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Headache 24hrs a day for almost 2 yrs.
Does anyone know of anybody or have ever heard of someone having a migraine that has lasted
for almost 2 years, 24 hours a day. It never goes away. I am seeing a nuerologist now and that he says I am in a percentile of 4% of people who suffer migraines do so the way I am. I just can't believe a migraine can last that long. I have seen several nuerologist with the same conclusion and if thats so, is there anybody that knows of anything that has help them. I am so tired of this and I feel I'm going nearly insane. Thanks for the input.
for almost 2 years, 24 hours a day. It never goes away. I am seeing a nuerologist now and that he says I am in a percentile of 4% of people who suffer migraines do so the way I am. I just can't believe a migraine can last that long. I have seen several nuerologist with the same conclusion and if thats so, is there anybody that knows of anything that has help them. I am so tired of this and I feel I'm going nearly insane. Thanks for the input.
Hi. I have had a chronic daily headache (24/7) for 24 years. It began 2 weeks after a serious car accident in which I received a severe whiplash. All of a sudden I got a headache that would not go away. I have had every test, any invasive treatment available, have taken any medication offered and nothing has worked. I take topamax, 100 mg am and pm and that appears to take the edge off of my headache. I have learned to live with my headache. I received a master's degree in Counseling and had a second child and was a Child Protective Services Social Worker for 15 years. So you can learn to cope with the headache and lead a productive life. You apparently have not seen a chronic pain specialist/neurologist yet. Get a referral to one asap. There are many treatments available and just because they did not work for me, that does not mean they won't work for you. Good luck and hang in there.
It's really nice to know that I am not alone in the suffering of chronic severe headaches, but I would wish them on no one! My husband, too has been extremely supportive. He actually gets mad at me for always trying to be the "big tough girl." What do you do? Life can't stop for headaches - at least that's what I keep trying to convince myself. Thanks for posting!
Yeah it is hard on them and i hate that. And yes in a sense i am like you the glue that keeps everything together. My dad is a disable vet and i take care of everything for him his bills his grocery shopping and ect. My husband { soon to be husband anyway} is a foreman for an electrical company and i help with all the paper work and have to make sure that he has enough copies of everything he needs and help with time sheets and payroll and ect. Plus take care of the kids and he has 2 kids that we get every other weekend and holidays and so on so part of the time we have 6 kids. Plus all the daily house work that is really suffering right now. I just cant keep up with it all on my own.
I used to have real good vision it was always 20/20 until i was about 28 and now i have to wear glasses when i read. My memory problems is mainly short term memory to. I have to write everything down to remember things. but then some times i forget where i wrote it down at. i have people telling me things all the time that i don't remember them telling me and i hear the same thing you do. Don't you remember i told you that last week or i just told you that yesterday. And yes i put a post in the Neurology dept. I got a few post but i've gotten more information from this one. I do have faith and hope that someday i will find a doctor or something that will help me.
You have to have that hope and faith.
My heart and prayers go out to you also.
I used to have real good vision it was always 20/20 until i was about 28 and now i have to wear glasses when i read. My memory problems is mainly short term memory to. I have to write everything down to remember things. but then some times i forget where i wrote it down at. i have people telling me things all the time that i don't remember them telling me and i hear the same thing you do. Don't you remember i told you that last week or i just told you that yesterday. And yes i put a post in the Neurology dept. I got a few post but i've gotten more information from this one. I do have faith and hope that someday i will find a doctor or something that will help me.
You have to have that hope and faith.
My heart and prayers go out to you also.
Oh my dear, what such young ones. I'm so sorry. I know it is hard for them to see you like this and I'm sure your like me in the sense that you are the glue to the family and you have to keep it together for them but some days it seems impossible. Just keep hanging in there, give yourself some time to just feel sorry for yourself, by yourself, just not for too long. It does feel better sometimes to let yourself know that you are just human and you can't do everything and be everything to everyone. I truely believe there has to be something out there somewhere that will help. I feel if I don't have that hope, then what's left. You have to have faith. I have alot of problems with my memory (short term) mainly. I know sometimes people get tired of saying "I told you that already, don't you remember". I too am having trouble with my vision, how strange is that. Have you always had good vision or okay vision. Me... I have always had really really good vision. Could see so clearly, far away and close. Now, not so much. What about you and how long? Have you put a post of the doctors of the Neurology dept.?
My heart and prayers go out to you. Keep the faith.
My heart and prayers go out to you. Keep the faith.
How do i live my life that is a good question. Trust me it is hard but i do everything that i can because of my kids and i have a great man who helps me alot and i have my dad who helps alot. if it wasn't for my soon to be husband and my dad i don't know what i would do. And yes i have trouble with my memory.alot of trouble with my memory and trouble with my hearing. and i'm starting to have more trouble with my vision. And i too Pray for one day,one hour and even 30 minutes of refief of this headache. my kids are not as old as yours my oldest son is only 10 then i have a 6 year old boy a 5 year old daughter and a 4 year old daughter. And i hate them having to see me like this.
Hello and wow, 3 years! I really don't know how you do it! I am at my wits end. I am so tired of having this migraine that I feel I could hit my head against a wall. Not that I would, I'm not stupid. But just the same, how do you live your life? There are days I just pray for one hour, just one hour of relief and feel no pain. It's tiring putting on this persona that everything is okay and I just smile and try to act like I'm having a good time when really I feel like hiding in a closet. I try not to let this get the best of me cause I like to control things in my life, not let this control me and what I do. There are lots of things I can't do because of it, or should I say shouldn't do, but I push on and usually make it worse, but you know what, it's what I wanted to do. The only thing I have really wanted to do and can't is excercise. Gosh I want to get this weight off!
Yes I have had a MRI and it showed everything to be normal. They have given me so many different kinds of medicine that I couldn't even begin to list, not that my memory would remember all of them anyway. Do you have a problem with your memory? I hope it's not just me. I know one of the things I had taken was a holistic approach which was Petadolex, ever heard of it? It seem to help on the intensity part, but I had alot of belching with it. I also have to tell you I have hypothyroidism, where your thyroid doesn't work, and yes they checked my pituitary gland, which is what I thought it might be. But it wasn't. I almost had hoped it was so it was something I know I could fight. The doctor said my brain reached a high point of brain activity where most people have a migraine and then it eventually calms back down till they have another one, but he said somehow my brain has not come down, like its stuck up there. That's how he kind of explained it to me where I could understand. I will keep on looking for ways to make this go away, I will never give up cause I'm 44 years old and I have so much life left in me to do so many things with my wonderful husband and our beautiful, talented, outgoing daughter who's in college now. So don't worry about me, I WILL find something. My next thing to try is a really good acupuncturist. My chiropracter told me about this really good one he's come across. Yes I have been to a chiropracter, internal medicine, several neurologists, gynecologist, optometrist and a massage therapist. Been checked out by them all. So I won't stop there.
I hope you never stop, especially since you have 4 wonderful children. I'll let you know how it goes...when I get the nerve to call. Not so excited to have a bunch of needles put in me. I had eleven long needles put in my back years ago before my last back surgery and I said I would never have anything like that again. But what am I doing... guess just trying to survive any way I can.
Yes I have had a MRI and it showed everything to be normal. They have given me so many different kinds of medicine that I couldn't even begin to list, not that my memory would remember all of them anyway. Do you have a problem with your memory? I hope it's not just me. I know one of the things I had taken was a holistic approach which was Petadolex, ever heard of it? It seem to help on the intensity part, but I had alot of belching with it. I also have to tell you I have hypothyroidism, where your thyroid doesn't work, and yes they checked my pituitary gland, which is what I thought it might be. But it wasn't. I almost had hoped it was so it was something I know I could fight. The doctor said my brain reached a high point of brain activity where most people have a migraine and then it eventually calms back down till they have another one, but he said somehow my brain has not come down, like its stuck up there. That's how he kind of explained it to me where I could understand. I will keep on looking for ways to make this go away, I will never give up cause I'm 44 years old and I have so much life left in me to do so many things with my wonderful husband and our beautiful, talented, outgoing daughter who's in college now. So don't worry about me, I WILL find something. My next thing to try is a really good acupuncturist. My chiropracter told me about this really good one he's come across. Yes I have been to a chiropracter, internal medicine, several neurologists, gynecologist, optometrist and a massage therapist. Been checked out by them all. So I won't stop there.
I hope you never stop, especially since you have 4 wonderful children. I'll let you know how it goes...when I get the nerve to call. Not so excited to have a bunch of needles put in me. I had eleven long needles put in my back years ago before my last back surgery and I said I would never have anything like that again. But what am I doing... guess just trying to survive any way I can.
Hi,
I am sorry to hear about your migraine. I understand how you feel i to suffer from migraines and i have had one every day for about 3 years. It can become very deppressing and interfer in your normal day life. i have had migraines for 27 years when i was in school i would have one about every day then as i got older between the ages of 18 to 21 they eased up a little and now they are constant some days the migraine isn't that bad and i can deal with it and go on with my day but other days they are so bad i cant stand it. But with mine i have brain seizers and i blackout. which is very scary for me see I am a single mom of 4 wonderful kids. I am unable to work because of my migraines my doctor has not let me work for 2 years now but it is understandable it is too dangerous for me to work since i never know when i am going to have a seizer or blackout.
Have they done an MRI or a CT on you?
It took 22 years after i started having migraines for a doctor to do an MRI on me and they found that i have a Pineal Cyst. And my migraines became constant once my cyst started to grow. It started out measuring 1.2 x 0.7 cm and it is now 10 x 12 cm that is also when my seizers stared and the blackouts got worse.
Not saying that you have a cyst but it is one possibility.
Over the past 27 years i have been on every migraine medication that is out there and none of it has helped me it would ease up my headache the first few times i'd take it then it wouldn't help at all so they'd put me on something else and to this day nothing helps nothing gets rid of my migraine. The migraine shots don't even really help anymore.
keep un informed on how you are doing and i hope they find something that will help your migraine.
I am sorry to hear about your migraine. I understand how you feel i to suffer from migraines and i have had one every day for about 3 years. It can become very deppressing and interfer in your normal day life. i have had migraines for 27 years when i was in school i would have one about every day then as i got older between the ages of 18 to 21 they eased up a little and now they are constant some days the migraine isn't that bad and i can deal with it and go on with my day but other days they are so bad i cant stand it. But with mine i have brain seizers and i blackout. which is very scary for me see I am a single mom of 4 wonderful kids. I am unable to work because of my migraines my doctor has not let me work for 2 years now but it is understandable it is too dangerous for me to work since i never know when i am going to have a seizer or blackout.
Have they done an MRI or a CT on you?
It took 22 years after i started having migraines for a doctor to do an MRI on me and they found that i have a Pineal Cyst. And my migraines became constant once my cyst started to grow. It started out measuring 1.2 x 0.7 cm and it is now 10 x 12 cm that is also when my seizers stared and the blackouts got worse.
Not saying that you have a cyst but it is one possibility.
Over the past 27 years i have been on every migraine medication that is out there and none of it has helped me it would ease up my headache the first few times i'd take it then it wouldn't help at all so they'd put me on something else and to this day nothing helps nothing gets rid of my migraine. The migraine shots don't even really help anymore.
keep un informed on how you are doing and i hope they find something that will help your migraine.
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