PLEASE!!!!CAN ANYONE GIVE ME ANSWERS???

[jan2281]

I have have this pretty unusual headache for the past month and a half, its on the right side of my head, there is some pain it shooting or dull most times, but my biggest fear is the pressure that comes along with it..its constant, somtimes i can feel my veins moving in my head...I have had a c scan, mri/mra and nothing has shown up..Im VERY scare with it..in fact i just want to go crazy...i am telling my doctor and she says its anxiety at the e.r they say its nuropothy <sp...Im going crazy, i have not been given any medication....in june I was in a rollerblading accident and hit my head pretty good..but the head aches im experiencing didnt start till the end of october....i have also been have body twitches, I have seen a nuroligist and he says im fine...But I dont feel like it..at all..because this is a constant thing..im 27 years old i have NEVER felt this way before, sometimes the pressure is so bad that me head feels like its going to explode...CAN ANYONE PLEASE HELP ME?????

[KatXO]

I just want you to know , i had a bad head/ brain injury accident 2 years ao and i have similiar symptoms ..my head feels like it wants to blow up and pressure, dizziness, irritable to light and sound , feels also like the pressure of being underwater for a long time, neck is stiff , blurry vision, bad jaw, back probelms, lost my sense of smell, can't hear as good, cognitive probelms.

I suffered a fractured skull and fractured my nasal cavity and orbital bones  from a 500lb metal unit falling on me , that i  was told, i was knocked out  and have probelms with short term memory and very irritable now .

They haven't started treatment at all , in an mri they said , there was a swelling in a suchroid space in my brain and  when i asked the doc of my concern ...he said , The radiologist was looking into too much !

This happened at work and i 'am afraid of the way i feel.
don't listen to any doctor until u get an answer , cause we know what we feel and never felt this way before.

kathy

[jan2281]

my head pressure does better if i lay down on the side of the head that has the pressure,  then there is no pressure just the veins i can feel moving.  did you ever get a leaking feeling like somthing was dripping in you head? did it ever cause body twitches for you? i must be driving you crazy with all the questions :-) but i feel like i am, for once getting some answers about whats wrong with me, im going to see the doc monday...and talk to her about this...thank you so much :-)

[DJ1957]

It amazes me when I read you symptoms and your emotional state for that is exactly how I have felt. Please hang in there because you are not going crazy. Fibromyalgia seems to be the catch all diagnosis and CSF leak symptons falls right in there. The symptons progress further the longer you have the leak. One big question, does the headaches see be worst upon rising and sitting. My headaches were positional because your CSF pressure changes when you lay down. A CSF leak can be either in your spine, cervical or head. Usually if the leak is in the cribaform area she could have drainage or csf actually coming from your nose.

To answer you other question it was two years before my symptons before the headaches started. She thinks that what aggravated was a cough that I had for 3 months...there is quite a bit on the web and I would try to find a neurologist is know about CSF Leaks. I dealt with this one neurologist that had no experience in seeing patients with CSF leak and I have suffered longer because of that and my symptons are more advance.

Please seek out help before this happens..

[jan2281]

thank you very much, i do have another question....did your head pressure start derectly after your head injury? because mine stared a few months after...i do feel like im in a fog..the pressure is actualy worse than the pain.at first the doctor told me i had fibromyalgia but i dont think thats the case, god my head feels so tight, maybe im going crazy...;-)

[DJ1957]

I have been down your same path for over 2 years and finally just a week a go I was able to find a neurologist that listen. After 15 mins she told me that I had a CSF Leak from a car accident that I had previously. I had all the same symptoms plus fatique, brain fog...my focus had gotten terribly. It is all I can do to get to work.

She has started me on Indocin to increase my CSF volume ( it is a gout medicine but she uses it for her CSF Leak patients). After two weeks, if I am feeling better then it is confirmed and she will do a blood patch.

Anyway due to your accident...something important to look at righ away. Believe you me it is worth it and don't be 2 years down the road.

I wish you the best.

[tomsant]

Headache on the right side, shooting type or dull coming on with 'pressure' (?) Can feel veins moving in the head (Is this from the sinuses or nose, or the right ear?)

One would have thought of 'anxiety' or psychogenic headache if it were bilateral (both sides) rather  than one sided.

Since CT and MRI / MRA are normal, relax. (What are you scared of? Scared of the unknown?)

May be it is a neuropathic pain, and one has to find the reasons for the same. You say it is shooting type. From where to where? (Just looking for clues)

You may visit a dental and ENT surgeon, but if there is any problem with vision, see an Eye specialist. If they draw a blank, (ie., no cause found for pain) visit a neuro. The sequence suggested may differ with each doctor :-)

The probabilities change with the age and sex of the patient, and also depend on the basic health. Do you remember any injury (hit, fall, involved in any road traffic accident in the past) that could have jolted your neck or injured your nose? Hope you are not a hypertensive or diabetic.

Hope this helps!

Best,

Thomas Antony