THINK you have endo?...what are your symptoms?

[Nina0108]

Just wondering the different symptoms we're experiencing.

I havn't been diagnosed with endo...or anything for that matter!

Lets compare notes, here are my symptoms....

left pelvic pain for about 14 mos
right pelvic pain intermittenly for the past 2 mos (sometimes with left pelvic pain)
CONSTANT pelvic pain
back pain that sometimes wraps along my left side
nausea...everyday...all day for the past 2 mos
irregular periods for the past 3 mos (maybe before? i'm not sure because I didn't have a period secondary to nursing)
oh yeah..FATIGUE! how'd I forget that?!

But like I said, no diagnosis yet, I see my gyn tomorrow for my 2nd abdomenal/transvaginal ultrasound results and to discuss exploratory laparoscopy option...

[am511]

How did your appt go today????

[Nina0108]

Sorry so late...
My u/s was pretty normal except a grape sized right ovarian cyst which is probably due to ovulation.

My dr thinks I may have endo (duh!) or scar tissue (how? Idk) causing the sx, so of course I've decided to move fwd with the ex lap. If he finds something during the surgery it will be removed unless its too complicated in which case I'd be referred to a specialist.

At this point I'm waiting for the surgery scheduler to call me to schedule d-day! I'm thinking the 1st wk of Nov would be good for me but well see...I'm no longer anxious I wanna "just do it" and move on from there, where ever "there" is.
I'm also frustrated though because I feel like my life can't move fwd until the surgery/recovery. Feels like I'm screaming inside!!!

But thanks for thinking of me :)
How's life treating you?...or, how's the pain treating you?

[am511]

Well at least you have an answer kind of. That's the week I am having surgery as well. I am just scared that they will do the surgery and find nothing and I will still have no reason for the pain. Because this has been my luck in the past!

I'm hanging in there. Still having a lot of pain. Taking the tramadol when I have to function and narcotics when I don't. Just waiting on surgery. At least with this forum I know there are others like me!!!!

[Nina0108]

That too is a concern of mine. I always think "what if he finds nothing?....then what?"

So what happened with you in the past? Did you actually have the lap and nothing was found? Yikes :/

[Nina0108]

So the scheduler hasn't called me yet so I called to speak with her and I get "unfortunately she's not back in the office until tuesday and she's the only one who can schedule surgeries." WTH!!! Now I'm pissed....so was I just gonna wait until tues to get a call? Smh...

[thebrat333]

Hi there

Lol only just seen this post !!!

I can't believe how similar my pains etc are to yours!!!

same side left the pain is worse and round the back and side sometimes.

Just had my 3rd internal ultrasound and the lady said that although no cysts this time my left ovary is wrapped around the back of my uterus ??????

Very strange !!!   I still have no date for my surgery as have to wait for the "confirmed results of my scan"  Will try get it quicker though as orig they booked me an app 4 weeks later just for the results!!!

Just want it over with now but am sure I will have to have a second surgery as feels pretty bad . I am going to try and change my surgeon to an endo specialist now to save having it done twice!!!!  Have found one at my hospital no doubt he is fully booked for the next six months!!!  

[thebrat333]

Oh meant to say have been having right side pain for three months now!!

My gyno had the cheek to say at my "chat" appointment that he didn't think I had endo as I have three kids . WHATEVER!!!!!

He said if we open you up and don't find anything  then there is nothing more we can do (B******)

He then proceeded to give me a very  very rough and painful pelvic exam even though I told him I couldn't walk for a week after my internal ultrasound due to the pain!!!  


I hate him already and am definately changing surgeons!!!

[Nina0108]

HE'S A JERK!! Sometimes I think if we gave men a female reproductive system for 1 wk they'd be ready to return it!!

Good idea...SWITCH! Let someone else get paid for your surgery.

[am511]

No I have never had a lap procedure with no results as I have had many other procedures without results. I have had many tests regarding my abdominal pain that have come back negative over the years. So I fear that this to will come back negative as well.

That's annoying. Now you have to wait longer to schedule. That is not right. Surely the nurse or someone else in the office could schedule you.. I think I might be complaining about that.

As to you thebrat333. You need to find a new doctor whether you see an endo specialist or not. This guy sounds like a real a^%. And does not have the right to be treating you that way.

[sweetescape]

I had left side pelvic pain for almost a year, nausea, lost almost 40 lbs, burning pain in rectal area (deep core almost) but periods were nothing special.  Multiple tests, scans and specialist, until a friend got me into a gyn that said he would do a lap in 8 days.  Turns out, IBS, moderate endo with much scarring, totally inflamed abdomen on inside, hernia and 3 cm absess on posterior vagina.  Had a total abdominal hyst with ovaries removed 2 weeks after the lap.  It has only been 4 1/2 weeks, but there is some improvement in my overall health since the 2 surgeries.  Hang in there and try to find a surgeon you are comfortable with!

[Nina0108]

So my ex-lap is scheduled for 11/28 :( .....as we know I was hoping for something sooner but I can be patient. I could have gotten it done sooner but it would be with a different Dr n I prefer to stay with my old guy! So until then:

Dear Pain,
Although I can always depend on you to be by my side YOU ARE NOT A FRIEND!! You cause me anguish, grief, exhaustion, anxiety, etc etc....  I will not allow this relationship to continue.

I've been seeing someone on the side, his name is Faith Hope. I know its a prissy kind of feminine name but he is anything but. I've put most of my eggs in his basket, the others are stragglers that have fallen, but one day they too will meet their clan.

So you see Pain, old buddy old pal, you will no longer consume me. Even if this laparoscopy is only the beginning of the end of our life together, YOU WILL NOT CONSUME ME!!

Signed,
DONE

[Nina0108]

I'm so late seeing your post! My apologies!! Wow, you got that done quickly! Please keep us up to date on your progress...

[am511]

Hi - Im so glad that you are getting your lap done. Its not that far away. I am having mine done next week. I am so scared that will not find anything. But I am also scared that they will find something. Double edged sword I guess cause I do want to know. Oh well.... My pain is getting better or so I thought but tonight I sure hurt!

[Nina0108]

you must be at work huh? LOL! that's how I felt I actually had a almost pain free day on Mon, then Tues it was back to the drawing board!

Will you make a thread to post your recovery?...I hope so.  What day is your lap? what have you done to prepare? (comfy clothes/fibrous foods/etc...)

[am511]

I did work last evening! As far as preparing for surgery I did buy some comfy clothes to wear home that day and I have been taking daily stool softners with a stimulant in it to kind of empty myself before the lap. I also had to file fmla just in case I need off longer than the 5 days she is giving me! But I am also in school full time ( I graduate in decemeber) so in the two days I have off before surgery I am finishing this weeks homework plus doing next weeks bc I know I won't be able to do it next week as well as getting the house cleaned and laundry caught up! Yes I will create a thread about my recovery! Lol once I'm not drugged

[achilles2]

The way you can have scar tissue-- adhesions is that endo itself can cause adhesions.

I hope all goes well and I am glad that your doctor will admit that if it is beyond his skill he is going to send to a specialist. Many ob/gyns do not. Endo is very complicated and gen ob/gyn typically does not know enough to treat it well.

achilles2

[achilles2]

You might want to look into this place:
http://www.endometriosis.co.uk/

The founder is suffer from endo. (She might be able to help you after you have surgery.

achilles2

[thebrat333]

Hi there thanks will look it up!!  I still haven't got a date through for my surgery but when I phoned the hospital they said possibly January!!!!!

They said it is because they have to schedule two different surgeons as I am having a cystoscopy and exploratory Laparoscopy at the same time (like thats my fault not)

[thebrat333]

Hi there

Have you had your surgery yet??????

[thebrat333]

Hi there

only two weeks and 1 day left!!!!   Are you getting scared yet??

I know we all want it sorted out but it is really scary though too.

I am trying not to think about it or I will worry myself silly like I did when I had my hydrothermal ablation 4 years ago .   Don't like the anaesthetic  thing really .  


Good luck and sorry haven't been on here for a while forgot to follow the post duh!!!

[achilles2]

Two surgeons? My surgeon, since he is an endo specialist performed my lap and cystoscopy when I had my surgery over 4 years ago. (I even have the pics) He was the one that only diagnosed my endo he also diagnosed my I.C. He is also the one that prescribes the meds for my I.C. He preforms a cystoscopy to make sure there is no endo and to make sure he did not do any damage to the bladder if he had to remove endo or adhesions off the bladder and/or ureter.

He will also call in another surgeon if he thinks he needs to. Such as a colorectal surgeon perform a bowel resection (if needed).

I hope that you get your surgery soon,
achilles2

[thebrat333]

Hi there

wow he seems really good......my gyno did mention maybe getting the surgeon to do both but he said you don't know who you are going to get for sure until the day so um they had to book the other one just in case and if it is really bad will have to go to another town for the next surgery .  

I think it is on my bowel or bladder or both dreading it really.

How are you now????

[achilles2]

That is awful that you do not even know who is going to do your surgery. I recently had my second surgery and I am on my second six month course of lupron with add-back (my first was after my first surgery.) I am hoping that this and continuing to take turmeric, bromelain, drink ginger tea, continuing my gluten free diet, and trying to avoid things like certain oils-- canola, corn, vegetable, will help by keeping down the inflammation and keep the endo under control.

achilles2

(PS While you are waiting you might see if Dian Mills (she is the one whose info I told you about) can even help you before you have surgery.

[thebrat333]

Thanks for that !

I haven't tried the avoid diet thing just waiting for the confirmed diagnosis first and enjoying my food while I can .  

I did give up wheat and dairy for a bit a while ago as part of the blood group diet and it worked but really hard to stick to .

How are you managing ??

The cornflour substitute I used was awful lol

I did bake my own bread with spelt flour and honey and was pretty good but had to slice and freeze it as no preservatives.

I don't drink tea or coffee and just have green tea though which is a good thing as I read somewhere to avoid caffine too for endo.

I hate taking all these pills and they are so expensive too.  I was hoping to be pill free afterwards but from what you are saying that might not be the case :(

You were pretty unlucky having IC as well :(  hope I don't fair that bad when I have mine.