Back from my PMP appt.

[jamlws]

It went ok I guess, I really need some input from you guys. I really don't know what to do or think.
He came in and asked me how I was doing, I said not very well and left it at that (sandee lol) He said what meds are you on I said none. He said how long you been off of them I said 4 weeks. He asked me why I didn't want the morphine that the back up dr wanted to give me I told him I am scared to be on hard stuff since I will be living with this pain for maybe the rest of my life, he said why cause of what happen the last time you was on it? I said yes but Im afraid I will get use to the meds if I start out with the hard stuff. He said "I am the dr I will treat you the way I feel is best and if I do put you on the hard stuff as you call it and you need to get off of it I will slowly take you off of it so you won't have any problems" I said I am willing to do anything that you want me to do. he said ok I am starting you off on the hard stuff, I am putting you on methadone, you take 2 a day for the first week and then 3 day day after that. I was like crap but I didn't say anything. I will do anything he tells me to I will try it. I said can I please get a nerve block??? I asked him 2 times first time he ignored me the 2nd time he said "Im not sure about the nerve block right now, I don't think it is a good idea but I will talk to the dr that does them and see what he thinks but right now no you can't get one, I don't want this pain worse and your in alot of pain right now"
Ok so he tells me to try the methadone for a week and if the side effects are to bad to call them but i won't do that. He also said he will see me again in 4 weeks. hum ok I got my appt that the guy made and I go back on Aug 9th that is what karen said only 2 1/2 weeks so I will stay on it til I see him again.
He also told me if I don't do will with the methadone that he will start the morphine and I really dont want to be on that anymore then the methadone. Any thought from you guys would be great. I am let down from the appt cause I don't want to be on this hard stuff at all but I have to stay with this dr and I have no choice but to do what he says.
Thanks
Jamie

[mellie4]

Jamie, you have really been through the mill!!  I hope they can resolve things on Friday.  It's a shame if you turn out allergic to the methadone. But if you are, I'm sure he'll give you some other long-acting medication.  My daughter has a lot of sensitivities to things and is allergic to penicillin, amoxicillin and bactrim.  Now they hesitate to give her a new antibiotic.  She also has a lot of sensitivities to makeup, though not any food.  I'm anxious since she's going to college next month. She also has asthma.  She developed that at around age 6 from black mold.  (Which is one of my theories about my fibromyalgia since the timeline fits.  Hopefully she'll keep her inhaler in a place she can find it if she needs it.

Two Yorkies?  Lucky you. I have one and I love him to pieces.  He's six months old now.  He's recently found his voice and barks at everyone coming in the door.  For new people coming in he can bark for hours.  And he's not so great on potty training either but hopefully he'll get it eventually. And he's bigger Yorkie.  Do you ever go on Yorkietalk.com?  

Good luck on Friday.

[dontundertand]

I'm so sorry Jamie! I can relate to throwing up the meds. That seems to be a big problem for me. My stomach is very sensitive to medications. To anything some days like today. Know that you are not alone. When the methadone made me sick to my stomach and I couldn't keep it down I googled it and I couldn't found that not many people had that problem. It stnks to be the rare exception, huh. I was really hoping that since you were getting the rash that your system was getting enough to at least give you some relief. I'm sorry to hear that is not the case.
I hope you get some rest tonight

[jamlws]

Thanks Sandee.
I took the promethazine and ate dinner waited and took the methadone and then it came back up. I only took half a pill this time but no different I still puked it back up. I am starting to itch on my face and arms again. So it don't matter if I take a whole pill or a half pill I still get sick from it. I guess I will try again tonight and see what happens. I am afraid to take anything else OTC cause of the methadone. I called the pharmany I told them about the promethazine and they said to keep taking it but I really shouldn't be taking the methadone at all since I am breaking out.
The nurse that lives beside me she was outside playing with her daughter and she kicked her ball over our fence and they came over to see if we could get it. I was standing outside talking to her and she asked me if I was ok cause I didn't look good and asked me why I keep itching. she agrees for me not to take it anymore. I will keep trying but I don't see me getting use to it to the point I stop breaking out. If I keep this up my whole body is going to be marked up cause of the itching by time i see the dr on Friday.
thanks alot
Jamie

[sandee1818]

I meant to post this yesterday but it slipped my mind. Someone had referred tagamet as a treatment and I wanted to make sure that you all know that this drug is dangerous to take with some medications.
I know I can not take it with Oxycontin or oxycodone at all.
It is very important to always check with your pharmacist before taking any over the counter medicine with prescribed ones.

[jamlws]

I forgot to add that he wanted me to wait til Aug 8th to see him again, i reminded the nurse that my pain is in my mouth and face and i am having issues with eating so she said well you can't wait til the 8th I will get you in friday. So i thanked her and asked if she had any ideas on how to control the pain so I can eat and she said i am sorry but I don't.
Jamie

[jamlws]

I made the appt for after work so I won't miss, I can't miss anymore.
He wants me to try to take 1/2 a pill and see how that goes. So I will try it. I just hate getting the rash from it. But whatever he wants me to do I will. Atleast I am trying that is all that matters.
I didn't sleep well at all last night like always the pain keeps me up and on top of that being sick and itching didn't help matters at all.
I have to cook dinner for my son so I will eat then take half of the pill and hope it stays down. im at home alone with my son so it is so hard to take care of him when I get sick and it really scares him. But my hubby has to work tonight at his 2nd job.
Tuck,
Your son sounds like mine, he is allergic to everything. I have to keep a EPI pen with us at all times. It all started out as food allergies and then went to outisde allergies as well. He is severly allergic to cats and my daughter is so mad I won't get her one plus he has ashtma, he can't even go into a house that has cats in it, he is also allergic to dogs, we wanted dogs so bad but couldnt get any so when I looked into getting dogs I saw that yorkies have human hair so we got 2 of them and he had some problems at first but then was fine and now he has no problems with them but he can't be around other kinds. The breeder told us to try it and if he has problems to bring them back but we would only get half our money back, and they wasn't cheap at all.
Thanks everyone I will try half a pill and see what happens
Jamie

[Totie]

Please let your work know if you will be missing any work. Remember to give them heads up on ANY appt that has been scheduled for you.

[RunningMom]

This is how our pain management clinic is.  They do not ever prescribe over the phone.  A med change always requires an appointment.  It's their policy, they don't want you to suffer hon.  I'm so glad they are able to get you in so quickly.  I usually have to wait two weeks before getting a new appoinment and there are no replacement meds.  I still have two weeks before my next appointment and I've been in unbearable pain for weeks.  I hate it too and it makes time go by so slowly.

[dontundertand]

Jamie

I am so sorry! I was really hoping it was going to help! Did you experience any relief at all last night? I really hope you al least got to experience some sort of relief for however shortlived it was.

Can I ask you a HUGE favor? A lot of the time when I come on here I do it on my iphone, and will be doing so again after work throughout the evening and it's really hard scrolling all the way down here, can you start another post? I'm sorry to ask but it would make it a lot easier for me

[Tuckamore]

It is understandable that he would want to see you before he prescribed anything.

Be sure to take your photos with you on Friday. It will answer at lot of questions for your physician.

My youngest son has multiple allergies and had asthma as a baby and young child. They could not test him with complete accuracy until he was four, although I assume that may have changed. Anyway I was very cautious to avoid the things that most ppl are allergic too. He wanted a kitty and I refused thinking surely he was allergic to cats.  Instead I got him a puppy. Yep, you guessed it. He is allergic to dogs. He had no reaction what-so-ever to cat dander!

You just never know!

~Tuck

[namnam46]

What did he say about continuing the meds until then?

[JadedSweetheart]

I really hate this for you!!!!!!  It really pisses me off actually.  Do you have any phenergen or anything to take for the throwing up?  Did he say whether or not you should take it anymore?  I heard in the pregnancy forum that taking half a Unisom tablet helps morning sickness.  I know that's not your exact problem (or surpise it is?, lol j/k) but it may help.  Also they recommend eating small meals more frequently so you don't get really hungry before you eat again.
I'm really sorry you're going through this.

[jamlws]

The dr called back, they don't want to change meds til he sees me so they made me a appt on Friday. So I will suffer even longer, I really hate this.
Thanks
Jamie

[JadedSweetheart]

I had to turn in the endocet they gave me too.  My husband was like "did they give you a refund?" and I was like "No, they have it posted that they don't", so he was a little annoyed that we payed over $100 for a medicine I couldn't use, but I was just happy to have something else.
Flower-  I haven't tested his allergies, (although since you mention it I would call it sensitivities) to things, he knows not to scratch his bug bites (if he ever gets any) because that's what causes them to swell the most and he's very careful about everything else.  Really I am very blessed.  My kids rarely get sick beyond a cold (like in 5 years) and they are both very germ-concious.  My son is the cough-police for my daughter.  If she doesn't cover her mouth he throws a fit.  He hasn't had amoxicillian since he developed a rash around his mouth and on his chest and arms when he took it as a baby.  He also had strawberries that day, though too and he tends to avoid raw strawberries, so we didn't know if that was it, either.  In general if my kids have an aversion to a certain food I only make them try it, or if they have tried it (like my daughter doesn't eat cheese), I try to allow it and make adjustments for it because I believe the body knows and craves what it needs and has aversions to what it doesn't.

[jamlws]

It isn't as bad but man it still itchs I tried to take another picture but it don't come out on my phone. My legs is what is bugging me know. They started itching last night. I was up til 3am sicker then a dog and itching, my husband came in the bathroom and wanted to take me to the ER and I told him no I won't go there. Just another reason for them to look down on me, I am sure they would find a good reason.
With this PMP dr I though you could only get your meds at once place so when I went to get the methadone they didnt' have any in stock so I called the PMP office and asked if I could go somewhere else and they said yes you can get them anywhere you want, I said oh I thought I could only use one she said no we want the one you use so we can call stuff in if you need anything. So I got it filled at a different place. But the phone number they have on file is the one I use. I guess they do that cause people come from far places to see them. It takes me about a hour to get there.
Thanks alot
Jamie

[flower12345]

I understand Jamie. That's a good idea. How is your rash?

Flower

[jamlws]

Ok I just don't like having it in my house. If they tell me not to take it anymore I will ask them what to do with it and if they don't want it I will take it to where I got it.
Thanks still waiting to hear something
Jamie

[flower12345]

I'm glad they told you not to take it. I hope that he finds something that works for you.

Yeah, I would return the unused medication to your PM doctor. I think that would be better than taking it to the pharmacy, because then the doctor could put it in your chart. Well, I guess either way it could go in your chart, but personally I would take it to my PM.

[mummy3too]

When I have switched medications, I also have to return my unused meds to my PM doctor...

Mum

[jamlws]

I called and told them about the rash and the vomiting. She said she is going to call the dr asap and let him know and asked what pharmacy I use. Maybe they can give me something stronger for the rash? I asked her if I should take my morning dose and she said no not to take it at all so I am not. I also asked my pharmacy if my dr tells me not to take the methadone anymore if they can take it back and get rid of it, they said it is a good idea and they do it for pain meds but keeps no record of it but they can call the dr and tell them how many I turned in but she said most of the time the drs want it. I got 83 of them yesterday and I have 81 left. I did remind them that I couldn't take them before cause they make me sick.
I will wait and see what they say.
Thanks
Jamie

[mummy3too]

Jamie,

No one can help an allergic reaction. Don't even fret over it happening. I recently had an allergic reaction to a medication I had taken previously at least 4 other times without incident. The last time, however, my lip swelled up and had tingling in my mouth. It can happen to anyone.

Your doctor will not doubt you at all. Let us know how it goes. Hopefully he can prescribe something quickly so that you can finally get some relief.

Mum

[namnam46]

Jamie,
You need to remind the Dr. aboaut the reaction that you had previously to taking the Methadone. He does have a lot of patients and you are new he might need to be reminded of what happened previously!!

Good Luck, Sweetie....Mama Sherry

[jamlws]

Im still itching. I was up til 3am puking and itchig. I called the pharmacy this morning and they told me not to take another dose and call the dr. So I am getting ready to do that. I still have the pictures on my phone and it is dated when I took them. When I was shaving this morning it felt good which is odd so when I got out I looked and it is on my legs too.
I really hope no one doults me, I really really want this to work and if the dr happens to say to keep taking it then I will. I only want to feel better. with me puking it has made my pain even worse. I don't think i got enough in my system for it to help with the pain.
I feel like total crap right now
Thanks
Jamie

[Tuckamore]

Hi Jamie,

I was going to comment on the employer notification until I saw the photo's of your rash. Now I think your rash is the most urgent issues. IF this did not begin until after you took the methadone DO NOT take another tablet until you have consulted a physician or medical care provider. Hold on to those photos. Are they date and time stamped?

I have huge allergies to most ATBs and some narcotics. An allergic reaction general appears as a hive-like rash. I cannot tell if your rash is hive-like but it most certainly is a rash. You must feel like, What next??  

A heat rash is usually fine and more prominent in the warm areas of your body. It should not include your arms. I know this is late but if you have any trouble swallowing, breathing or if you notice swelling around your face area you must go to ER.

Regarding notification of your company, read your handbook. I was a Corporate Director of HR over 5 businesses until two years ago. My husband is a VP of HR for a large multi-site International Company. Handbooks, Policy Manuals or whatever your company may call them is your rule book. If it states that you must report any prescription use of a controlled substance to your HR Department that is what you must do. But remember it is none of your co-workers business what you are taking. You are under no obligation to inform them (co-workers) of your medical condition or medications. In fact the less they know probably the better.

Your Human Resource Department is under strict laws to keep any medical information that you provide them confidential. Even they are bound by HIPPA when it comes to medical information. So read that handbook and follow it. In my companies you were able to work while taking a prescription narcotic is several positions. However the HR department determined what those positions included based on job descriptions/duties.  So again read what your handbook has to say regarding prescription narcotics. In all instances the employee was required to inform an HR Representative. But policies differ from company to company.

How's the rash this morning?

~Tuck