My 13 yo nephew had posterior fossa decompression for chiari 1 which caused a large syrinx.He had no symptoms. had MRI of spine due to scoloiosis workup. Per the neurosurgeon all went well and he was discharged 3 days later. Approximately 2 1/2 weeks later he began to have changes in his behavior. Epsiodes where he would just stand and stare for long period of times. After the first week of school 4 of his 6 teachers notifed the school nurse that he was different, not saying muchanxious, closing his eyes etc. When I saw him ( he lives with my mom) I could tell ther was something wrong. He has had ADHD since age 5. Normally he drives me a little crazy with his constant talking, but on the 2 hour ride to Childrens Hospital he did not say a word. Long story short the neurosurgeon agreed to admit him to have nuerology work him up. EEG showed some brain irritation, MRI brain negative. Started him on Keppra - still not sure why he started to act this way. possilbe metabolic abnormalities Everyone saysit has nothing to do with the chiari surgery. My question - Is it possible after this type of surgery that it could trigger this type of acute change in his behavior??? It toook multiple calls to the neurosurgeon and 2 trips to local ER before someone took us seriously.
So, they have started him on seizure meds, but don't really know why he is having the seizures?? I mean, are they actually saying these are seizures?? They certainly sound like seizures to me.
How long now has it been since his surgery? It may be that in time, things will calm down, and these episodes will slow down, too.
I would think that a brain surgery of any kind could possibly bring on seizures, but that's just my un (formally) educated guess. Anytime the brain is altered, I would think it is possible for changes like this to occur.
If you feel that your nephew is not being treated well, I wouldn't hesitate to get a second opinion or change doctors. It shouldn't be so hard to be taken seriously!
Don't hesitate to seek out another doctor if you don't feel your questions are being answered and considered relevant.
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