SVR after tripple treat of Incivek

[Dee1956]

Hello, one thing that I was desperate for during tx was for people to come back and tell us how they were doing.
I started out with HCV, Cryogloinema, Cirrhosis, Diabetes, low Thyroid.  My doctor said that in my case it would be very hard to treat.  He then said he was only having me do 24 weeks, since I was a previous relapser.  He said he would not subject my liver to the additional 24 weeks that "may help" me get to SVR.  He has been involved in trials and Studies at Translational Inst at INOVA Fairfax VA Hospital with Dr Younnissi
I did the tx, it was awful as people can probably see in my journals or in my posts here and there :)
I did get to UND within the first 4 weeks, then UND at 24 weeks, 3 months later, 6 months later same
Now I am almost 16 months post tx.  I recently had blood work, I am SVR and my doctor said they are now considering this a cure.  He also said they are finding that while the liver regenerates it is also regenerating the scarred tissue.  I feel better than I have in years. My mind is clear, my hair is growing back, my muscles are building back up.  I am very happy that I took the chance

JimJim530 came back and said he went from a 3-4 and now is normal, that is great news and I hope encouraging to others on tx.

I hope that others will comment on how they are doing post tx to encourage those behind us, just like we were encouraged by those who went before.
I try to pay is forward.  

MedHelp, thank you for this wonderful site where so many fantastic loveing, supportive people have all come together to help each other.  I could not have gotten through the tx without everyone here

Please say a prayer for HectorSF, he is my hero.

Thank you all so much for your encouragement, support, advice, tips, etc.  I wish I had bought some stock in Walmart before starting tx, we were there every day or two :)

[Dee1956]

Hello I read each on of your posts and they brought tears to my eyes.  I know how hard the tx is.  Any of them are hard.  It is also very isolating because no one else knows what you are going through.
The worst for me were the mental side effects.  I thought I was losing my mind, thank God my husband convinced me I was not and that I would get through this.  Thank God for all the care takers out there who walk with us through this hell.  Sorry ...I get a little corny at times :)

[Dee1956]

Your words really spoke volumes to me
You are right, it was hell, at one point Gerbils and I were saying we were pioneers, our doctors had never treated anyone with Incivek and it was a nightmare.  One I am very happy to forget..well except on here to share with others :)  My hope is that everyone will share their story....give hope to those still in the trenches fighting the war
My best to you
D

[bbj2856]

This is wonderful  DEE. So glad for you . I got back Monday June 17 for my blood work I finished EOT  in  June 2012 and was UND went back in Dec 2012 was Und so I understand that is SVR . I am praying this blood work on Monday is still  a SVR . It is so good to hear when others have a good out come and  reach SVR. God Bless all of you and  lets keep praying for everyone who is still fighting to get there . Less keep in contact and help everyone we can with support and lots of love.
bbj

[shocked60]

Yes I had to stop Incivek 3 weeks early and my Riba was cut back because of severe rash. I was svr @ 24 weeks. I am now 3 months post tx and feeling good. Hair has started to grow back and skin is starting to be normal after the inclusive dermabrasion that comes with tx, Thank God for the foggy brain that let me forget the sore joints the swollen face, arms and legs and the relentless itching. If there is a Hell, we went there. But it was all worth it and I would do it again if I do not get the SVR in 3 months. My side effects may not have scared me so if I had come to this site more often to see others survive the same. Hang in there. All my best to all of you in the middle of tx. This will pass and be just a memory and you will have gained more compassion for others. All my best!

[pooh55811]

I had no medication reductions. I stayed with the full doses throughout Tx.

[nzkiwilife]

Thank you all of you for posting your results.
It really does give those of us still treating a boost while we persevere with our sx and look forward to our last day.

Can I ask if anyone that has now completed tx whether they stuck to the protocol or had to reduce the meds and if so, whether they still achieved svr?

I love the support and knowledge of this forum. Its like we are fighting our own private war from the rest of the world due to no one knowing what its like to go through this unless you are doing it yourself or are supporting someone that is going through it.
Goodness Ceanothus you are one tough cookie. Well done!!! Your perseverence paid off.