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Internal tremor - shaking inside ?
I have had a shaky feeling on the inside for about 3 months now. It started off as every now and then but for the last month it is all the time 24/7. It is really taking a toll on my life. It is so bad it wakes me up and prevents me from falling asleep. I have had thyroid, hormones, mri, ct scan and many other tests. The only test that came back questionable was my ANA, it is positive, speckled pattern. My RA factor was negative. I have no diagnosis as of yet. I do have Epstein Barr virus too. Just want to hear peoples opinions on this internal tremor thing. Anyone have it and what is your diagnosis? Thank you
thank you soooo much for your detailed comment!! I have ran about $6 grand or so on B/W the past 6 wks. one dr swears its lupus related bc now I have the malar rash on face more often an I stay broke out in rash on chest and arms more. but ALL test are NEG!!! I dont believe these test results!!! something is really wrong with the testing they use!!! and there getn rich off the ins money. I am goin to look into the lyme disease and research an see what all the symptoms are that I havnt looked into. I have written down all your info you commented on...thank you soo much!!! DI
my sister had an over growth of aspergillius fungus (i think Im spelling this right) and went on the candida diet it made her extremely sick for a few wks or a month an then it slowly reversed. Im not sure of all the symptoms she had I really hadnt asked I have had my own problems . I really hate the idea of changing a diet drastically. I CRAVE suger like crazy!!! carbs!!! bread!!! n I dont no if I can make this kind of a drastic dietary chnge. but thats what she did. she has an auto imune disease an is in remission. she lives on Vit D3 n magnesium with calcium religiously! lost 50 some pds on that diet. she ended up living on broth for 2 months though after having gallbladder removed. she also I believe had to go on the probiotics also....
I had the same thing happen when I started taking B12 sublingually. When I quit taking the B12, it subsided. However, I still have the systemic trembling, especially in the morning.
Brilliant article! Thank you for sharing. Also in healthcare and have recently experienced what I described as "internal vibrating/shaking". Saw a Neurologist who did full blood workup to rule out auto immune diseases (MS); had an MRI to rule out same and any mass in brain that could cause same; but when all comes back "normal", Essential Tremor (ET) was the diagnosis to stick. It is often hereditary. Can be brought on by stress or lack of sleep or that cup of decaf at the end of the day. Often ET symptoms (shaking) will diminish or lessen with the use of alcohol - which most other tremors do not.
Please note: I'm not suggesting or advocating to begin an alcohol regiment to lessen ET. The following link is a description of symptoms of ET: http://essentialtremor.org/siteresources/data/files/free%20et%20publications/etvspd092012.pdf
Please note: I'm not suggesting or advocating to begin an alcohol regiment to lessen ET. The following link is a description of symptoms of ET: http://essentialtremor.org/siteresources/data/files/free%20et%20publications/etvspd092012.pdf
Epstein Barr, Cytomegolovirus, Parovirus B19, HHV6, HHV7 reactivation? Doctor's don't seem to know anything about these possible causes.. All my IgG titers high.
I have the painless buzzing in my legs after suffering from a "health event", that no-one could figure out (most didn't care to try)..
Genetic studies show H63D/H63D homozygote, but iron studies ruled out liver iron overload. High thyroid antibodies, secondary hypogonadism?.. TRT (testosterone replacement therapy) caused many of the symptoms to go away.
Continuous high antiDnase B strep antibodies even after 5 months of alternating Doxycycline and Amoxycillin (and Valtrex)
I believe all these symptoms were due to a reactivation of a herpes virus possibly after a strep infection and coxsackie virus at same time, causing a superantigen.
I have the painless buzzing in my legs after suffering from a "health event", that no-one could figure out (most didn't care to try)..
Genetic studies show H63D/H63D homozygote, but iron studies ruled out liver iron overload. High thyroid antibodies, secondary hypogonadism?.. TRT (testosterone replacement therapy) caused many of the symptoms to go away.
Continuous high antiDnase B strep antibodies even after 5 months of alternating Doxycycline and Amoxycillin (and Valtrex)
I believe all these symptoms were due to a reactivation of a herpes virus possibly after a strep infection and coxsackie virus at same time, causing a superantigen.
So, I am late to add my thread. I have been reading all your threads since about May.
My original symptoms started like sinus infection symptoms. I had pressure in the face, worse when I bent over, pressure across the bridge of my nose, congestion. Then some dizziness started. I am an RN and have 15 years of experience, have worked in MS and ICU so I am comfortable diagnosing a simple sinus infection. I tried the usual OTC meds and started sinus rinses without success so on 4/30 I saw my PCP for an antibiotic Rx. finished the meds, but it didn't get better and the dizziness got worse and I had started having episodes of this internal shakiness feeling that I had a hard time describing but it felt like it was coming from my chest and someone was just in there shaking me. However, if I held out my hands were steady as they could be and even if my husband touched me, he couldn't feel any shakiness. Also my brain felt like it was sloshing around in my head. my PCP sent me for hearing and balance tests that were normal, sent me to an ENT, and got a CT scan of my head that showed a left maxillary retention cyst. The ENT was sure that the cyst wasn't causing the dizziness but did agree to remove the cyst. The surgery was done, but the internal shakiness suddenly was constant now, not intermittent like it had been.
At this point, we started seeing all kinds of MDs and doing tests to try to figure out what was going on. I have seen an ED MD on a day the symptoms got worse. He didn't have any real good ideas and told me to follow up with a neurologist. I couldn't get into a neurologist for 2 months. I did see my spine MD who does injections for my 2 bulging discs in my lumbar spine. My cervical spine MRI showed that I have lost the cervical curvature. The spine MD stated this is sometimes a normal finding and he felt that this is not the cause of my dizziness or shakiness.
My first appointment with the first neurologist was disappointing at best. She told me that my other doctors had already done all the tests that she would have done and sometimes we never really know what causes these things but she could refer me to a psychiatrist who could help me learn to deal with it. Do you believe that? nevertheless, we decided she was an idiot and saw a second one. The 2nd neurologist simply said it was a chronic migraine and that I wasn't on the correct dose of Amitriptyline and she increased my dose to 75mg and said she would follow up with me in 3 months. Wow - she didn't even care if I would still have any issues within that time frame.
Next one of my nurse friends remembered a neighbor that had similar symptoms. she called her and got her diagnosis of Mal de Debarquement Syndrome. My symptoms are almost exactly like this although I do have come classic visual migraine symptoms thrown in there with the shakiness.
So, my PCP has me on Amitriptyline, Topiramate, and clonazepam.
Next, they send me to a Neuro-Otologist who specializes in this type of dizziness issue. He decides to do one more test that has come up with 2 of his patients. A Transthoracic Echocardiogram with bubble study. it is essentially an ultrasound of your heart where you have an IV in place and they inject a syringe full of air bubbles and watch to see if they cross in the heart. Unfortunately, in mine, tjhey did. This indicates that I have a hole in my heart called a PFO or patent foramen ovale. This can cause migraines, put patients at risk for stroke, etc. unfortunately, on my health insurance plan, these are only fixed if approved by a committee because Medicare heavily regulates them. So, while this may be partially the cause of some of the dizziness and shakiness, they won't be fixing mine. The cardiologist thinks I have had this for all my life so it is unlikely that it is the cause, but it still makes me nervous.
All other tests have been negative. I am not in menopause, I am not diabetic, I do not have thyroid problems, my cholesterol is 240 so it is elevated, but that and the PFO are seriously the only tests that have come back even remotely positive.
My cardiologist did indicate that he himself has suffered for the last 3-4 years with similar symptoms and has seen a specialized Physical Therapist that has helped him tremendously. He stated that back in April, I suffered some event or serious of events that disorganized my brain and balance. He stated this could be caused by stress, illness, etc. I did have an issue with my boss and my HR person going through and undermining my team while they did an investigation of me for a "leadership development" during which I was worried about losing my job and have been ever since. Of course, we can't pinpoint this exactly, but it may be the cause.
Anyway, we are still in pursuit of what is causing the dizziness/shakiness. They are still constant. I am on the same medications. Still hoping and praying that we will find an answer. In the meantime, I have lost my job and will likely be going out on disability. I live everyday hoping to wake up and have the symptoms be gone.
So to those of you searching for an answer - try these:
Mal de Debarquement - there is a great website online
Chronic migraine - this is a general category that neurologists lump a lot into.
viral labryinthitis
perilymph fistula - this is inner ear
PFO - patent foramen ovale
Good luck! Keep posting so we can all keep looking for answers together
Ginbme!
My original symptoms started like sinus infection symptoms. I had pressure in the face, worse when I bent over, pressure across the bridge of my nose, congestion. Then some dizziness started. I am an RN and have 15 years of experience, have worked in MS and ICU so I am comfortable diagnosing a simple sinus infection. I tried the usual OTC meds and started sinus rinses without success so on 4/30 I saw my PCP for an antibiotic Rx. finished the meds, but it didn't get better and the dizziness got worse and I had started having episodes of this internal shakiness feeling that I had a hard time describing but it felt like it was coming from my chest and someone was just in there shaking me. However, if I held out my hands were steady as they could be and even if my husband touched me, he couldn't feel any shakiness. Also my brain felt like it was sloshing around in my head. my PCP sent me for hearing and balance tests that were normal, sent me to an ENT, and got a CT scan of my head that showed a left maxillary retention cyst. The ENT was sure that the cyst wasn't causing the dizziness but did agree to remove the cyst. The surgery was done, but the internal shakiness suddenly was constant now, not intermittent like it had been.
At this point, we started seeing all kinds of MDs and doing tests to try to figure out what was going on. I have seen an ED MD on a day the symptoms got worse. He didn't have any real good ideas and told me to follow up with a neurologist. I couldn't get into a neurologist for 2 months. I did see my spine MD who does injections for my 2 bulging discs in my lumbar spine. My cervical spine MRI showed that I have lost the cervical curvature. The spine MD stated this is sometimes a normal finding and he felt that this is not the cause of my dizziness or shakiness.
My first appointment with the first neurologist was disappointing at best. She told me that my other doctors had already done all the tests that she would have done and sometimes we never really know what causes these things but she could refer me to a psychiatrist who could help me learn to deal with it. Do you believe that? nevertheless, we decided she was an idiot and saw a second one. The 2nd neurologist simply said it was a chronic migraine and that I wasn't on the correct dose of Amitriptyline and she increased my dose to 75mg and said she would follow up with me in 3 months. Wow - she didn't even care if I would still have any issues within that time frame.
Next one of my nurse friends remembered a neighbor that had similar symptoms. she called her and got her diagnosis of Mal de Debarquement Syndrome. My symptoms are almost exactly like this although I do have come classic visual migraine symptoms thrown in there with the shakiness.
So, my PCP has me on Amitriptyline, Topiramate, and clonazepam.
Next, they send me to a Neuro-Otologist who specializes in this type of dizziness issue. He decides to do one more test that has come up with 2 of his patients. A Transthoracic Echocardiogram with bubble study. it is essentially an ultrasound of your heart where you have an IV in place and they inject a syringe full of air bubbles and watch to see if they cross in the heart. Unfortunately, in mine, tjhey did. This indicates that I have a hole in my heart called a PFO or patent foramen ovale. This can cause migraines, put patients at risk for stroke, etc. unfortunately, on my health insurance plan, these are only fixed if approved by a committee because Medicare heavily regulates them. So, while this may be partially the cause of some of the dizziness and shakiness, they won't be fixing mine. The cardiologist thinks I have had this for all my life so it is unlikely that it is the cause, but it still makes me nervous.
All other tests have been negative. I am not in menopause, I am not diabetic, I do not have thyroid problems, my cholesterol is 240 so it is elevated, but that and the PFO are seriously the only tests that have come back even remotely positive.
My cardiologist did indicate that he himself has suffered for the last 3-4 years with similar symptoms and has seen a specialized Physical Therapist that has helped him tremendously. He stated that back in April, I suffered some event or serious of events that disorganized my brain and balance. He stated this could be caused by stress, illness, etc. I did have an issue with my boss and my HR person going through and undermining my team while they did an investigation of me for a "leadership development" during which I was worried about losing my job and have been ever since. Of course, we can't pinpoint this exactly, but it may be the cause.
Anyway, we are still in pursuit of what is causing the dizziness/shakiness. They are still constant. I am on the same medications. Still hoping and praying that we will find an answer. In the meantime, I have lost my job and will likely be going out on disability. I live everyday hoping to wake up and have the symptoms be gone.
So to those of you searching for an answer - try these:
Mal de Debarquement - there is a great website online
Chronic migraine - this is a general category that neurologists lump a lot into.
viral labryinthitis
perilymph fistula - this is inner ear
PFO - patent foramen ovale
Good luck! Keep posting so we can all keep looking for answers together
Ginbme!
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