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Avatar universal

Convinced I Have Endo, Opinions/Advice?

     I have finally reached my breaking point, and tomorrow I am making an apt with my Gyn.

     I have always had very heavy periods, severe cramping, you know the kind that makes you want to curl up and die? I would cramp before and during. I remember a specific incident where I was at school, gym class. I was experiencing usual cramping. The class was sent to the nurses office for eye exams or some stuff, I don't remember. I was feeling a little nauseas, and we were all crammed into a tiny little office. Anyhow, the shampoo of the girl in front of me was too much. I ran past everyone and into the bathroom, where I passed out.

     That was literally the last straw. Up until that point I had been begging my mom to put me on BC. She was really rather neglectful. I cried to the nurses and school psychologist. I had done research and I knew I wanted to be on depo, I wanted to minimize my cycle by as much as possible. After begging them to talk to my mother, they did and she made the apt.

     I also had digestive issues. I remember being constipated ALL the time. It was so uncomfortable. I would miss the bus sometimes because it would basically be a decision to try and use the bathroom before school or go to school and deal w the pain all day. I attributed that to diet.

     On depo, things were great for a short while. I wasn't feeling cramping nearly as badly as before, and my period was almost eliminated.

     I have, since I can remember had a dull aching pain in what felt like my left ovary. On occasion it would be sharp and painful, but for the most part just dull and achey. I did finally make an apt with my Gyn. She did and ultrasound (internal), and determined nothing was wrong. I then made an apt with my family doctor, who just poked at my stomach and told me I had IBS. I needed a more regular diet and sleep schedule.


     Fast forward 5 years, I've been on Depo, the pill, and then I went off the pill for one month, thinking I would take part in a BC clinical trial. While I was off the pill, I got my period. So heavy, so gross. I had to leave work early one day, and I had to call out the next, it was just that heavy. I couldn't leave the house and just laid in bed all day. So I call to get out of the trial, before I'm even actually in, and make an apt to go back on Depo.

     So, now, I'm on Depo. I have a constant dull ache in what feels like my left ovary, as well as actual cramping on occasion. I'm gassy, all the time. I'm irregular, constipated/diarrhea. I pee at least twice an hour. About a year ago lost an unusual amount of weight out of nowhere. Since then I've been so concerned for my health. I've heard of Endo before, but after hardcore researching I'm convinced this is my issue.

     After speaking with my mother, she says that I have a cousin that had Endo, as well as an Aunt, and my own mother has had problems with cysts. I come from a long line of female issues.

     I'm 20 now and I'm tired of this. Even if there is nothing that can be done, I want answers. I'm making an apt with my Gyn. I'm basically going to demand whatever is necessary.

     Any advice? Questions I should ask? Anything?
5 Responses
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136956 tn?1688675680
That is great to hear, I am glad they are listening and proceeding forward.

Good luck let me know how it goes.
Helpful - 0
Avatar universal
I went today and she wants to do blood/urine tests. They've scheduled me for an ultrasound and said they'd set me up with a surgeon that specializes in Endo. So, hopefully, answers will come soon.
Helpful - 0
136956 tn?1688675680
Most surgeons will just use laser to remove the disease ad that is when the process begins. When you laser you don't get down to the root of the disease just the surface. Plus the laser leaves behind carbon residue which will cause pain as well. It is important to excise (cut out) the disease with scissors and use minimal laser.

These surgeons are harder to find but I can try to help you fin one.

You want it done right the first time or you will end up like many women who have had over 10 surgeries because it was done all by laser.
Helpful - 0
Avatar universal
Ticked, what exactly do you mean by not just laser?
Helpful - 0
136956 tn?1688675680
It sounds like you have Endo and if you have family with it, it is highly hereditary.

I would first find an Endo surgeon that specializes in this disease that excises Endo not just laser.

That would be my first step
Helpful - 0

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