Please start a new thread, yours is likely to get lost in this older, very large one, and since transplant is an option in your case, different flavor ofissue of importance as well.
I am so relieved to find all of you. I was diagnosed over a month ago with 1.5, 7 & 11.5 cm hemangiomas in my liver. I am in pain ALL the time. A great feeling of pushing in my abdomen as well as side & back pains.They are growing inside instead of on my liver and I was told I have the options of surgery to remove 2/3 of my liver if that isn't possible transplant is my only option. I'm so scared. Should I get a second opinion? Where do I go for that? I'm in Indianapolis & told the liver Drs here are among the best. Any advice and encouragement is welcome!
Hi Everybody
I do have hemangiomas on my liver. One is 12 on 8 , 7 on 8 and two small ones 1.5 on 1.5 and 1.1 on 1.1 . My doctor told me that at that point i need to have surgery which cannot be done here ( Las Vegas) because no one is qualify to do so and It needs to be done at UCLA . I'm freaking out...Seriously I am sooo scare...Thank you to all of you taking the time 2 share your experience. It's a huge help understanding the whole process..Please share if you have any advice.
Wow, I was recently diagnosed with a giant hemangioma as well. They sent me to a liver surgeon who wants to perform a left hepatectomy.
Any ideas why it is more common on the right lobe than the left?
Are left lobe hemangiomas any more dangerous than right lobe ones??
Hi, Yes it was the same for me. Your liver grows back, the only organ that does so. It was a difficult surgery for me to get through, but Im glad it was done. I still have to monitor the little hemangiomas there were in the section of liver that wasn't removed during my surgery. They are small and continue to grow...very slowly thank god.
How is he going to perform the surgery? Laproscopically or through large Chevron Incision? Is this a liver specialist, that specializes in this kind of surgery?
Hello. My sister has a giant liver hemangioma 14 cm that the doctor wants to do surgery on; he said she might only retain 30 percent of her liver, is your experience similar? The doctor said that it is an extremely dangerous surgery more dangerous than open heart surgery, and that liver failure after surgery would cause death. I'm scared. Is there anything you can tell information wise to help me with my concerns?
Thank you,
worried sister, Gina