Chiari Malformation Community
Behavior changes after post. fossa decompression
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Behavior changes after post. fossa decompression

My 13 yo nephew had posterior fossa decompression for chiari 1 which caused a large syrinx.He had no symptoms. had MRI of spine due to scoloiosis workup.  Per the neurosurgeon all went well and he was discharged 3 days later. Approximately 2 1/2 weeks later he began to have changes in his behavior. Epsiodes where he would just stand and stare for long period of times. After the first week of school 4 of his 6 teachers notifed the school nurse that he was different,  not saying muchanxious, closing his eyes etc. When I saw him ( he lives with my mom) I could tell ther was something wrong. He has had ADHD since age 5. Normally he drives me a little crazy with his constant talking, but on the 2 hour ride to Childrens Hospital he did not say a word. Long story short the neurosurgeon agreed to admit him to have nuerology work him up. EEG showed some brain irritation, MRI brain negative. Started him on Keppra - still not sure why he started to act this way. possilbe metabolic abnormalities  Everyone saysit has nothing to do with the chiari surgery. My question - Is it possible after this type of  surgery that it could trigger this type of acute change in his behavior??? It toook multiple calls to the neurosurgeon and 2 trips to local ER before someone took us seriously.
Tags: fossa, post
Related Discussions
570413_tn?1299536261
Hi!
So, they have started him on seizure meds, but don't really know why he is having the seizures??  I mean, are they actually saying these are seizures??  They certainly sound like seizures to me.

How long now has it been since his surgery?  It may be that in time, things will calm down, and these episodes will slow down, too.

I would think that a brain surgery of any kind could possibly bring on seizures, but that's just my un (formally) educated guess.  Anytime the brain is altered, I would think it is possible for changes like this to occur.

If you feel that your nephew is not being treated well, I wouldn't hesitate to get a second opinion or change doctors.  It shouldn't be so hard to be taken seriously!

Don't hesitate to seek out another doctor if you don't feel your questions are being answered and considered relevant.

HTH!
Rebecca

Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
Avatar_f_tn
Blank
girlinxile
Columbus, OH
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
992677_tn?1337358095
Blank
ChiariWolf
OH