What is wrong with me?

[RBlue]

I don't know if this is the right forum to ask, but here it goes....... I am experiencing pain  and tenderness on the top left side of my head,behind my ear, jaw, side of neck,left eye, under my arm, sides of breasts, upper left side of stomach, left leg (groin area) and behind my knee (Extremely painful in leg area). There is a water like sound in my upper body; I experience this on both sides, but it is most painful on the left side of my body. At times it feels like rocks or pebbles in these areas and are very hard. This has been going on for almost a year. I have had ct scans, MRI's, was checked for clots in the leg, EKG,mammogram ect, one of my doctors suggested that I may have lyme and tested negative for it; but he decided to put me on a strong dosage of antibiotics; as he felt that perhaps some kind of bacteria was causing this and even it was not lyme the antibiotics would help. I have done research and am a bit confused as my symptoms mimic, clots,meningitis, MS, Lymph problems, cancer ect. Can someone please give me an idea of what I should be asking my doctor to test for or what should  the course of treatment be? Is anyone having some of the same symptoms?

Thanks :)

[JanetTN]

I might add trying the *******.org site.  You will be amazed at the amount of info there.  Lyme tests are not accurate.  You must be diagnosed by your symptoms usually and with a LYME LITERATE doctor.  This site has list of doctors currently diagnosing and treating Lyme.  If you don't find one in your area, you can ask on the forum.
I was misdiagnosed with dozens of things for 12 years until I finally got diagnosed with Lyme and am now receiving treatment.  The Lyme bacteria has attacked most of my organs.  I have neuropathy and my brain is mush.  Pain points all over.  If I had received treatment earlier, Lyme wouldn't have progressed to this state.  Good luck on your search!  Janet

[Hope75]

Yes, hop over to the Lyme Forum.  It is difficult to pin down and controversial for docs to treat.

[momtofourboys]

was just you mri's and ct of your legs? have you actually had your head examined by mri? I saw that you mentioned MS they need to do a mri of your brain for ms I do know that other then that I can't say what is the next step.
also how long were you on your medication for that they thought of lymes disease? usually you are on it for 3 weeks. and not all test come back positive for lymes. my sister in law and niece came back negative and had them repeated at a different location.
If you actually have lymes and it was a false positive, you might have permanet damage. I know my niece doesn't have any permanet damage, however my sister in law has joint issues that she is battling every day.
I hope you can get answers really quickly
michelle