Chiari Malformation Community
how progressive is a syrinx?been fobbed off for years...is a syrinx non...
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how progressive is a syrinx?been fobbed off for years...is a syrinx non progressive?

as above..is a syrinx non progressive?
620923_tn?1425323098

  Hi Lisa....it really all depends...a syrinx can increase in size very rapidly or very slowly over time...certain activities can trigger it to grow faster....

Keeping track of the symptoms and noting new ones is one of the best way to know what is going on, and getting MRI's to monitor it.

The Drs will fob u off....it seems if it is not a true Chiari specialist they just do not have a grasp of how this affects us.

All I can suggest is looking into a Dr that knows Chiari as they also treat Syringomyelia too,. Check out the list of Drs in our Dr list for the UK,....the list was compiled by the Ann Conroy Trust- http://www.medhelp.org/health_pages/list?cid=186
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