A loss of 80% of one’s lung function, secondary to pulmonary
fibrosisCystic fibrosis
Cystic fibrosis - resources
Neonatal cystic fibrosis screening, indicates fairly severe lung disease. Pulmonary
fibrosisCystic fibrosis
Cystic fibrosis - resources
Neonatal cystic fibrosis screening is usually a relatively untreatable disease, so your Dad’s being, “on meds he is doing better now,” suggests that pulmonary
fibrosisCystic fibrosis
Cystic fibrosis - resources
Neonatal cystic fibrosis screening may not be the
correctCorrect (new formula) diagnosis. Right or not, his response to meds is definitely good news and one possibility could be that he has Lupus related lung disease, that can be responsive to drug therapy.
I doubt that his episodes of suddenly stopping breathing are related to any of the above, Lupus or alleged pulmonary fibrosis. It is more likely that your suspicion of laryngospasm is correct. If not already performed, your Dad should have his larynx and vocal cords directly examined by an ENT specialist, using a fiberoptic laryngoscope. This would rule out anatomic abnormalities of the larynx and/or cords and might provide clues (for example, inflamed cords) about the diagnosis. There is a functional disorder of the cords that interferes with inspiration, called Vocal Cord Dysfunction (VCD). In some instances, this functional abnormality occurs spontaneously. In that circumstance Speech Therapy is often effective. In other instances, more akin to laryngospasm, gastroesophageal reflux disorder (GERD) may result in recurrent aspiration and this can cause the cords to spasm. In this situation, treatment of the GERD, can prevent recurrent spasm. Neither of these situations is life-threatening, but can be very scary and, if sustained can result in fainting (syncope) or “passing-out” and, for example, if one is driving a motor vehicle at the time, yes that could be life-threatening.
That it occurs, “while drinking things” also suggests aspiration and this can be secondary to a swallowing disorder, sometimes the first sign of a neurological disease. You may want to discuss this possibility with his doctor and he may need to have a radiological swallowing study, to rule-out that possibility.
When these attacks occur with increased frequency, especially with loss of consciousness, and no preventive therapy proves to be effective, it may be necessary for the person to have a permanent tracheostomy
Good luck