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What's your story??????? Are you scared, too?
Is it just me or do some of the posts end up scaring you? Please, I am not asking people to stop posting their experiences with their pain managment doctors.They are all very helpful!!!!!
... but sometimes I read them and think of how awful the stories are. I don't know what I would do if my pain doctor released me! I fear now that I would never get another doctor to take me as a patient if it did happen.
One time I had to reschedule an appointment the office sectretary had made for me while I was still in with the Doctor in his office. I rescheduled it right at the front desk before I left since I couldn't make the apointment on the day she scheduled.
Well, as luck would have it, I then had to reschedule that appointment for 2 days later. I then got a call from the office telling me because I had rescheduled 2 appointments, there was a problem. I explained what had happened and had to listen to the office secretary tell me how the doctor might release me because I had violated a part of the contract my rescheduling multiple times. The fact that I had rescheduled the first time because she had scheduled me without even asking me if the day was ok, was not their problem.
She told me she would have to talk to the doctor to see if he would continue to see me. I tell you... those 30 minutes were the longest! She finally called back and said he would see me again but that I could not reschedule another appointment with them.
It's experiences like this and stories like those that other's have posted that make me afraid of my doctor and his staff. I am at their mercy.
I know people have said, as long as you don't violate the contract you will be fine...
But that's not what the stories are saying....false negative urine tests, secretaries making appointments without your knowledge, miss-counts at the pharmacy... it all scares me.
I feel like I am going to the see the soup nazi (from seinfeld) every time I go! Step to the side...don't say a word,.... don't look at him the wrong way....(just a little humor for such a scary topic..)
... but sometimes I read them and think of how awful the stories are. I don't know what I would do if my pain doctor released me! I fear now that I would never get another doctor to take me as a patient if it did happen.
One time I had to reschedule an appointment the office sectretary had made for me while I was still in with the Doctor in his office. I rescheduled it right at the front desk before I left since I couldn't make the apointment on the day she scheduled.
Well, as luck would have it, I then had to reschedule that appointment for 2 days later. I then got a call from the office telling me because I had rescheduled 2 appointments, there was a problem. I explained what had happened and had to listen to the office secretary tell me how the doctor might release me because I had violated a part of the contract my rescheduling multiple times. The fact that I had rescheduled the first time because she had scheduled me without even asking me if the day was ok, was not their problem.
She told me she would have to talk to the doctor to see if he would continue to see me. I tell you... those 30 minutes were the longest! She finally called back and said he would see me again but that I could not reschedule another appointment with them.
It's experiences like this and stories like those that other's have posted that make me afraid of my doctor and his staff. I am at their mercy.
I know people have said, as long as you don't violate the contract you will be fine...
But that's not what the stories are saying....false negative urine tests, secretaries making appointments without your knowledge, miss-counts at the pharmacy... it all scares me.
I feel like I am going to the see the soup nazi (from seinfeld) every time I go! Step to the side...don't say a word,.... don't look at him the wrong way....(just a little humor for such a scary topic..)
I'm sure glad to hear that I am not the only one with these fears. I too follow the contract to a T. I am terrified of being dropped by my PMP. I have recently switched PMP's because I felt that the relationship that I had with them was exhausted. I was being passed from doctor to doctor and most of the time only got to see the nurse practitioner. So, at the advise of a surgeon that I went to see, began seeing another doctor. I really like him and he totally understands me. I think now I am overly open with him about my pain and what meds I take because I am afraid to get dropped. I recently called him because I started taking a new vitamin and what him to be aware of it. LOL! Anyway, like I said, glad I'm not alone in ALL of these fears.
Yes dear, we are all scared. But isn't life frightening? What choices do we have? I have several thoughts.
First remember that you are hearing the horror stories. There are many ppl that go to PMP for years and never have a major issue. In my state it is our PCP that act as our PMP. I am told that is because we are so rural. I do not have one horror story to tell you about my PMP again who is actually my PCP. This wonderful woman has never disbelieved me. When other physicians dismissed my pain for years she did not and found the diagnosis in just a week.
Recently when I had an acute pain problem and was hospitalized all my tests came back "normal." One of my RNs questioned my need for IV narcotics. She even laughed at me...but that's another story. Anyway my PCP came to my side and held my hand and cried with me. She said, "Don't worry. We'll get to the bottom of this." And indeed she did. She never gave up on me, she never has. I could fill pages recounting her dedication and belief in me. I am certain that she is an angel.
What if I lose her? I have a back up. Her former partner at the clinic where she first practiced. I have seen him several times and yes he is almost as great as she is. I have not seen one of her new partners but I plan to. I want to cover all my bases. I urge all our members to have a back-up physician....so you are never left in a lurch if something should happen with your current prescribing physician.
We must all be pro-active and involved in our health care and pain management needs. We are our own best advocate. Too many of us forget that we pay these physicians. They are service providers and they work for us. Some of their God attitudes just frost me. Stay away from those types of physicians and don't be intimidated by them. If you are intimidated by your physician you are with the wrong one.
So please don't let these posts frighten you, instead use them as a learning tool.There is a wealth of knowlege in the members of this community, use it. That's what we are all here for, to learn from one another and support one another. Together we will be and are strong.
Take Care our Friend in Pain,
~Tuck
First remember that you are hearing the horror stories. There are many ppl that go to PMP for years and never have a major issue. In my state it is our PCP that act as our PMP. I am told that is because we are so rural. I do not have one horror story to tell you about my PMP again who is actually my PCP. This wonderful woman has never disbelieved me. When other physicians dismissed my pain for years she did not and found the diagnosis in just a week.
Recently when I had an acute pain problem and was hospitalized all my tests came back "normal." One of my RNs questioned my need for IV narcotics. She even laughed at me...but that's another story. Anyway my PCP came to my side and held my hand and cried with me. She said, "Don't worry. We'll get to the bottom of this." And indeed she did. She never gave up on me, she never has. I could fill pages recounting her dedication and belief in me. I am certain that she is an angel.
What if I lose her? I have a back up. Her former partner at the clinic where she first practiced. I have seen him several times and yes he is almost as great as she is. I have not seen one of her new partners but I plan to. I want to cover all my bases. I urge all our members to have a back-up physician....so you are never left in a lurch if something should happen with your current prescribing physician.
We must all be pro-active and involved in our health care and pain management needs. We are our own best advocate. Too many of us forget that we pay these physicians. They are service providers and they work for us. Some of their God attitudes just frost me. Stay away from those types of physicians and don't be intimidated by them. If you are intimidated by your physician you are with the wrong one.
So please don't let these posts frighten you, instead use them as a learning tool.There is a wealth of knowlege in the members of this community, use it. That's what we are all here for, to learn from one another and support one another. Together we will be and are strong.
Take Care our Friend in Pain,
~Tuck
I think my biggest fear is taking the UA tests. Not because I don't do what I'm told (because I do EXACTLY what I'm supposed to do about EVERYTHING) but because of the false positive and false negatives that you hear about. I've even talked to my PM Dr. about this. He said that I don't have to take the UA test that if I want to I can take the Blood Test so that makes me feel much better. Unfortunately, most PM Patients don't have that option from what I've heard on here. So I feel very blessed to have my PM Dr.
However, just like everyone else, I don't know what I would ever do if I lost my PM Dr. I know that I wouldn't be able to get around at all. As it is there are times that I have to use my walker. I ALWAYS have to use a cane. I've been doing that since 1998.
Of course, I had just the opposite last month in May with my Percocets. Instead of 45 10/325, I was given 145 10/325's and had to call and let them know that they had given me the wrong amount and also called my PM Doctor to let him know what was going on.
Jamie, you will get treated before you know it. Just hang in there. It's your turn to get the good treatment that some of us have been getting. You deserve it and it will come, I promise!!!
Sherry
However, just like everyone else, I don't know what I would ever do if I lost my PM Dr. I know that I wouldn't be able to get around at all. As it is there are times that I have to use my walker. I ALWAYS have to use a cane. I've been doing that since 1998.
Of course, I had just the opposite last month in May with my Percocets. Instead of 45 10/325, I was given 145 10/325's and had to call and let them know that they had given me the wrong amount and also called my PM Doctor to let him know what was going on.
Jamie, you will get treated before you know it. Just hang in there. It's your turn to get the good treatment that some of us have been getting. You deserve it and it will come, I promise!!!
Sherry
My biggest fear is not being treated again. I was just told by a PM dr that I was to young for treatment, it was all in my head, to go to a dentist and a oral surgern. That appt made me feel so bad.
The pain dr I went to before and then went on vacation, he was very very kind and I am hoping he will start my treatment when he gets back from his 6 week vacatoin. i dont' see him til July 26th.
Everytime I call for a refill for my PCP my heart hurts cause I know she didn't cause this problem but I have no one else to treat me right now so I have no choice and in order to get on with my life and control just alittle bit of pain I have to be on meds.
I don't understand how these doctors are suppose to treat your pain so you can live your life and then put you thru so much stress. I don't get it and I guess I never will. I just hope and pray I will get treatment very soon.
Jamie
The pain dr I went to before and then went on vacation, he was very very kind and I am hoping he will start my treatment when he gets back from his 6 week vacatoin. i dont' see him til July 26th.
Everytime I call for a refill for my PCP my heart hurts cause I know she didn't cause this problem but I have no one else to treat me right now so I have no choice and in order to get on with my life and control just alittle bit of pain I have to be on meds.
I don't understand how these doctors are suppose to treat your pain so you can live your life and then put you thru so much stress. I don't get it and I guess I never will. I just hope and pray I will get treatment very soon.
Jamie
Thankfully I have never had a miss-count with the pharmacy... but I have heard stories from others who have...
Can you imagine? No one has this fear that their PCP is going to drop them .. or their ENT Dr will drop them.. or their OB will drop them.... you get the picture....
this is just crazy.
Can you imagine? No one has this fear that their PCP is going to drop them .. or their ENT Dr will drop them.. or their OB will drop them.... you get the picture....
this is just crazy.
I was dropped by pain management for getting a second opinion with a surgeon. How crazy is that? I went to a PCP I have seen before to treat me until I found a good pain management clinic. It took me with the help of a friend on this site to find the clinic I'm at now. Funny thing is the old pm was way under treating my pain and now I think he knew he was doing something wrong. I never once violated his contract. I follow all my contracts and instructions to a T. It was an awful experience all around. I was very afraid too.
Even to this day I'm afraid that something could happen and I will be out there looking again for another doctor. I sure hope not. Ooooh, I had a miss count from the pharmacy too! They shorted me by 30 pills with the percocet. It was the pharmasist's fault and she was very sorry. If I had not looked in the bag when I got into the car, they would of never believed me. I could tell there were a few missing.
Your not alone, there are many of us who are afraid. That's because this is an awful condition to live with even when your treated fairly. It's even worse when your not treated fairly.
Even to this day I'm afraid that something could happen and I will be out there looking again for another doctor. I sure hope not. Ooooh, I had a miss count from the pharmacy too! They shorted me by 30 pills with the percocet. It was the pharmasist's fault and she was very sorry. If I had not looked in the bag when I got into the car, they would of never believed me. I could tell there were a few missing.
Your not alone, there are many of us who are afraid. That's because this is an awful condition to live with even when your treated fairly. It's even worse when your not treated fairly.
THaks Sara, It's good to know I am not alone in my irrational fear. I wish so hard I could shake it and take control over my life - but I think to myself... this IS the rest of your life. I will always be at their mercy..and hopefully their good side.
I am so sorry to hear about your daughter. I totally relate to the worry that our children will suffer the same pain we do. My 11 yr old son has already been sent for a MRI for back pain and has DDD... at his age, it's unbelieveable.
Hugs to her... and hope she is does not have another for a very long time..... if ever..
I am so sorry to hear about your daughter. I totally relate to the worry that our children will suffer the same pain we do. My 11 yr old son has already been sent for a MRI for back pain and has DDD... at his age, it's unbelieveable.
Hugs to her... and hope she is does not have another for a very long time..... if ever..
Oh sweetie, you are not alone! I think many of us (myself included) have that same fear under the surface. I'm even scared of her retiring! She's the only one who knows how to treat my adhesions. And I'm terrified asking her to up my meds. She is always very sweet about it so my fear is irrational. But it's still there.
Also this morning when Jaybay posted about ovarian cysts popping can cause adhesions my blood ran cold. My poor baby (14 yrs old) had one pop on her last spring. They put her on the pill to see if that would reduce it. But no, It popped and she was in a lot of pain. But if she gets adhesions, I'll be devastated. So posts do scare me as well.
Also this morning when Jaybay posted about ovarian cysts popping can cause adhesions my blood ran cold. My poor baby (14 yrs old) had one pop on her last spring. They put her on the pill to see if that would reduce it. But no, It popped and she was in a lot of pain. But if she gets adhesions, I'll be devastated. So posts do scare me as well.
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