anyone have a similar issue?

[heatherbear25]

i have been off my hormone pills for a year now and my cycles were normal but i am still having painful cramps, painful bowel movement, painful intercourse, and painful urination also nausea. my cycles continued be normal until i was a week late on my period. and then i was four days late and the pain was unbearable i had to go to the ER. because i passed some fleshy tissue with heavy bleeding. i thought i was having a miscarriage. turns out from my ER visit i wasn't pregnant and that was just me shedding the lining of my uterus. now i am a whole month late! and i am sick. its seems that every time i am late on my period my immune system shuts down and i get sick. has this happened to anyone with endometriosis? its freaking me out and the pain is horrible and the mood swings i can't handle it.

[ticked]

Sorry that my answer was not what you were looking for. This site is here to help people the best they can. I am not a doctor so I can only pretty much relay what is out there when it comes to this disease or my experience. Good luck.

[heatherbear25]

i've been on so many hormones ticked. i've been on the normal bcp, to the depo provera shot, to orthotrycoline, to seasonnque and northinedrone a low dose of it and provera a high dose and nothing has helped. synthetic hormones isn't for me. i guess me telling you that didn't re gesture through. thats ok. it happens.

[ticked]

Some people respond differently to hormones and it might just mean that you need to try another hormone to try to stop the pain.

[heatherbear25]

i came off of my continuous bcp  because i was dealing with some serious side effects even though it was helping the pelvic pain. i was having really bad headaches, rashes on my face, and back pain. and i would get really depressed. i was at the time taking norethindrone for 8 months and the side affects kept getting worse. i couldn't function. so i told my obgyn about that and she insisted it wasn't the hormones. so she put me on a higher dose of something else. i had to take 10mg provera tablets. and i didn't have the headaches,back pain or rashes. but two months into taking it. the nausea was intense. so i tried taking it with food. and the nausea was not going away and i couldn't function at school or work. so i stopped taking it completely. i just took three pregnancy tests yesterday. clearblue. and the all three said negative. and im am still not bleeding..

[ticked]

I seemed to do well on the continuous BCP but when I came off it I was so sick, my hormones were all over the place I was depressed and the pain was bad. In 8 yrs I only came off it three times and not off it more than 2.

What made you decide to come off it? What hormone were you on?