I'm sorry Susan I responded to your email earlier and all I can say is that I am just going to pray you are already UND, didn't have the bilirubin problem and were not on the placebo so it's all a moot point. You deserve it so much. ♥
Sorry susan, why don't you call mercks patient asst. site and see? Heres part of what is said there, maybe they will work something out......Good luck
At Merck we realize that sometimes exceptions need to be made based on the patient's individual circumstances. If you do not meet the prescription drug coverage criteria, your income meets the program criteria, and there are special circumstances of financial and medical hardship that apply to your situation, you can request that an exception be made for you
I'm so sorry you had this news today. I do know the INF and RIBA were not on my insurance formulary either but they did have a process in place for requests outside of their formulary and sent me a letter of approval for a year's treatment as soon as my doctor sent in the paperwork. Don't stop trying.
I'm so sorry about this news
You are one of the strongest people I have ever known so I know you'll find a way.
Good luck Susan,
Susan, I was 8 weeks into a study and switched over to Bocaprevir too, it has been pretty painless. I highly recommend this path, do whatever you can to figure out your husbands insurance and drug assistance that you can. You can do this!
Sorry to hear about the trial. It sounds like your doctor is definitely in your corner. Perhaps between him and the patient assistance site you can get the approvals and financial assistance needed. I hope this works for you - I am on the path for a Gilead trial as I am a null responder also. We are all sending our thoughts.
bummer - but, h*ll, it's just another detour on the road, there's no doubt about your getting to svr in the end. Keeping up the ifn while sorting out what to do next won't waste your investment in a lead-in. Rollover to boce seems a good option. Also, for quad, you don't have to wait for an all pill no-ifn regime, only for one more drug to add to the current triple. bms790052 and r7128 would seem the front-runners, but as far as I know neither has gotten to phase 3 yet,
I'm going to work on something for you...
Read your messages. I think I have some great news for you!
My news keeps on getting better - NOT! I just found out that for the last 9 wks, I've been only on SOC, drew placebo arm. For crying out loud, will I EVER get a break? I'm sorry but I just need to complain some, I am so wanting to put on a pair of boxing gloves and wail at a fr*gging punching bag, you know? Susan400
Magnum, thanks for the info, I'll PM you.
That's a nice thought, but 90% of the clinical trials will not take a person who has been exposed to a PI. It took me 3 years to finally get a trial and it was this one.
Susan, you have more bad luck than anyone I can think of. If there is a good side, it may be that you have been on SOC and not exposed to an agent that runs up your bilirubin.
I hope you can roll into Boceprevir.