To those with MS

[Quixotic1]

I don't usually do this, because I read most of the posts and can usually answer my questions.  But, I need to know if any of you with definite MS feel the way I often do.

I feel carppy.  Therre is no other way to say it.  I feel crummy, almost all of the time.  My head roars, I feel weak, so fatigued that a trip to the store has me in bed.  Along with it I'm irritable and impatient.  I'm running to the BR with bladder cramps and everything down under feels strained and raw and achey (no UTI).  It's  not nausea, or sweating, or anything that I can relate to a specific illness, like I don't feel like the flu, or a cold or alleriges, or GERD.  In fact, eating is one of my few pleasures.  I have felt this way for the last few months.

My brain is working okay.

Other than the urinary, I have little pain, except for what breaks through with the TN - lots of little jaw pains recently and I see the dentist Monday, but no teeth are tender, gums are good.  My gait has slowed and I'm tripping alot and it just makes me mad.  Well, I am having really bad eye pain in both eyes intermittently for the last couple months and I am staying in a humidified room and using moisturizeing drops all the time and it is better today.

So, I hate going to the doctor and saying "I feel crummy" and not having anything to tell him specifically about why.

Do any of you just feel lousy?

Is it just a bad attitude?

Quix

[shermay]

Can I just post one word, well apart from what I have just said :))

YES!!!!

Hang on, just had another idea, maybe it's because your tired??  And since you are a Dr., you know how fatigue compounds MS.

Yes I feel lousy with the pain, fatigue, hardly able to walk  but I just push past it.

I may have MS, but it doesn't have ME :)))

Debs xxxxxxxxxxxxxxxxxxxx

[amers789]

Dear Quix,
I do not have an answer as to why, all I know is that you are an amazing and generous lady who has helped so many of us on this forum. I am so sorry you are having to endure so much. I can only pray for you to have peace admist your "personal storm" to reach out to others, friends , family, and stay involved. It sounds like a lot of things could be causing this since you have so much going on. Hang in there...you are lifted up..God does care...you are not alone
Amy

[PastorDan]

We care about U2, Alex.  And Wobbles, I am happy to hear that you're hanging onto the wobbly teeth, at least so far.  That's a choice that's hard to undo.

My dear Dr. Quizzles, you and everyone on this thread -- everyone in this forum, really -- have been lifted before the throne of the almighty Creator of heaven and earth, with a request for relief as well as clarity.  I don'tknow how He'll answer, but I know He will.

Shalom.

[HVAC]

I feel generally lousy for one reason or another about every day. I know there is nothing the Doctors can do. Also there are specialist and tests I just do not want to deal with so I with hold information from the doctors.

The thing that helps the most is I buddied up with someone who  was diagnosed and started the DMD at the same time. That has been a God Send.

I also have one Doctor I call once a week for five minutes. Just being able to say I am in pain helps even if it is to his answering machine. He will call me back if I need him. He asks if he can help I usually say no but thank you.

I wrote on my health care blog this week about how much healing there is from a doctor who does not have all the answers but cares.

For me I can stand anything if I know people care.

My message to you Quix. is I care that you are in pain and feel crummy.

Alex

[daisy.girl]

you said 'my head roars'.
so does mine most of the time....I think this leads to the overall crappy feeling. I think if I could only think clear, I wouldn't feel so bad.

Do headaches go along with MS?

I too can only go out for and hour or so....and then just need to come home and rest. I have 4 kids still at home, and planning a wedding for my oldest daughter.

Depression can also cause overall lousy feeling with many aches and pains....I know you know all this, just throwing it out here.

Hope you feel better soon!
Blessings

[Karen99]

Yes, I feel lousy and I can't figure out why.  

I can't even muster up a bad attitude.

Perhaps it's overdue to go back on Copaxone.  For both of us.