Chiari Malformation Community
What Now?!
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

What Now?!

NS nurse called and we had the following conversation:

NS.: I want you to see (NL) because there are several tests that need run before we can decide that surgery is what you need.
Me: Several?
NS.: Yeah, Many. A lot.
Me: Oh yay.
*sigh*

Now I'm having my fifth MRI in 2 months soon and an EMG.  What tests can they possibly want to run.  I do know they already ruled out the MS but the NS wasn't happy that the NL didn't do a spinal tap to rule it out.  I will NOT let them do a spinal tap.  I've heard that can make the Chiari worse.  I am so frustrated.  I just want to be fixed!
Related Discussions
620923_tn?1405964489


  We all would like to be fixed, but that is not possible...we were born this way.....and surgery can make things worse if u 1- do not have the right dr and 2- if u do not have the right dr!

Tests r needed to know just what all is going on...regardless of having chiari with symptoms not everyone is a surgical candidate.

Did they do a CINE MRI?

MRI of ur thoracic and lumbar spine?

A LP can be done if medically necessary, but to rule out MS is not medically necessary...but, they can be done  as long as the tech knows u have chiari and to draw slowly....so if u have a good tech it can be done safely....not that I would want to have it done...it can be, but we should try to avoid them.

I would have the tests, and get copies of all of them reports, CDs all of it and get another opinion and go from there.

This is a very frustrating thing to deal with and most Drs and their staff do not make it ne easier for us.
  "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
2 hrs ago
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
2 hrs ago
620923_tn?1405964489
Blank
selmaS commented on photo
11 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
1667208_tn?1333111449
Blank
zygy2
NH
7530528_tn?1405298278
Blank
AKC_75
TX
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
1667208_tn?1333111449
Blank
zygy2
NH
7530528_tn?1405298278
Blank
AKC_75
TX
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ