Ask for an MRI

[Taraweb]

Your story sounds too much like my own. For five years or so, after spine surgery, I had intense migraines just above my right temporal lobe. They would last ask long as a week. Often I'd be told to go to the ER to get IV meds to stop the pain, which one weekend, didn't work.  They did a scan and found a tumor, and that night I had brain surgery to remove what turned out to be a stage 4 Glioblstoms zzzzzzzzzzmultforme tumor. Told I had 2 to 5 years to live.

I keep wondering why they let me go that long with such severe pain without an MRI.  Would it have made a difference if we found it when it was smaller?

I've now been through radiation and temodar, consults with Dr. Prados at UCSF.  The tumor was still growing at last month's MRI. Now I'm on IV chemo, Avastin and cpt 11.  Next MRI is in a week and we''ll see.

I'm so scared. I'm married, no kids, love my husband and can't bear having to say goodbye to him and all my beloved friends.

I don't know how to run my house any more. No interest in cooking, I get dizzy if I stand too long, I'm a therapist but am home, off work on long term disability, and the Docs are trying to help me face the reality that I will likely be dead in six months.  For a long time I fought it, would not accept I was going to die, want to be one of the very few long term survivors.  I'm sooo scared. I'm an intelligent, 45 year old woman, with enouth experience to know when I'm depressed and in denial.  I have a good therapist, my husband is also exhausted by grief, but does his best to take care of me.  I spent a few weeks at a ****** therapy center in Hawaii and felt a lot better after.But ot did not sto[p the tumpr. I've tried a ton of alternative things, and am willing to try more. I just don't feel I'm ready to die.
Luckily I have my faith. Prayer and meditation, and love are helping.
I was a member of a forum here for years that got shut down, under the monicker 'witchywoman'.  Anyone here remember me?

love,
Tara


This discussion is related to What could this be?.

[Taraweb]

I posted a LOT in 1998 or so, under the Addiction forum. During my back surgery, I got into trouble with taking too much vicodin,and the folks on the forum here held my cyber hand and helped me get back on my feet. I'm recovered from that part of my problem now, but do need to take pain medication to manage the large and overwhelming pain of brain surgery and cancer.

It was and probably still is a great forum. I loved my name, but don't remember the password I used it with so don't know if I can get it back. Where there is a will there is  a way and I will probably keep trying.  I had a lot of great friends from these forums, many of whom I still email close to daily.

I was on yeast free diet when I was 22, for about a year (I'm 45 now) and it did help with the headaches and yeast infections and fatigue I had all the time back then. The diet helped.

Oddly I saw a medical intuitive during the time of my back surgery who forsaw that if I allowed the stress filled life I had to continue, I was at risk of developing  fatal illness.

I do know there is more to ill ness than we know, and hope deeply that the power of prayer, Western Medecine, and all the Alternative medicine I am being treated with as well keeps me alive and happy for many years to come.

love to all,
Tara

[suzi-q]

I am so sorry to hear what is happening.  I will keep you in my prayers.  You have a great attitude and I feel that is half the battle.  Many people have beat the odds before and you will be next!  

I "think" I remember you...when did you used to sign on?  I have been around since 2006.  Were you ever on the anxiety site?  I practically lived (and still live!) there.

I will pray for you and your family at this difficult time.  May God grant you peace, strength and renewed health.

[Heather305]

Hi Tara,
I'm so sorry for the nightmare you are going through.  You are a pretty strong woman, hang in there!  I know it's a stretch, but have you tried a yeast free diet?  I saw a medical intuitive for a while who put people on this diet for a variety of reasons.  Anyway, I've seen people come out of her office healed of a brain tumor and cancer.  I wouldn't have believed it if I didn't see it for myself.  The medical intuitive is Sylvia Flesner if you are interested.  Best of luck to you!  I keep you in my prayers.  Stay strong!

Heather