i have been diagnose but not with ms

[summerluvr]

I was at the internal medicine clinic on thurs and they took a history and did an exam then went over blood work.they told me I have multiple myeloma
A rare blood cancer that normally older people get. They did bone marrow biopsie today and a ctscan to check for a blood clot in my heart.
I am typing this from my smartphone hooked up to heavy steroids. There is no cure and I would be lucky to make years. Please pray for me
My first symptoms were blurry eyes doctor today says I have swollen disks. This is a big shock to myself and family. Over two years I probably went to
20 doctors what finally let to the diagnose
Was the elevated proteins in blood they found in ER    

[summerluvr]

Oh yeah I'm only 32 so am devastated that urill not live long enough to have kids and get married please pray for me

[saveone]

I know you are devastated.  I would be.  I would want to scream, cry, curse at top of my voice because I would feel so helpless, so it is alright if you do those things.  It is only a normal part of the acceptance.

I have to tell you it is late here and I am not functioning at my peak but I could not go to bed without talking with you, so forgive any mistakes or ramblings I post.

I would recommend that you get you and your family into counseling.  You and they are going to need a safe place to say anything and everything you feel without worrying about hurting, scaring or upsetting another member of the family or a friend.  I know this from experience.  I would not trade my counselor.

i will be praying for you.  I am not familiar with your dx but I will google it tomorrow and read up on it.

Please stay with the forum as you go forward.  You can find so much support here.  Although it says MS forum at the top it truly is a family of ppl who care not what the dx is only that you and your spirit and body need support.  Support is not quite the right word but you know what I mean.

Hold onto those who love you, grieve when you need to but don't forget to enjoy your life.  Not one among us is guaranteed a tomorrow.  We should all live for today with the knowledge life is precious.  

You are going to feel a multitude of emotions.  Recognize each one and honor what you feel.  Emotions serve a purpose and if we do not look at them, if we ignore them our body, our spirit and our mind cannot heal.

I have rambled and I apologize.  I will pray for you and your loved ones.

terry

[rendean]

Dear Summer,

I am so sorry to hear of your diagnosis! What a shocker. You will definitely be in my thoughts and prayers!

Hang in there. Faith can get you through anything.

Hopefully when you see a specialist for treatment they will have some options for you.

(((Huge hugs)))

Ren

[mistylee]

Dear Summer,

I am so upset for you. I can't imagine how you must be feeling right now but just know I am thinking of you and your family and hoping they are wrong.  I will be praying for you.  Take care

Mistylee

[Wendella247]

I am so sorry to hear your news.  Terry's advice is very wise and I hope you will consider it.  It is very unfair for a person your age to get a diagnosis like this, and I am sure you are stunned.  I really can't imagine how you must be feeling right now, but know there are people who care, and you need and deserve support at this time.  I'll keep you in my prayers.  Be strong.

Wendy

[LLWB]

I am so sorry for your dx. You will be in my prayers often. I hope you have family & friends near by, their support will be invaluable. I hope there are some treatments that can help slow down what is happening in your body.

hugs & prayers
Maggie

[Karen99]

Please know that I have you in my thoughts and will pray for you.  

[Ufrustrated2]

truly sorry to hear of your news. most certainly will send off prayers for you & your family.

>>Over two years I probably went to 20 doctors what finally let to the diagnose Was the elevated proteins in blood they found in ER  

i hope all our prayers will help that dx be wrong and you get a new one along with boppin those 20 docs on their heads!

[kathykush]

my heart aches for you and yours! you are in my thoughts and prayers. I am so heartbroken for you. <<<<<<<<<>>>>>>>>>>>>>
please get a seconed oppion. kathy

[supermum_ms]

OMG!! What? How the heck did that happen? Shocked!!

Just some of whats tornadoing around my head, god knows whats going round yours. Its going to be had to just take this in, but please give your self time to digest what this means.

I'm so so sorry this is happening to you, take care, be strong, we will not let you out of our thoughts and prayers.

JJ

[StormyRenee]

I am so sorry that you are going through such a frightening and sad situation....
Eventhough it may not be the type of prayer you are use to the meaning behind it is the same.....Here is my prayer offering for you...

May all beings everywhere plagued
with sufferings of body and mind
quickly be freed from their illnesses.
May those frightened cease to be afraid,
and may those bound be free.
May the powerless find power,
and may people think of befriending
one another.
May those who find themselves in trackless,
fearful wilderness---
the children, the age, the unprotected--
be guarded by beneficial celestials,
and may they swiftly attain Buddhahood


Please Take Care, Theresa

[Lulu54]

My dear friend,

This is such sad news.  It puts all our small inconveniences of disease in perspective.  I will hope that these are the doctors that are wrong - a diagnosis like this should have been obvious to someone over the years of testing you have endured.  So many have seen your records surely they can't all have overlooked this cancer.


We do have another member here who spent three months over the holidays thinking she was dying of cancer before a wise doctor put the record straight. And of course we have MaryKay who beat her cancer and is home, back to work and enjoying life.


I am all too familiar with this cancer, because I had a brother-in-law live with it for 6 years.  Yes, it is possible to beat the prognossis with agressive treatment.  

Please do not give up - you have a lot of unfullfilled dreams waiting for you.    And a lot of summers ahead waiting to be enjoyed.

Lots of love and gentle healing hugs sent to you today,
Laura/ aka Lulu

[Heather3418]

Oh my gosh, precious one.  I cannot even imagine what you are feeling right now...could 'desperation' be one thing that crosses my mind?

The best advice I can give you, is to take some time to get your mind wrapped around what you have just found out.  Give yourself time to breathe, then you and your doctor's can plan a course of action.

I hope that you don't leave this Forum, because we want to be here to support you.  This Forum is full of hugs, love, prayers and compassion.  Please let us help you through all of this.  We are all hoping that you respond to the treatment and get into remission as soon as possible.

We love you Summer, please remember that and hold it next to your heart.

Big, but gentle hugs, precious,
Heather

[alixjo]

My thoughts and prayers are with you.

alixjo xx

[CaliforniaMum]

God Bless you.
xoxoxoxoxoxoxo

[essdipity]

I'm one who would urge you not to accept this until every T is crossed and every I is dotted. Please do seek to have this diagnosis either confirmed or set aside. Get several more opinions, if necessary.

If this turns out to be cancer, find out all you can about treatment options. We'll help you through all of it. You do have friends here and we won't let you down.

We're pulling for you and praying for you.

ess

[tarter]

Dear summerluvr,

You are in everyones thoughts here please keep in touch and let us know how you get on with tests and drugs to aid your prognosis.

Sometimes good things can happen and change everything lets hope the Doctors can offer some help with meds and treatment.

I will look out for your posts, hugs tarter

[starryeyes1]

Summer,

I am devasted for you. It really makes us all realize that our disease is minor compared to others. Things could be worse. You and your family are most definately in my prayers.

I pray this dx is wrong.

[Mike_Shuswap]

You're in my thoughts. I hope there's a chance this is a mistake!

Mike

[doublevision1]

I am very sorry to hear about this.  You really really do need to pursue a second opinion, given the seriousness of this dx and the number of doctors you've seen over the years who didn't see it. Please stay in touch and know that if it is cancer, you can fight it, and know that you have a support system that is here for you and rooting for you.  

[illinwithoutacause]

i send my prayers and ask for God's blessings for you as you embark on this difficult journey.

for what it's worth, i have known two women who have fought multiple myeloma for over 7 years who were at least 30 years older than you are when they were diagnosed.  with youth on your side, i pray you will have an even better chance of getting on the other side of this disease.

with healing thoughts,
binx

[Prettymomma]

you are in my prayers xoxo

[Wobbly]

Summer, I'm sorry, so sorry to hear you got this Dx.. my prayers are sent to you and your family.  Let us know what/how things are going.  I know that alot of symptoms can show up as a Neuro thing and then they find out more info.

take care and stay with us..
wobbly

[HVAC]

I am so sorry. Keep us up to date.
Alex