Chiari Malformation Community
how progressive is a syrinx?been fobbed off for years...is a syrinx non...
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

how progressive is a syrinx?been fobbed off for years...is a syrinx non progressive?

as above..is a syrinx non progressive?
620923_tn?1433541877

  Hi Lisa....it really all depends...a syrinx can increase in size very rapidly or very slowly over time...certain activities can trigger it to grow faster....

Keeping track of the symptoms and noting new ones is one of the best way to know what is going on, and getting MRI's to monitor it.

The Drs will fob u off....it seems if it is not a true Chiari specialist they just do not have a grasp of how this affects us.

All I can suggest is looking into a Dr that knows Chiari as they also treat Syringomyelia too,. Check out the list of Drs in our Dr list for the UK,....the list was compiled by the Ann Conroy Trust- http://www.medhelp.org/health_pages/list?cid=186
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_n_tn
Blank
Mmilman commented on When Your Cold Is Not...
Jun 28
14511252_tn?1434927346
Blank
ytjones23 added the Headache/Migraine Tracker
Jun 21
14511252_tn?1434927346
Blank
ytjones23 added the Heart Rhythm Tracker
Jun 21
Top Neurology Answerers
620923_tn?1433541877
Blank
selmaS
Allentown, PA
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1433541877
Blank
selmaS
Allentown, PA
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD