I've been contact with hepatologist, and she told me do nothing about bilirubin, just get fresh air, drink max 2 littre of fluid and eat as normal... But my mum soo tired, her legs are too weak and next appoitment is on Wednesday... is it right?
Make sure your Mum's doctor is a hepatologist, a doctor who specializes in the liver. Call him/her today and explain what happened over the weekend so that he/she can advise you.
Advocate1955
Thank you all, really appreciate your help. I took my mum to medical emergency. After all tests/ ultascan doctors decided to stop the treatment. All liver functions are ok, only bilirubin gone very high... Doctor not too sure why it's happened, some more test will done tomorrow/ day after tomorrow... We were hoping for the best, but unfortunatly this is what happen...
Can anyone tell what to in this situation?
I agree with everything said here. I would think jaundice would be a medical emergency. Good luck. Keep us posted.
If you can't reach her doctor's office and the on-call doctor, please take her to an emergency room, preferably one that is associated with a research based/ university based medical center. But she needs immediate medical attention.
Advocate1955
Thinking of you, your Mom, I hope you have gotten medical attention. Did the doctor mention that during tx water is essential?
Yellowing of skin and eyes is a serious symptom. If you took her to the hospital they could help her.
Take Care
Dee
Please have her drink a lot of water to help flush the medication out of her system. As I had said before I found that this was a severe reaction, it was listed in the site that I had sent you.
I am not a doctor however I would think that she will need to recover from this first before they do anything.
Then perhaps she can be put on one of the newer medications. You had mentioned that her doctor said she had to try this first.
She should now be eligible for the newer meds. There is a lot of financial help out there if she doesn't have insurance. Even if she had insurance there is still financial help.
I am sure others will be a long to help and I will search for it as well. Please let us know how your Mum is doing and what her doctor says, if her doctor is not a hepatologist, please find her one. She will need close supervision during her next tx by a liver specialist. Where do you live? Perhaps we can help you find one in your area.
Take care, thank God you were there for her
My best
De