my daughter is 3.5 years old, in February 2008 she was diagnosed with a 4cm brain tumor, the whole tumor was removed and it was a benign tumor a choroid plexus papilloma. After the surgery she was left with a permfacial palsy on her right side and also has no feeling in her face we have had a nerve study done that shows the nerves are completely dead. she has also lost the hearing on the right side from the nerve being damaged during surgery. she keeps developing an ulcer on her right eye so that has now been closed with a perm tassorrophy. Since surgery she had mild sensory problems when touch but nothing too bad. over the past few months this has gotten a lot worse she is complaining the clothing from the waist down is hurting she is often hot to touch but no temp she has a huge pain tolerance but she often refuses to wear clothing from the waist down because some days the pain gets too much and we cannot find anything comfortable. there is no particular material that she prefers something that is comfortable one day is not the next. she has also developed a sticky sensation under her chin around neck we wash but the sensation does not go away. she has also been complaining that she is feeling like her legs are wet and screams for us to dry them but there is not water there and they are dry. we have spoken to our neurosurgeon about these new symptoms and he is stumped he does not think that it is related to the original tumor and its removal. She has MRI scans every 3 months the brain space has not healed from surgery yet and the tumor that was pushing on the brain stem has left the brain stem slightly pushed to the left other than this there is no evidence of the tumor returning or a new one. Do you think these symptoms could have anything to do with drop matastisis in the spine,
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