137307 tn?1330977597
What Now?!
NS nurse called and we had the following conversation:

NS.: I want you to see (NL) because there are several tests that need run before we can decide that surgery is what you need.
Me: Several?
NS.: Yeah, Many. A lot.
Me: Oh yay.
*sigh*

Now I'm having my fifth MRI in 2 months soon and an EMG.  What tests can they possibly want to run.  I do know they already ruled out the MS but the NS wasn't happy that the NL didn't do a spinal tap to rule it out.  I will NOT let them do a spinal tap.  I've heard that can make the Chiari worse.  I am so frustrated.  I just want to be fixed!
Cancel
1 Answers
Page 1 of 1
620923 tn?1452919248


  We all would like to be fixed, but that is not possible...we were born this way.....and surgery can make things worse if u 1- do not have the right dr and 2- if u do not have the right dr!

Tests r needed to know just what all is going on...regardless of having chiari with symptoms not everyone is a surgical candidate.

Did they do a CINE MRI?

MRI of ur thoracic and lumbar spine?

A LP can be done if medically necessary, but to rule out MS is not medically necessary...but, they can be done  as long as the tech knows u have chiari and to draw slowly....so if u have a good tech it can be done safely....not that I would want to have it done...it can be, but we should try to avoid them.

I would have the tests, and get copies of all of them reports, CDs all of it and get another opinion and go from there.

This is a very frustrating thing to deal with and most Drs and their staff do not make it ne easier for us.
  "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
620923 tn?1452919248
Blank
selmaS commented on selmaS's status
Sep 17
Avatar universal
Blank
620923 tn?1452919248
Blank
sherimom, and selmaS commented on sherimom's status
Sep 16
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources