IV Treatment

[halbashes]

Some forms of Dysautonomia have been known to respond to IV Saline therapy.  What is your experience with this?  Elaborate below if you will like.

[Heiferly]

Sorry I fell so behind on this folks!!  We hit some hot weather here in Ohio and I just now got my A/C setup (you can see the rush of posts from me just recently trying to catch up, LOL) ... prior to that I'd been trying to hit my computer in short spurts and then head back to the bed to get horizontal before I got too sick ... which didn't allow for the kind of digging required to get these articles.  I need a secretary to organize all the journal articles I have, LOL!!

Okay, for anyone who doesn't have it, one of the best journal articles describing syncope is by Dr. Grubb and you can get that here:

http://circ.ahajournals.org/cgi/content/full/111/22/2997

From that, you can get the description of how your blood volume shifts when upright, and how cerebral perfusion is linked to NCS.  (If I'm remembering the right article.  Sorry, I really don't have time to re-read these all cover-to-cover as I'm digging through them.  For every one I post here, I'm digging through multiple folders of about 10 or more articles, so please bear with me.)

For those with POTS, this article talks about blood volume regulation.  Hypovolemia (low blood volume) is a reason for getting IV saline, which temporarily expands blood volume:

http://circ.ahajournals.org/cgi/content/full/111/13/1574

Here's an article describing a (successful) clinical trial of saline IV on POTS (to the best of my knowledge, as is the case here, in the US these studies have been conducted at Vandy; there have been several):

http://circ.ahajournals.org/cgi/content/full/96/2/575

IV Saline for POTS discussed here under "Non-Pharmacological Treatment of POTS" (btw, this article briefly touches on ablation being potentially harmful as a treatment in POTS patients ... I know some people on this forum ask about that so if anyone is looking for info on that, there it is ... I can never find it when I'm looking for it, LOL ... it's BURIED in there ... I need to make a "key" to these or something):

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1501099/

Not a free article, but if you know someone with medical library access (or want to ask your local library to procure the article for you for a copying fee through interlibrary loan--should cost less than buying it outright through this website), here's a Mayo study on POTS that included IV saline as one of the tested interventions:

http://www.springerlink.com/content/h4152621g7324743/

Not forgetting about the NCS-ers!!  Here's NCS and IV saline in a clinical trial:

http://content.onlinejacc.org/cgi/content/full/33/7/2059

IV saline in another clinical trial of NCS:

http://archpedi.ama-assn.org/cgi/content/full/152/2/165

Okay, that's what I found today.  If there's more on here, I'm not seeing it at the moment, sorry.  Oh, and Laura, I don't know yet about the port ... I haven't seen my cardiologist yet since the kidney stone, which I'm hoping is my "ace in the hole," so to speak.  

I hope those articles are helpful!!

Have a great week everyone!  Let me know if there are any questions about those articles,
-Heiferly.

[laurab2818]

Any progress getting your port for IV's?

[Kavbear]

If you are up to it I would love to hear these talking points. I might have found a local doctor and am praying!

[tonyad]

   WOW! Thanks :)  Much appreciated and then some  ..Lol

Sorry you are having some "crashes" going on  :(
Hope tomorrow will bring you a better day.

Thanks again,
~Tonya

[Heiferly]

I think you just gave me some homework for the weekend.  ;-)

Tell you what, barring unforeseen dysauto crashes, I'll find an hour or two to pour over the articles on my external hard drive and see what I can dig up for you that would be pertinent to this.  I have an entire folder of NCS journal articles on there; I just need to dig through them and see if I can find what I'm vaguely remembering.  OH the BRAIN FOG!!  But I'm pretty sure that I have at least one article that might be useful in giving you some "talking points" with your doc(s).  I'll let you know what I dig up.  

Happy weekend all!!!
-Heiferly

[tonyad]

   I just got through reading back all the post on this poll.

Oh my gosh!!!  PLEASE excuse my spelling errors!  I used to be the best speller.
But now, my fingers and brain do not coordinate and i am getting letters mixed up kinda like dylexia? .....perhaps due to lack of oxygen to brain and having cognitive problems from the Multiple Sclerosis??

   Have a Great weekend Everyone  ;)
~Tonya