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1640824 tn?1325888415

Endo and the ca 125 blood test?

Hello ladies I am new to all of this. I started having really bad abdominal pain , lower back pain, and pain at the top of my legs. Went to my obgyn and I have two cyst on my right ov and he said looks like endo cyst on my left at 3.1cm. He ordered a ca 125 blood test and it was 45? Did anyone have this test done also? Is that number high? I am a big worrier thinking I have ov cancer. I have one child he is 8 and me and my husband have been trying for 5 years now for another one.  I have always had bad periods sometimes my periods was longer then a week with clots. I would just like some info on endo and if anyone has done the ca 125 test. Thank you for reading my post.
4 Responses
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136956 tn?1688675680
hmm I don't see that one on the list. Let me go talk to some people and see if anyone has had surgery with him too.

There are two great surgeons near you and the one is one of the best. Maybe just keep them on file for the future too.

Dr. Kenny Sinervo

Center for Endometriosis Care (CEC),
Perimeter Town Center,
1140 Hammond Drive,
Building F, Suite 6220,
Atlanta, GA 30328 USA
T: (770) 913-0001    

Specialisation: GYN only
Bowl/urinary tract surgery: Does some bowel/urinary tract work. Works with an assisting colorectal surgeon.


And



Dr. Thomas Lyons

Center for Women's Care & Reproductive Surgery,
1140 Hammond Drive, Suite F6230,
Atlanta, Georgia 30328.
T: (888) 545-0400

Specialisation: GYN only
Bowl/urinary tract surgery: Does some bowel/urinary tract work.
Helpful - 0
1640824 tn?1325888415
That you for your reply... I am 27 years old.. Yes my surgeon has over 35 years experience. I am for sure he will do a great job. He will also be doing an hsg.. He said he will be looking at everything... His name is dr.gantt from Bristol va.. He also has an office in Charleston wv that's were I will be having the surgery.  You have made me feel a lot better. I have issues with anxiety and I always think the worst . Thank you again so much    
Helpful - 0
136956 tn?1688675680
The CA-125 is not an accurate use for Endo however it can determine inflammatory diseases like, Endo, Adhesions, OVCA, Adenomyosis, inflammation, etc. Not one disease can pinpoint an elevated CA-125.

I had 3 done. Once during my period it was 37, once during ovulation it was 78 and after surgery it was 35. 35 and below is standard and with you having 45 its possible it could be anything but most likely Endo if you have those symptoms such as infertility. It is possible that endo is blocking your tubes and this surgery most likely will show that if you are having a hard time getting pregnant.

99.9% of cysts are benign so I don't want you to be worried. Multiple cysts on an ovary an indicated PCOS so not sure if they will be looking for that diagnoses as well. Were the cysts blood filled or regular? Blood filled cysts are called Endometriomas and if you have one it is an indicator of moderate to severe disease.

Before your surgery I would ask the following questions to your surgeon.

1) If Endo is found will it all be removed even if it is on the bowels and bladder and other places not just the tubes?

2) What is the surgeons experience with all stages of Endo?

3) Will he excise the endo (cut out) or laser which only gets the surfaces of the disease and causes more scar tissue.

4) will it be a basic laparscopic surgery or open surgery? If things get complicated will you continue or will another surgeon step in?

It is really important to know who is operating on you as I have met many women who have had multiple surgeries done because of lack of experience. I know one that had 22 surgeries by the time she was 26. that is insane. So Excision is the way to go and your first surgery is the most important.

I can let you know if anyone has had surgery with your surgeon before if you give me the name as well as the location.

There are only a handful of surgeons around the world that can properly remove the disease properly and I can give you the names to any that are around you.

I have many endosisters out there and the one thing that they say is they wish they had their surgery with someone with experience because they felt that it caused more problems with their fertility.

Helpful - 0
1640824 tn?1325888415
Also forgot to mention I go for Larparscopy this thur the 19th.
Helpful - 0

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