Returning symptoms

[alee_33]

I was diagnosed with endo 4 years ago. I had the lap surgury around that time. It helped for about 3 months after the surgery and all the symptoms returned. I was already on the birth control pill but my gyno decided that the mirana iud would be my next best alternative. So it has been about 3 years now. I was one of the lucky ones who lost her period completly. but in the last couple of months, exterme craps and the stabbing pain also with a little bleeding has returned. I live in a remote northern community where there is only gp's so its hard to get a doctor who understands. Specalists are about 4-6 hours away. So the question is with these symptoms returning should I be going to see someone? What could be happening?

[alee_33]

Hi. Thanks for sharing your story. I know that it is becoming more commen but still feel really alone in it all. I am only 28 and don't have any children and hope to maybe in the next couple of years. So removing the works isn't an option for me yet. I hope that one day I might be able to have children. The other part of the problem for me is I have a very physically demanding job. I work as a Park Warden in Ontario, and the Park that I am in is a remote park. I fly in and out for 8 days at a time by float plane and am camping the 8 days I am out there and running a chainsaw, cutting portages, canoeing and portaging. I think one thing that is even harder is that this endo is at times not allowing me to do the physical work. I can't even imaging changing careers to a desk job, I always wanted to be in enforcement or firefighting or paramedic. And it is getting to the point were I might have to give it up. I know there isn't an easy fix for all of this but I wish I could just find something that would make it alittle more tolerable. Or not affect my career. Along with everything else that goes with having this. Guess this is not really a question more of a rant, nice to hear that someone understands. You can tell people around you what is happening but they just don't get it. Wonder what I could do to make them understand alittle more..... Anyway thanks again for your feedback

[jess4412]

I also have this problem of returning symptoms. Its been 14 months since my diagnosis/lap, and I have pain very frequently again, as well as all of my other symptoms and I'm not sure if I should mention it to my specialist. When does it typically come back? About six months ago she seemed to think its too soon for that and she doesn't want to do too many surgeries, since that can cause scar tissue. I just want at least a full year of relief! I'm only 20 and it worries me to think that it could just always be like this...

[esoteric1]

I lived with severe endo pain since I had my tubal ligation in 1996. When they did my tubes they used little clips to "tie" them ... a month later I was having strange pain in that area, finally 6 months later they did another lap and saw that one of the clips had worked its way thru my tube and was kinda dangling there.  So they removed the clips and put in new ones.  A few months later, it happened AGAIN.  So once again they went back in and replaced them.  Believe it or not, it happened yet again.  You'd think they'd catch on by now.  This time they decided to take the clips out and cauterize the tubes instead, plus the endo that had developed since the original laparoscopy.  In taking out the clips they dropped one ... yes, dropped it and lost it inside me ... but said it shouldn't hurt anything. uh huh, ok.  I continued having a lot of pain twice a month (period and ovulation), like drop to the floor and can't move kinda pain, so in 2002 they did a partial vag hyst, took out my uterus only, and told me that this would prevent any more endo from developing.  
I continued to have some pain when I was ovulating, usually not too bad until about 2009.  Then it returned with a vengeance.  In Feb 2010 they did a lap and said I had considerable endo and scar tissue, zapped it all (I have lovely pictures they gave me lol).  This time the dr told me that if there is even the minutest amount of endo left behind, like way in the back or between organs and they can't see or get at it, it can spread and grow and come back.  In 2011 I had my ovaries and tubes out and I haven't had any problems with any of it since then.  
From all those years of dealing with endo, believe me when I say I feel your pain ... with me it felt like someone had stabbed me with a knife, I would spend hours just lying on the bed rocking back and forth waiting for it to go away.  For me the ultimate solution was when they finally just took the works out, but that may not be for everyone, particularly if you're young and still want to have kids.  You should try to take the time and go see a specialist, write down everything as you feel it so you have a complete list of your symptoms.  
I hope you get some relief soon!  Hugs!