Advice from experienced endo sufferers...

[ashleyeb]

Hello,

I was diagnosed with endometriosis a little over a year ago. I had the surgery, then followed with 6 months of Lupron (or hell in a syringe as I like to refer to it), and then immediately went on the pill continuously.

My symptoms have improved... but it seems as though my body just won't let me win. After being on the pill continuously for about four months, I spotted for about a month off and on. Taking my GYN's advice, I stopped the pill for 5 days, and then went back on. I had a somewhat normal period, but a week after of excruciating pain. I haven't had any spotting since though.

Since then... I've been having PMS like symptoms around the same time every month. Extreme fatigue (nearly incapacitating), some cramping, cravings, etc. But no bleeding at all.

Should I still be having these symptoms even though I am not menstruating?

I will discuss this with my doctor, of course - but wanted to hear from some of you who have been through this.

Thanks for any advice.

[misskay31]

Hey. Just a question? I keep reading about Lupin. What exactly is it? And does it work to help reduce Endo pain?

[ashleyeb]

Will do. Thank you for your response!

[jaysgirl114]

First of all, just know that you are not alone and I love your name for Lupron. Agreed.  I have been on different pills and different doses.  When I was doing the pill continuously, I stopped every 3 months to have a period. The pill your own now maybe too low on estrogen or too high.  Ask your dr if that could be the reason why and that would be a simple fix.  Hope this helps.