN DIAGNOSED WITH THIS FOR NOW, BUT NEUROLOGIST IS STILL CHECKING ME WITH REPEAT MRI's EVERY SIX MONTHS TO WATCH FOR EVIDENCE OF MS. HAS ANYONE GONE THROUGH ADULT ADEM OR HAS ANYONE BEEN STUCK BETWEEN THESE TWO DIAGNOSIS' S. AS  ADEM IS RARE IN ADULTS I WOULD BE THANKFUL TO TALK TO ANYONE WHO HAS BEEN THROUGH THIS ILLNESS AND CAN GIVE ME SOME INSIGHT.

[Peggymousa]

Hi Im an adult woman who had ADEM 16 months ago. I also had awkwardness and clumsiness prior to hospital admission and lost strength on the right side of my body. I had nausea and depression and an itchy rash that lasted months ( turned out to be Shingles virus ) i had two hospital admissions. The first time I was sent home and told to see a psychiatrist !!!! I was gutted. After intensive Acyclovir treatment I was sent home from hospital. I still have right sided weakness and a facial muscle weakness ( unexplained ) Neurologist is usesless and doesn't know what he's dealing with !!! Having physiotherapy now and awaiting results of NCS and EMG test

[Peggymousa]

Hello I had Adult ADEM 16 months ago after having the herpese zostra virus ( shingles ) I was treated with an intensive course of Acyclovir that made me sick and have diahorrea. 16 months on I still have muscle weakness and impaired cognitive disability and I still get very tired. My neurologist keeps telling me that I haven't got MS but refused to do any more tests. Totally fed up with the lack of help. Finally had NCS and EMG a couple of days ago and now awaiting results. How are you?

[whitewolf51]

have been diagnosed with  adult ADEM last year after 2 yrs of not knowibg if I have MS or ADEM.Im 51 yrs old,My neurololgist thinks imight have had a recurrent of ADEM  about 1  week ago He is now tryimh to see if its MS or ADEM  im mscheduled for a MRI of the brain this week because I have rfecurrent balance issues again I also woke up one day and try to get out of bed but my legs felt like rubber they couild not hold me up which lasted  about 3 hrs and im having dizzy spells  again numbness if mnyrt arm and tingling also  of my head then a burning sensation starts whitewolf 63

[pulenta]

I had a relaps this year in may and i was first diagnosed in may last year.Iwas better after a year of recovery.Now I still walk bad and my cognitive functions are not bad as they have been last year wht can I do to fasten my recovery

Joe

[EmilyChu03]

Did your husband spend time in the hospital for brain swelling?  Mine is there as a type this and  on his 2nd day of a medically induced comma to keep his brain from swelling more and completely relaxed.. His also happened so fast, a week ago he was a work. They believe it is ADEM as well due to the brain swelling. Did your husband have any of this happen as well?

[klapa]

Hi, I'm so glad I 've found this forum. My husband is suffering from post-ADEM and nothing is the same anymore. They don't know much about this disease and we keep searching for answers every day. It happened this May and it developed fast. He is doing better now but still having problems with spasmatic walk and coordination.