Could MS actually be Lymes..I'll explain

[ewford]

OK, before I get FLAMED for this, I will state that I, like so many sufferers here have/had hall the symptoms of MS, Lupus, CFS, etc.  I was "pidgeonholed" and told that I had MS and my dr wanted me to start on MS medications that were only symptom relievers.  As I researched more and more, I discovered that there has been a EXPONENTIAL EXPLOSION of autoimmune diseases that really took off after the early 90's.  Doctors have no explanation for it.  Why? I asked.

After doing extensive research I started to notice that Gulf War Illness and MS, Lupus, CFS, Fibromyalgia and many AI diseases are exactly alike with overlapping symptoms.  I started interviewing soldiers and spouses that were perfectly fine before entering the service, but now soldier and spouse alike are ill, with their children ill as well. Symptoms range from head to toe ie: Chronic headaches, eye pain, ringing in ears, stiff neck, sore throat, swollen Lymph nodes, joint pain, muscle stiffness, fatigue, shooting or throbbing pain anywhere, sore knees, ankles, bowell issues, heart pallipatations/pain, stomach issues, Women usually have ovarian/uterine issues.  Brain plaques, spinal fissures and a general unwellness feeling. (Am I forgetting anything?)

  The possibility of this being an chronic intracellular bacterial infection is extremely possible considering that it has been proven there were bacterial agents causing illnesses.  Many Gulf War soldiers and their families have Myco and Mico plasmal infections; bacterial and fungal infections that are systemic.  Lymes sufferers not only have these mycoplasmas but also coinfections that are exactly alike MS, Lupus, Fibro, ALS.  Once these bacteria enter the bloodstream, they go wherever your blood goes (everywhere-affecting all organs and tissues, including brain)

  Since everyones immune system is different, would it not be conceiveable that symptoms might vary from patient to patient?  Would it also not be conceivable that a dr would rush you in and out and give you a quick diag so he could see the next patient?  If your Dr ordered a Labcorp/Quest test for lyme disease, did he tell you that the tests are virtually 90% unreliable?  Those tests were designed to look for ONE type of Borrelia bacteria(there are over 200) and ONE type of form this bacteria exists in. Borrelia exist in 3 different forms.  They are pleomorphic-shape shifters.  Mycoplasmal, spirochetal, and cystic forms.  Look at it this way.  I will use an car analagy.  the test looks for a Honda element, but it sees a Accord, or a Civic or a Element depending on when the blood test is taken. And if you are taking any meds at the time of the test, it will be neg.  make sense?  Since this infection weakens your immune function, your immune system will never (rarely) show antibodies to it.  The infection is hidden INSIDE your cells.  This bacteria is truly bizzare but has been proven to exist in all forms.

  Youtube a video of Dr Lida Mattman and her work w/ Lymes bacteria and "stealth pathogens"  She was Harvard trained, PHD, Nobel Prize Nominee in Immunology/Virology and taught for over 35 years.  researchers too cadaver brain samples from Yale and sequenced them for Lyme Borrelia Burgdorferri bacteria.  The cadavers belonged to ALS, Lupus, MS, Sjorgens, hashimotos, etc diaged patients.  75% of the brains tested pos for the Lyme bacteria.


I have more info.  Please ask any questions, but keep the flames to a min.  Thnx

[LisaJF]

I do not doubt there is some validity in your research and statements.  I think you have served your purpose in educating people to question the tests that are done in ruling out Lymes and the possibility of the Bowen Q-Ribb test in conjunction with the Western Blot.  I am sure the ID or Doctor would not poo-poo the idea of any patient bringing this to their attention.  

In fact, perhaps people would feel better if they knew there were several tests that can eliminate the possibility of Lymes.  

Thank you for your time.  

You've served your purpose in your thread.



Lisa

[fortywhat2]

I had written a long "defending myself" message and thought, hummm  nope not going there! I, like Shell am an adult and don't appreciate the way you feel you can question my diagnosis... And just for the record in no way have I been "snide".  I hope you find the answers you are looking for so that you can accept and move forward.

[ewford]

I have met several people that had pos Lymes, bullseye rash, got the 30 day ABX, and were told they are cured.  Now now these  women have RA, AI issues, Hysterectomies, lesions, cancers,etc.  The CDC approved 28 day regime is not enough to clear this infection.  That is a sticking point between the CDC and doctors such as Burrascano and Jemseck that are ACTUALLY treating this disease.

Fortywhat, now you are being snide.  I am not.  Did you get tested for coinfections, or just Lymes?  Bartonella, Babesia, Erlichia, Rickettsetia can also be transmitted.

  As far as family history, look at the information being discussed about bacterial infections being passed placentally or through mothers milk as per Dr Lida Mattman (YALE PHD, Nobel Prize nominee, immunology/Virology professor for 35 yrs)

[fortywhat2]

Hey Alli,
As I said previously, you can have many autoimmune disease... Lyme should have been treated with doxycillian (unless allergic) for a min. of 30 days... as I said I live in an area of high lyme disease and I worked in the medical field so I use to call in meds often.  I hope you've found a good primary care physcian that will refer you out to the necessary Dr's... I could give you a list of great dr's in my area but I'm not familar with your area... word of mouth is usually a good place to start and interview your dr's ask for a "get to know you appt" before you decide on a dr... Good Luck and if I can help shoot me a message!
Debbie
~live as if all your dreams came true~

[sllowe]

Hi Alli,

I'm sorry your question got a little lost in this. Like mentioned by FortyWhat, it's very possible to have both.

To answer your question, I suggest you absolutely re-visit an ID doc. Where Lymes is concerned, it's important to be in the correct care as I'm sure you know.

If you have trouble locating one in IL, hit me up privately, and I'll do some digging for you.

-Shell

[fortywhat2]

Oh and if I forgot to mention... I worked in the medical field for years before having to retired due to cognative issues!  I did my research, we all do, it's a coping factor in the beginning of how do I deal with and accept what is happening.  I think the difference here is most of us kept our research tantrums to ourselves, we've all been.  Good luck in your quest!