Could MS actually be Lymes..I'll explain

[ewford]

OK, before I get FLAMED for this, I will state that I, like so many sufferers here have/had hall the symptoms of MS, Lupus, CFS, etc.  I was "pidgeonholed" and told that I had MS and my dr wanted me to start on MS medications that were only symptom relievers.  As I researched more and more, I discovered that there has been a EXPONENTIAL EXPLOSION of autoimmune diseases that really took off after the early 90's.  Doctors have no explanation for it.  Why? I asked.

After doing extensive research I started to notice that Gulf War Illness and MS, Lupus, CFS, Fibromyalgia and many AI diseases are exactly alike with overlapping symptoms.  I started interviewing soldiers and spouses that were perfectly fine before entering the service, but now soldier and spouse alike are ill, with their children ill as well. Symptoms range from head to toe ie: Chronic headaches, eye pain, ringing in ears, stiff neck, sore throat, swollen Lymph nodes, joint pain, muscle stiffness, fatigue, shooting or throbbing pain anywhere, sore knees, ankles, bowell issues, heart pallipatations/pain, stomach issues, Women usually have ovarian/uterine issues.  Brain plaques, spinal fissures and a general unwellness feeling. (Am I forgetting anything?)

  The possibility of this being an chronic intracellular bacterial infection is extremely possible considering that it has been proven there were bacterial agents causing illnesses.  Many Gulf War soldiers and their families have Myco and Mico plasmal infections; bacterial and fungal infections that are systemic.  Lymes sufferers not only have these mycoplasmas but also coinfections that are exactly alike MS, Lupus, Fibro, ALS.  Once these bacteria enter the bloodstream, they go wherever your blood goes (everywhere-affecting all organs and tissues, including brain)

  Since everyones immune system is different, would it not be conceiveable that symptoms might vary from patient to patient?  Would it also not be conceivable that a dr would rush you in and out and give you a quick diag so he could see the next patient?  If your Dr ordered a Labcorp/Quest test for lyme disease, did he tell you that the tests are virtually 90% unreliable?  Those tests were designed to look for ONE type of Borrelia bacteria(there are over 200) and ONE type of form this bacteria exists in. Borrelia exist in 3 different forms.  They are pleomorphic-shape shifters.  Mycoplasmal, spirochetal, and cystic forms.  Look at it this way.  I will use an car analagy.  the test looks for a Honda element, but it sees a Accord, or a Civic or a Element depending on when the blood test is taken. And if you are taking any meds at the time of the test, it will be neg.  make sense?  Since this infection weakens your immune function, your immune system will never (rarely) show antibodies to it.  The infection is hidden INSIDE your cells.  This bacteria is truly bizzare but has been proven to exist in all forms.

  Youtube a video of Dr Lida Mattman and her work w/ Lymes bacteria and "stealth pathogens"  She was Harvard trained, PHD, Nobel Prize Nominee in Immunology/Virology and taught for over 35 years.  researchers too cadaver brain samples from Yale and sequenced them for Lyme Borrelia Burgdorferri bacteria.  The cadavers belonged to ALS, Lupus, MS, Sjorgens, hashimotos, etc diaged patients.  75% of the brains tested pos for the Lyme bacteria.


I have more info.  Please ask any questions, but keep the flames to a min.  Thnx

[alli1986]

I was diagnosed with MS at the age of 23. I had a lumbar puncture which said I was negative for lymes disease, but had blood work that came back positive. My MS doctor said I had chronic lymes so I went to a infectious disease doctor who did a western blot test which he said was inconclusive. I had a tick bite 4 years prior to all this and never had the "bullseye" but had a red swollen mark that would itch, and was bothersome for 2 years. I was in Florida at the time and nobody seemed to know what to do for me or really understood lymes. I ended up pregnant shortly after and put things on hold, but she is now 8 weeks old and I am in Illinois now, and trying to look into where to go from here. I would appreciate any words of wisdom.

[Melissa072]

I have several ms symptons, and my very young daughter does too.
All mri's have been neg and L.P. was neg.
So I found  adr in australia who says lyme is here, and got tested with the cd57 and it come back at 39 indicating chronic lyme, so I then got tested at igenex overseas, and today my dr said yes they are also postivie, but I will speak to him in the morning for more details and numbers etc.
Can I rely on these to tests saying that I'm postitive for lyme, or should I still be suspecting ms???????????????
All of these posts have really confused me

[ewford]

  If you read my posting, it states that the current Labcorp test and the criteria were set up purely as a monitoring  in the form found at Old Lyme Conneticutt.  it looks for only ONE type of Borrellia, there are over 200 in the US, also it looks for the antibodies to the spirochetal form only, not the cystic, or the mycoplasmal state.  THAT is the crux of the whole discussion.  The test is flawed and the doctors keep ordering it because they don't know any better.  ANY doctor who treats Lyme on a reg basis knows the tests are unreliable, but your hometown doc dosent know that probably.  Mine didn't.   Go ahead and laugh at me, it's your choice.  I'm just here to offer a plausable and very real possibility of some if not many being missdiagnosed with an AI due to some doctors arrogance and ignorance.

And yes, you Lyme titres will be negligible with a test that is looking for the wrong bacteria.

[Pfurs]

Sorry. Just rered my post and my daughter is right, I don't come across as warm and fuzzy.

Thanks for the information. I can say that one thing I have learned from being dx with a chronic illness is to keep a positive attitude. Most days are better than others and I take it one day at a time.

Take care, Tracey.

[Pfurs]

My husband has been hunting in tick infested woods in the up since he was a child and is healthy. While I on the other hand have never enjoyed  the outdoors and have ms. They did run a lymes test and I remember joking with the dr that I would actually have to go outside in order to get lymes disease. My mother has lupus and her sister, my aunt , has ms. In fact on my mom's side of the family there is a lot of auto immune issues, especially the women.   The one thing we all have in commom is that we're related. We all live in different states and there's no military connection.

I would be more than willing to request another lymes test and mention what you have said but I don't think I would ever be comfortable giving up my copaxon if it did come back as lymes disease.  

  

[Friendlily]

Great post and sounds like you did your research! I think theres a lot of environmental things that have caused an "outbreak" of autoimmune disorders but i think the main one is all the fake sugars that are out especially aspartame...stuff thats in diet sodas/gum/foods/etc. look up aspartame poisening and it sounds a lot like MS