CHIARI MALFORMATION COMMUNITY
Behavior changes after post. fossa decompression

Behavior changes after post. fossa decompression

My 13 yo nephew had posterior fossa decompression for chiari 1 which caused a large syrinx.He had no symptoms. had MRI of spine due to scoloiosis workup.  Per the neurosurgeon all went well and he was discharged 3 days later. Approximately 2 1/2 weeks later he began to have changes in his behavior. Epsiodes where he would just stand and stare for long period of times. After the first week of school 4 of his 6 teachers notifed the school nurse that he was different,  not saying muchanxious, closing his eyes etc. When I saw him ( he lives with my mom) I could tell ther was something wrong. He has had ADHD since age 5. Normally he drives me a little crazy with his constant talking, but on the 2 hour ride to Childrens Hospital he did not say a word. Long story short the neurosurgeon agreed to admit him to have nuerology work him up. EEG showed some brain irritation, MRI brain negative. Started him on Keppra - still not sure why he started to act this way. possilbe metabolic abnormalities  Everyone saysit has nothing to do with the chiari surgery. My question - Is it possible after this type of  surgery that it could trigger this type of acute change in his behavior??? It toook multiple calls to the neurosurgeon and 2 trips to local ER before someone took us seriously.
Tags: fossa, post
Related Discussions
570413_tn?1299536261
Hi!
So, they have started him on seizure meds, but don't really know why he is having the seizures??  I mean, are they actually saying these are seizures??  They certainly sound like seizures to me.

How long now has it been since his surgery?  It may be that in time, things will calm down, and these episodes will slow down, too.

I would think that a brain surgery of any kind could possibly bring on seizures, but that's just my un (formally) educated guess.  Anytime the brain is altered, I would think it is possible for changes like this to occur.

If you feel that your nephew is not being treated well, I wouldn't hesitate to get a second opinion or change doctors.  It shouldn't be so hard to be taken seriously!

Don't hesitate to seek out another doctor if you don't feel your questions are being answered and considered relevant.

HTH!
Rebecca

Blank
Post a Comment
To
Comment
Post A Comment
Go
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
MedHelp Health Answers
Submit
Top Neurology Answerers
620923_tn?1335125657
Blank
selmaS
Allentown, PA
1306714_tn?1327260680
Blank
linnielou232
muskegon, MI
1903798_tn?1333908888
Blank
Rylanesmom
Lee's Summit, MO
1823499_tn?1329334955
Blank
Sexybare
Bay city, MI
1755089_tn?1333936375
Blank
drewlevas
NB
1968463_tn?1333065910
Blank
Rahe28
New Orleans, LA
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank