Back if I can

[ccorina]

Hello,

I left this community because I really didn't like some (very small amount) peoples very accepting
and insulting manner.  

I knew this community had many (many many) supportive members, but since I was surviving and in limboland I left to avoid that negativity.

Well...now that I've had my first "confirmed" relapse and the docs are saying MS but can't diagnose until more evidence.  I have an enhancing lesion on my pons which threw me in the hospital with absolutely no movement on my left side.

5 days of steroids in hospital, now out and I have questions that I can't find answers to.

So...if I post am I going to get the wonderful support you guys offer or have I already burned my bridges?

Corina

[Guitar_grrrl]

Welcome back, Corina!  

I'm sorry you're flaring, and wish you a speedy recovery.  Keep up the strength as you get better.

If that neuro doesn't start you on a DMD, he's an idiot!  Just my $0.02...

[HVAC]

Welcome back. I hope you get the support you need.

Alex

[Sidesteps]

LOL Jens,

Welcome back Corina, I took a little breather as well so I don't recall details of your leaving.  

There is a few of us in limbo but teetering on the edge of dx it sounds like; so I shall join you in your quest for answers and hasty treatment!

Cheers :)

[jensequitur]

I'm glad to see you back, Corina!  And I'm sorry about the relapse.  Ask away, and what we don't know, we'll make up!  (just kidding!)

[rendean]

Ditto all the above excellent responses!! They have given  you great information.

Welcome back!!! No bridges have been burned. We're always here for you.

Ren

[Sarahsmom46]

I'm glad to see you back posting, but sorry to hear about your relapse.  Well, it is good in a way because the neuro's needed to see this and unfortunately you needed to go through it in order to ultimately get to a final diagnosis.  I still hope it won't come to a dx of MS, but it looks like that may be the track you are on.

I for one have tried to be helpful to anyone who comes on this forum whether they have MS or are in limbo.  I was once in limbo before my diagnosis and found this group to be the best thing that happened to me while I went through the process.  

Again, I am happy you are back and am waiting to see what your questions happen to be.  

Hugs,

Julie

[Sparkysarah]

Hi Corina and welcome back.

I think that that people take what they need from the forum and there are givers and takers and we all will flit from time time on either side. My experience of the forum has been nothing but positive and there are some very very giving people who always seem to be around no matter what the weather, season or occasion. I am sorry that you experiencd some negativity before and hope that the welcoming responses here, reassure you.

I think that it is very important to do whatever is helpful at the time and hopefully a break from the forum has given you some space to deal with your ongoing health problems.  I think that the forum is a great place to seek support, ask questions and find out more about MS. However it also requires a leap of faith and trust to bare your soul, feelings, concerns and worries and if the response is perhaps not as one expects, that can just knock one's confidence and ability to trust. As others have said this is like a family, and I really hope that you are able to come back and find that we are there for you. I would explain the forum like having a really good friend, perhaps from childhood who you have not seen for ages, but if there is no contact for a while it does not mean they have gone away but when you reconnect that bond is still there.

It must be so frustrating when you are still hanging in there with such compelling evidence of MS. It seems wrong that we have to wait to be ill again for further confirmation of an illness. However this is the way things seem to be in the medical world and fighting the system does not seem to make much difference.

Anyhow, look forward to seeing you again soon, and hope you will find what you need on the forum.  There are often some very humorous posts which make me smile!

With best wishes

Sarah

[sllowe]

Ccorina,

I can't even remember you leaving. Or, who insulted you. Maybe they left too!

Sorry for the confirmed relapse. So, what is up now?

Welcome back :) Tell us what's been going on when you are ready.
-Shell

[Claire_MHModerator]

Hi, ccorina, and welcome back!  

I like SarahL2491's comparison of this community to a family -- in any lively, well-knit group, there will always be alliances as well as arguments.  And even in the best of families, there may be folks we just plain don't like or trust, or whose style is so different from ours that we can't relate to them.  But when the chips are down, you can count on the members to drop their differences and come together in a supportive way.  

I'm sure you'll see comments here that you disagree with -- disagreement's unavoidable whenever thinking people are sharing opinions, and the wide variety here serves to educate, or at least provide food for thought.  Please feel free to take what you need and leave the rest.  

And, as always, let us know if you see any content that you feel violates our Terms of Service (http://www.google.com/a/help/intl/en/users/terms.html).  

Claire
MedHelp.org

[SarahL2491]

welcome back.
we are like any other "family", we have our moments of bad times!
there are wonderful supportive people here who certainly helped me thru
some very dark days.

[ccorina]

Thanks guys!  I'll post a new topic with my questions.  And thanks for the advice, I'll try to block out the negative.  

Well, onward and upward as they say!

Corina

[Ojibajo]

Welcome back.

Sometimes I wish this forum was more like Facebook and I could just delete or hide the comments or response that I found offensive, and even block some people from commenting on my posts/questions.

But that has been the exception more than the rule. Most people have been helpful and encouraging.

[candy158]

Hi Corina, welcome back, and hope that you get the encouragenent, and support that I have found on this forum.  Good luck with your neuro, and most of us understand totally what you are experiencing...

Cheers,
Candy

[anon07072023]

Hi Corina - welcome back. I'd try to ignore any negativity that you might find on this forum - kind of like, 'don't throw the baby out with the bath water' kind of thing.

I thought they were watching and waiting before for you, and now you have had another relapse, right?  Since they gave you the IVSM, I'm hoping they'll also allow you to starting taking a DMD.  

Good luck with everything,
Kelly

[Lulu54]

I hope that you will find nothing but supportive responses here to your questions.  So give us a try and let us know how we do.

As for your situation, I have to wonder what idiot neuro needs more evidence than your current clinical problems and that enhancing lesion?  If you have other lesions that don't enhance, this would be enough evidence for separation in time.  And it is FDA approved to begin DMDs with the first episode of CIS (clinically isolated syndrome).  

Hopefully the IVSM helped and you've regained use of your left side.

Now it's your turn - what's on your mind?
Lulu

[meg321]

Hey, no bridges here to burn, I sort of disappeared for awhile and came back because I was so sick with pneumonia that I just didn't feel like typing.

I guess I don't see anything negative on here or if there is, I tend to ignore it.

I am sorry that you have not found a dx but stick around, this is the best place I have found for support..

Welcome back,

meg

[ccorina]

Ughggh spell check changed my words.  I meant a small amount of unaccepting and insulting manor.

Corina