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1187071 tn?1279369698

I'm done

I am done trying to get help everywhere I go I get turned down.
They woulldnt' even check to see if I was dyhydated. They didnt' check anything at all. They said I look like a drug seeker cause of all the drs I have been going too. I have went to 3 dentist, 1 PCP and 2 pain drs one that woudln't treat my pain and the other one is on vacation. They gave me 12 tramadol and said that was all they can do for me.
Like always I am so lost and still in pain. they didnt even brother to give me anything at the ER.
I won't even be able to eat cake with my daughter tomorrow or do anything with her. I tried to get them to give me fluids thru a IV and they wouldn't even do that. I am so weak I am having trouble walking i have lost so much weight this week, I can't sleep or eat. It won't be to long before I die since I can't eat.
So i am no better now then I was this morning, and what dr do I call now? No one cause no one freaking cares about me. I can die and they would say "good"
Jamie
Best Answer
Avatar universal
Oh my Dear,

I'm at a LOSS of what to say to do. I am completely taken aback at them not even checking to see if you are dehydrated.

I'm curious also, did you HAVE to list all of the Dr.'s ? Exactly what transpired from the time that you walked in the door. We're trying to figure out what went wrong here.

Sara, I'm going WITH you when you go!!! I think almost EVERYONE on here will be going!!!

PLEASE tell us step by step what happened so we can figure out what went wrong!

I WISH you lived here!!! Wasn't your husband there? Didn't Glenn say ANYTHING in your defense? Was your Friend there? Didn't she say anything?

O Jamie, I just can't imagine that this happened in our Hospitals? Did you go to the one you said you were going to? The one that WASN'T in your town? The one that was 35 miles away?

Did I understand you right? Did you see a SEPARATE PCP today? Or just a Dr. in the ER? Or both?

I Love you and am sickened by what has happened to you TIME and TIME and TIME again!!!....Sherry
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1187071 tn?1279369698
Thanks everyone. My daughter had a great birthday and that is all the matters. I was able to eat cake and icecream with her so that made her very happy.
I am not thinking bout going to the other Er right now or finding a new pain dr right now. That dr scared the crap out of me cause I don't want to get red flagged so now I am even to scared to go find treatment. Even if I go and find a nice dr there is no way he will give me fluids and then send me home with out anything cause i woulld be right back in there in a few days cause of not being able to eat. Any dr with a heart would give someone pain meds that can't eat so they can try to atleast get some food down. That is what should of happen when I went to the ER in the first place, but it didn't. I don't see how drs can do that to people knowing they are in way to much pain to eat and just send them home without checking anything. I will never forgive that ER for what they have done for me. The bad thing there is a great dr that works in there, I was so hoping he was working but he wasn't. He has taking care of me a few times and my son. He is very nice but when you get drs like I got on Friday it makes that ER look so bad.
Oh well it is done and over with. Tuck you are right one day at a time is all I can do. I got thru today and it does bring me 1 day closer to my appt. I am so tired from doing so much today. I dont' think I will be cutting the pills in half cause I know the won't do anythign for the pain if I do.
Tomorrow my son is in the local parade and then my husband had a bright idea to have family and friends over for a cook out afterwards and then tomorrow night fireworks. i am going to try to rest when I can tomorrow. And of course even tho I dont' feel good I will have to act like I do, so people wont talk about how bad I have gotten or how bad I look or how I like to ignore people. But when Im not feeling good I get to the point I really don't care what people think about me. I live with CP and people around me are going to have to get use to it. My family has.  Now I am going to be so I can get up 5 times during the night or maybe I will get lucky and sleep all night, we will see.
thanks everyone
Jamie
Helpful - 0
547368 tn?1440541785
Yes Jamie, Happy Birthday to your daughter.

I cannot eat more than a few bites due to pain though my reason is very different that yours. I do understand that portion of how you must be feeling.

I've now lost 28 lbs in less than two months. I am able to drink small amounts but no one is overly concerned about dehydration because I make attempts to get a little something in every few hours. That's all I can do and all you can do also. Just keep trying.  

Remember that every day that passes brings you closer to your PMP appointment. That's how I look at it. Another day gone before I can see the surgeon. It helps me and I hopes it helps you.....one day at a time.

We'll get through this together. You remain in my thoughts and prayers.

Peace,
Tuck
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Avatar universal
I know you said that you didn't think 1/2 of a tramadol would work for the pain - I just wanted to caution you about cutting ANY pill without first checking with the pharmacy or the doctor that prescribed it (best bet woudl be the pharmacist).  Some medications cannot be cut, chewed, crushed, etc. - even if they are not extended release meds - and to do so could cause SERIOUSLY DANGEROUS situation.  So if you do consider trying that route, please be sure to check with teh pharmacist first to make sure it would be safe.

Sure hope you're able to get a little more liquids and hopefuly some solid food into yourself today.

Happy birthday to your daughter!
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Avatar universal
I feel so bad for you, Jamie. I'm glad though that at least you've eaten a tiny bit. I wish you could go to the ER that is further away, but I don't want you to get flagged. I don't even understand how they could do that! It is insane that you can't get treated for your pain. Are you still thinking about going to the other emergency room? Maybe if you do you will get a nicer doctor..?? Would it be possible to have your husband come with you so that he can stand up for you? Even if you just ask for fluids again and ask to get your potassium levels checked, I think it would be worth it. No one should ever have to deal with what you're dealing with now. Can you find a new PCP on Monday? Usually, they will take you in right away I think.

Helpful - 0
1187071 tn?1279369698
They aren't that strong and I was thinking about cutting them in half but 1 don't help that much I don't see how a half would help me at all.
I am glad your bf got into see your dr and now he has a good dr to treat him. Once you have a really bad time with a dr it is hard to even try to find one cause you don't want to be turned down again. It is so hard to get turned down with you know you have to deal with so much pain 24/7. The sheet they get the drs names from is a DEA sheet, it only has the names of the drs that gave me the meds and the name of the med and the date. they asked me who my PCP is I told them I just to have one and told them her name and that was it, i told them I am looking for another one right now. So they only know of 2 drs that have treated me in the last 6 months cause that is all that has treated me. The last person to treat me was my nerve dr and he said he can't treat me anymore cause I am in need of long term pain med care and he can't do that.
Thanks
Jamie
Helpful - 0
Avatar universal
I'm just wondering if you go to the other ER how they would know how many doctors you see or who you see?  Can't you just leave that information blank?  Or maybe a little fib for where it says who your primary care doctor is you write none.  Lots of people don't have a primary and never go to a doctor.  When something comes up, they end up in the ER.  Not the best idea but a lot of people do it.

And you actually need to find a new primary care doctor.  You can't stay with one that won't treat you when you need treatment.  My boyfriend is a chronic pain patient.  The primary he had was terrible in almost every area.  I convinced him to switch to my primary and now she treats him for CP.  (He had a bad experience with a pain clinic and doesn't want to go that route, even though I tell him how great mine is.)  Maybe if you found a new primary they could help you until your pain clinic appointment.  (When my BF switched over he needed to be seen right away.  He was having a flare-up and we were heading to Mexico and I didn't want our vacation ruined.  Our doctor saw him within a day or two, gave him a prescription for Percocet and Flexeril and told him to make an appointment for a physical and have any records he had from the other doctor forwarded.)

It seems like you're in a nightmare and everywhere you turn it just gets worse.  I'm glad you at least have the Tramadol since it helps a little.  At least you're getting a bit of food into you.  Do you think if you split the Tramadol and had one before you ate and one before bed it would help you sleep?  Or would it not be strong enough to split?  
Helpful - 0
1187071 tn?1279369698
thanks everyone.
I was up again 5 times last night so I wasn't able to sleep. I wanted to lay down today to try to but it is my daughters birthday. I might just go lay in the family room for a bit til my husband gets home from work.
I take a 1 tramadol a hour before I know I am going to eat, just so I can eat alittle bit. I am still not able to eat much cause of the pain. I am afraid to take to many of the tramadols cause I know they won't lost long so I have only taking 3 so far.
This dr didn't say "come back if you get worse" she said "don't go to anymore drs unless it is your PCP or your pain dr or you will be red flagged" So I am now afraid to go to any other drs. So that leaves me to wait til my pain dr appt cause my PCP said just wait for your pain dr appt. I didn't tell them what drs I have been to they had the DEA list of the drs that given me pain meds. And the thing is there was only 2 drs on that list. And I go to to many drs? I don't understand that at all. I have went to other drs and they haven't gave me pain meds and I didn't ask for them at all. I am not one to come out and ask for meds if they offer to give me some then that is fine and if I am in pain I will take them but I never ask for meds. All I wanted yesterday was fluids never asked for meds. I was just hoping to get some fluids in my system so I could feel better today for my daughters birthday.
I found some promethazine 25mgs I got back in march it is for nausea. I have 8 of them and they have helped with the nausea thank goodness cause I need all the help I can get.
I am doing the best I can, that is all I can do. I am eating alittle and trying to get back to normal but I know it won't last long and I will be right back to the state I was in yesterday but I am hoping to delay that as much as I can cause I really don't want to be that sick again.
Thanks again
Jamie
Helpful - 0
Avatar universal
I am stunned by the things the doctor said to you.  I can't believe he told a patient they would be red flagged.    And they almost always say, "If your symptoms change or get worse, don't hesitate to come back."  I'm really hoping you'll go to the other ER, even if it's a drive.  I can't imagine you'd have the bad luck to run into a similar situation there.  Hopefully there will be someone on duty that has some common sense.

It's great you're eating and drinking a bit.  Even if it's only a little, that's still terrific.  Just eat whatever will stay down and whatever appeals to you.  I can't imagine how badly your feeling right now.  Between the pain, not eating and not sleeping right, I'd be out of my mind.

Jamie, please consider going to the other ER.  I think trying to hold on until your pain doctor comes back is too much for you (or anyone for that matter!)
Helpful - 0
Avatar universal
Jamie, I just have to reiterate what everyone else said. You actually called it with that.  I know on thing Jamie, there is NO way I would pay that ER bill.  That dr. was downright terrible to you, she actually mentioned "redflagging" you?  Really?  That's pretty bold, but at least she gave you a few tramdal and if you take it sparingly it will last for a few days,but I would not pay for that er appointment.  Call your sister in law and see if she can help you.  By the time the 20th comes, your going to be like, I'm fine I don't need anything from anyone, you've waited so long (Of course I'm kidding) but your half way there.  Just keep thinking about that!  I'm proud of you!!!!
Helpful - 0
1187071 tn?1279369698
Thats a good idea too but I don't think she could she works all the time, I think she has like 2 jobs now and both are full time. So between them and her 3 kids life is hard right now. My husband will be going with me to my appt so I am hoping that will be enough. There should be no reason for my PMP not to start treatment on me that day if he says he won't I will have a heart attack right then and there.
Thanks alot for the ideas they really do help.
Jamie
Helpful - 0
1322157 tn?1279656681
You know, Jamie -  Maybe you could also ask her to come  with you to your next appointment, where ever it is.... She can be your support and has the medical background to ask the right questions AND make sure you are treated properly.

regardless, hopefully she can make a few recommendations for you -
Helpful - 0
1187071 tn?1279369698
Thank you,
Yep my sister inlaw lives in the same town as we do. They are out of state right now for baseball and won't be back til Monday so I can ask her. she works at a big hosptial and it is like in the top 5 hosptials in my state so she would know some drs, I have never thought about that so thank you for bringing it up.
Jamie
Helpful - 0
1322157 tn?1279656681
Jamie,

Can you call your sister in law for some advise? Does she live in state? Can you direct you to a good doc?

Hang in there... Happy Birthday to your daughter!!!
Helpful - 0
Avatar universal
Just keep putting something into your Stomach continuously like you have been doing and you will start to feel much better Nauseous wise anyway!!

Hang in there Sweetie......Sherry
Helpful - 0
1187071 tn?1279369698
I know no one here would hurt me. Once you have been treated like this face to face with a dr it makes you not even want to ask for treatment again. I have learned my lessson, I knew that hosptial would do that and I didn't listen to my heart and went there anyway.l  was just hoping a really nice understand dr was working and I got very unlucky and got a mean one.
I am not overing doing it I am trying to eat and drink. The thing that bugs me the most is feeling sick, I feel like I would rather vomit then eat. How long will it take for me to feel better? I won't sit and eat a full meal, I ate alittle bit for dinner and a little snack with water in between and OJ. I just want to start feeling better, tomorrow is my daughters birthday and I am hoping I am able to sleep good tonight and get up feeling better. But I think I am hoping for to much. I have been having nightmares all week so I hope those will go away so I can sleep. Plus with me waking up every hour trying to puke hasn't been helping me at all to sleep. I wish my body would want to sleep instead of vomit. I haven't been eating for 4 days I just wonder how long it will take me to feel better, eatting alittle at a time. I wouldn't dare ask the dr, i wouldn't want to waste anymore of her time.
Thanks
Jamie
Helpful - 0
1301089 tn?1290666571
Whew!!  I thought I was misunderstood!  I would never say anything to hurt Jamie.  And anyone who would say something ugly or attack a chronic pain patient for needing their medications or for what they aren't able to do is a total scum bag and needs to be swept under the carpet of humanity.  Just my opinion.  Rather strong on this one.
Helpful - 0
547368 tn?1440541785
Sara, I know you did not mean to imply that. And I think you may be correct that for whatever reason the ER Physician had their mind made up.

Some doctors to take the Oath. I think it depends on the school. Possibly in your area the majority of the schools do have their graduates say the Oath. I think they are getting more and more away from it for whatever reason. Not everything is black and white and I am sorry if you took my response to mean anything differently.

You are a sweet, caring person. :)
Helpful - 0
1301089 tn?1290666571
I certainly didn't mean to imply that Jamie presented herself as a drug seeker.  I meant that the doctor had made up his mind before he even saw you.  He wasn't going to treat you.  I don't know the reason why.  I was speculating.

And I thought all doctors take the oath.  I stand corrected.  Several of my doctors display the Oath in their offices.
Helpful - 0
1324871 tn?1288981706
Oh my gosh Jamie I am so sorry for how you were treated .I think you experienced every pain patients worst nightmare .i had one where they treated my pain and then told me  not to come back for that ailment .I told them I will come back as many times as I need to .It's a shame that it's like this when we are supposed to have the best healthcare in the world .I feel so very very bad for you .I will keep you in my thoughts and prayers.Take tucks and some of the others advice .Rest easy ,drink a lot of fluids.Take care honey .My heart goes out to you .Melissa
Helpful - 0
655875 tn?1295695107
Jamie, I just don't know what else to say but I'm so very sorry.  This is just unbelieveable.  I wish there was legal action you could take for the dentist who caused you all this trouble in the first place and now your not being treated for the pain or for anything else.  If you end up getting really bad, please find a different ER to go to.  I wouldn't tell them exactly how many doctor's you've seen.  It's none of their business.  I personally have seen 10 different doctors off hand for my neck so far and I'm not done.  I'm making an appointment on Monday to see another one at the Mayo clinic.  I would also just explain how the injury occured and that is all.  I wouldn't say anything bad about any other doctor either.  I feel so bad for you hon!  
Helpful - 0
547368 tn?1440541785
Our Poor Jamie,

My heart aches for what you are going through. First let me respond to the question about the Hippocratic Oath. This or a very similar statement came up again and again as I searched for information on the Oath.  "Contrary to popular belief, the Hippocratic Oath is not required by most modern medical schools, although some have adopted modern versions that suit many in the profession in the 21st century. It also does not explicitly contain the phrase, "First, do no harm," which is commonly attributed to it."

As you know I have a medical background, some years in ER. Never do I claim to be a medical expert or infer that you should follow my suggestions or opinions. I am just like you all here, a PM Forum member and that's all. In my personal experience when a controversial treatment, practice or just a larger than normal medical dilemma presented itself, especially in my earlier years in the profession I heard physicians say, with a few variances and more than once, "I must follow my promise to, First, do no harm."  They all applied this Oath with their own interpretation of what "do no harm" meant to them. It was fascinating. It is my understanding that now most schools do not even make their graduates swear to this Oath. Just wanted to add my thoughts.

Secondly I disagree with the opinion that you presented yourself as a seeker. I don't see that at all. Mild dehydration symptoms include thirst, loss of appetite, dry skin, flushing, dark colored urine, dry mouth, fatigue and weakness. These symptoms may appear when the body has lost 2% of his normal fluid levels. Usually when your skin is moderately folded or pinched together it will slowly return to normal instead of quickly bouncing back.

At 5% fluid deficiency the heart rate may increase, muscles may cramp, nausea and elevated temperatures and increased respirations may occur as well a headaches and tingling sensations of your extremities.

It doesn't take a blood test to determine if you are dehydration though it does confirm suspected cases. Often just looking at a patient will tell you if they are dehydrated. I can usually pick it out and I am not a physician. They obvious observed no objective signs of dehydration. I am not sticking up for them, please don't think that I am. If you are able to drink even a few glasses of fluids a day you will not dehydrate to a life threatening level. That's why I encourage you to drink anything, an ensure type product, milk shakes, malts, juice, anything.

I think you were treated horribly to say the least. "Warnings" of being red flagged and an RX for Tramadol is a poor substitute for care. In my opinion there were many other options. An ER is required by law to treat life threatening conditions. If they do not see your condition as life threatening they do not have to treat you. However I cannot appreciate their lack of concern and empathy.

I also disagree with the statement that most ER will not give your opiates until they have confirmed you have a kidney stone. I have never been to an ER in acute pain and been denied pain medications, never. I have never even had to ask. I have had at least eight stone that sent me to four different ER's. Everyone gave me IV drugs before the moving stone was confirmed. Maybe it is my state, maybe it is the fact that three of the four were very rural hospitals. My haste to relocate to a warm weather state has certainly been deterred after reading the horror stories of other states on this forum. I am just horrified at the way ppl in pain are treated.

Now what to do our Jamie? If your ER's are not going to care for you than you have little choice but to take the tramadol, rest as much as you can, drink whatever you can get down and wait for your PMP appointment. As difficult as this may be I don't see any other choices. Hopefully someone else will have a better suggestion(s).

In my opinion your heart rate is elevated but not dangerously so. It is a statistically fact that heart rates and B/P's often elevated simply by a visit to ER or often a physician. It's called the white coat response and represents the stress most of us feel when we seek medical treatment. Of course pain can also elevate your B/P. And yes your B/P is also a bit elevated. You top number (systolic) is not so horrible. It's the bottom number (diastolic) that is of more concern. When your diastolic is over a 100 it needs to be closely monitored.. Again they may have attributed to your stress level. I am only giving my personal opinion. I am not attempting to provide you with medical advice.

Jamie my heart just breaks for you. I really thought ER may have some answers for you. If you get worse or no better you may want to consider consulting another ER. I know by now you must be devastated. Hold your head up and go to another ER if you beleive you need to be seen again.

We're here to listen as much as you need to chat or vent. I will hope that your new PMP is worth the wait. And please don't hesitate to find a new PCP if you are dis-satisfied with your current one.

Gentle (((HUGS))) to you our friend in chronic pain,
~Tuck.  
Helpful - 0
Avatar universal
The BP rate they normally go by is: 120/80.

For someone at the Dr.'s it is not abnormally high. A lot of people have their pressure go up when they see a Dr.  That's probably why nothing was said.

When my Hypertension (High Blood Pressure) was discovered a the Dr.'s Office it was at stroke level : 185/110. He VERY calmly (after finishing the examination that I was having for my Social Security Disability exam) took it one more time and it was the same. THEN he calmly said is your BP NORMALLY  high and I told him that it had NEVER been high in my life and asked what it was. He told me 185/110 and it hadn't changed in the entire hour that I was there. Then he told about how a lot of people have high blood pressure when they see a Dr. and I told h im I DON'T!!!

My normal pulse rate,is around 108 to 110. So nothing was TERRIBLY off with your readings especially since you have been throwing up and nauseous. When you are sick your pressure quite often will be higher than normal. Also, your pulse rate will be high too as it puts stress on your body. And you had told them that you have been sick.

Mine turned out to be an 80% blockage in my heart and required 2 stents.  :)

You DEFINITELY need to write a letter as well as fill out that report!!! They should have given you every test to check you and be SURE that everything is ok. THEY were WAY off base and I can't believe that you were treated that way!!!!

I sure wish Sara and I had been there!! I PROMISE you that you WOULDN'T have been treated that way at all!!! I GREAT at getting the hospitals to do what they NEED to do. I just wish Jean and my Mom  and Dad were still her THEY'D TELL you how GREAT I am at taking care of them in the Hospitals!!!!

(((HUGS!!!)))....Sherry

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Avatar universal
Jamie, I feel so bad for the condition you're in.  I think you definitely need to go to the other ER that's not in your town.  And you definitely need someone to go with you to advocate for you.  If your husband can't go, another family member or friend needs to go.  I'm glad you got the Tramadol and that it's helped enough so you could eat a little.

Are you going to see if your friend can get you into her doctor?  I think that's your best bet, especially if you don't go to that other ER.

As far as you being dehydrated, everyone is so right; it's really dangerous.  At this point, you should forget about water; it's not enough for you.  You said you didn't like the taste of the Gatorade.  Orange juice would be a really good choice since it's loaded with potassium.  And if you get the Tropicana you can get it with extra Vitamin C, Calcium or Immunity Defense.  

I hope you can bring yourself to see another ER doctor tonight or tomorrow.  Years ago I worked in an ER, and I can't believe how you've been treated.  Even the known drug seekers at our ER were never treated as poorly as you were.  When you're feeling better, I hope you will write a letter, both to the director of the ER, the CEO of the hospital and any medical boards that may apply.  Maybe they'll think twice about treating someone that way the next time.

Good luck.          
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1187071 tn?1279369698
The hosptial will most likely send me a letter asking how my visit went and I will make sure I fill that out and also write letters to anyone I can in that hopsital. They didn't say one word to me about my blood pressure or my heart rate. Isn't normal blood pressure 120/60? And mine was 153/95 and heart rate was 109. I don't understand why they didn't even say anything about it. I think they had me judged before they even came in the room. I went in there once for something else. I think it was when my appedix went bad and the same dr kept telling me I needed to use the bathroom and I would be fine, I made her do a test and she said fine to make you happy I will and then when she got the results she came in saying how sorry she was and I needed surgery. When she first came in today she said I remember you, you are the girl with all the mouth problems.
I am not a drug seeker, I didn't even ask for meds, all I wanted was blood work and fluids in a IV since I can't eat. That is all I asked for. My legs are cramping pretty bad and I can't get this headache to go away and I can feel my heart beating faster then normal and I have ringing in my ears. They knew all of this but said I was fine with no tests. They only took my blood pressure and pulse that was it. I dont' see how you can tell by only doing that. I will have to ask my sister inlaw she is a RN. Oh Sherry I have only took 2 of the pills so I have 10 pills left, bottles says to take 1 or 2 every 4 to 6 hours and don't go over 8 a day which I have to take less then normal so they will last longer. I just took 2 when I got home around 2:30 so I could try to eat dinner with my family before my husband went to work.
Thanks everyone
Jamie
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