Could MS actually be Lymes..I'll explain

[ewford]

OK, before I get FLAMED for this, I will state that I, like so many sufferers here have/had hall the symptoms of MS, Lupus, CFS, etc.  I was "pidgeonholed" and told that I had MS and my dr wanted me to start on MS medications that were only symptom relievers.  As I researched more and more, I discovered that there has been a EXPONENTIAL EXPLOSION of autoimmune diseases that really took off after the early 90's.  Doctors have no explanation for it.  Why? I asked.

After doing extensive research I started to notice that Gulf War Illness and MS, Lupus, CFS, Fibromyalgia and many AI diseases are exactly alike with overlapping symptoms.  I started interviewing soldiers and spouses that were perfectly fine before entering the service, but now soldier and spouse alike are ill, with their children ill as well. Symptoms range from head to toe ie: Chronic headaches, eye pain, ringing in ears, stiff neck, sore throat, swollen Lymph nodes, joint pain, muscle stiffness, fatigue, shooting or throbbing pain anywhere, sore knees, ankles, bowell issues, heart pallipatations/pain, stomach issues, Women usually have ovarian/uterine issues.  Brain plaques, spinal fissures and a general unwellness feeling. (Am I forgetting anything?)

  The possibility of this being an chronic intracellular bacterial infection is extremely possible considering that it has been proven there were bacterial agents causing illnesses.  Many Gulf War soldiers and their families have Myco and Mico plasmal infections; bacterial and fungal infections that are systemic.  Lymes sufferers not only have these mycoplasmas but also coinfections that are exactly alike MS, Lupus, Fibro, ALS.  Once these bacteria enter the bloodstream, they go wherever your blood goes (everywhere-affecting all organs and tissues, including brain)

  Since everyones immune system is different, would it not be conceiveable that symptoms might vary from patient to patient?  Would it also not be conceivable that a dr would rush you in and out and give you a quick diag so he could see the next patient?  If your Dr ordered a Labcorp/Quest test for lyme disease, did he tell you that the tests are virtually 90% unreliable?  Those tests were designed to look for ONE type of Borrelia bacteria(there are over 200) and ONE type of form this bacteria exists in. Borrelia exist in 3 different forms.  They are pleomorphic-shape shifters.  Mycoplasmal, spirochetal, and cystic forms.  Look at it this way.  I will use an car analagy.  the test looks for a Honda element, but it sees a Accord, or a Civic or a Element depending on when the blood test is taken. And if you are taking any meds at the time of the test, it will be neg.  make sense?  Since this infection weakens your immune function, your immune system will never (rarely) show antibodies to it.  The infection is hidden INSIDE your cells.  This bacteria is truly bizzare but has been proven to exist in all forms.

  Youtube a video of Dr Lida Mattman and her work w/ Lymes bacteria and "stealth pathogens"  She was Harvard trained, PHD, Nobel Prize Nominee in Immunology/Virology and taught for over 35 years.  researchers too cadaver brain samples from Yale and sequenced them for Lyme Borrelia Burgdorferri bacteria.  The cadavers belonged to ALS, Lupus, MS, Sjorgens, hashimotos, etc diaged patients.  75% of the brains tested pos for the Lyme bacteria.


I have more info.  Please ask any questions, but keep the flames to a min.  Thnx

[fortywhat2]

My neuro is an MS specialist in Boston, MA... did Lyme tests on spinal fluid and blood draw... my rheumatologist specializes in Lyme disease... all lab test go to specialized lab... I live in an area of MA that Lyme runs rampid...  My primary only does western blots for Lyme and sends to speciality lab in CA Hummmm  guess their diagnosis of neg Lyme is accurate!  I have been tested for lyme more times than I can count.  My MRI shows lesions... my spinal tap shows bands... my memory, processing speed, and word finding are severly diminished... I am positive for Hashimoto's Disease, Fibromyalgia, Osteoarthritis, & PPMS all confirmed by either lab tests or specialists in that field, hummmm  I think I have autoimmune issues.  I have family history of severe RA (mom), graves disease (sister), hypothyroidism (sister and mom) and severe osteoarthritis (mom).  So... I believe my diagnosis and cope with it daily despite your research... Once you learn to accept and cope you begin to live again and that's what's important to me :)
Debbie
~live as if all your dreams came true~
ps... I have PPMS, no meds, so no one is getting rich off me, just saying!

[ewford]

Here are Dr Nicolsons credentials.  They speak for themselves.  I would trust his judgement over any doc in a box that has not researched this.

http://www.medhelp.org/doctor_profiles/show/642304

[ewford]

Here is a related discussion answered by EXPERT Dr Garth Nicolson.  On IBS and MS among other symptoms.

http://www.medhelp.org/posts/Autoimmune-Disorders/Hourly-Migraine-Concern--Ms-related-Incontinence/show/1455290

[ewford]

Yes, the Igenex tests use the Q-Ribb Bowen method.  it is THE most accurate test.  So accurate, that the goverment says the tests must be rigged.  They have submitted double blind samples to check for accuracy.  The Bowen Q -Ribb test has passed every time.

[ewford]

The Western Blot PCR for Lymes looks for the DNA sequence of ONE PARTICULAR TYPE ( caps for emphasis) of Borrelia, not any of the other known species.  It might say inconclusive, I would get further tests done to confirm Borellia, and coinfections which increase the morbidity.   You really also should look into viewing the documentary "Under Our Skin" as it will open your eyes to all the possible manifestations and missdiagnosis going on since doctors don't have relaible tests.  And THEY can NEVER be wrong, right?  Why base your decision on someone who only looks at you as "the next patient", not "how can I get this person well"  My son's Pediatrician said he needed a nebulizer for a dry cough and illness, come to find out he had strep.  Back to the doctor, more money, and this is a very well respected Pediatrician in town.  

  Check out www.  IMMED.  org  and look for autoimmune illnesses and chronic bacterial  intracellular infections.  Dr Garth Nicolson is an expert DR here on Medhelp, and he was the Cheif scientist at the Anderson Cancer Research Facility at Ft Mead.  He had been studying Mycoplasmas and their effect on chronic illnesses.  I am only here to offer suggestions as accepting ones fate when the current evidence seems to point the bacterial/fungal infections causing chronic illnesses.

[Melissa072]

Hi
How were you diagnosed with ms?? Did your mri show lesions??
If you have chronic lyme, maybe you need to go back to a lyme dr, or if you have ms maybe you need to see a neuro...