Poll ~*~ "If I ...... " .. you fill in the blank with thyroid related sentence ... go for it .... see what comes to mind!

[ChitChatNine]

"If I .......     my answer:

If I could make Dr's LISTEN to us ....... not just go by the textbook ... that would make me very happy for those on-board having difficulties working with Docs who just don't "get it" .... that upsets me for these people who post seeking advice .. my heart goes out to you as you seek answers to your health concerns.

Cheryl

[stella5349]

I am sure very soon I will have a list of doctors complied. Not that I am looking forward to that.

I suppose the ENT is fired after Monday - so right now I just have an MD and a radiologist :)

I think the MD is slightly ticked too - so I better get that back on tract -

anyone for cheescake?????

[DLA]

Utah and Lori, thanks so much for all the support.  Any time y'all want just grab your tinfoil hat and head this way.  You're more than welcome to rock with me.  

Man, I thought I had a list of drs!!  I'll leave you to them.

OH, great news!!  Fired my endo today!  yeahhhhhhhhhh

[utahmomma]

I know of what you speak.  I have so many that I have to put what they do next to their names on my calendar for appointments!  Unless it's a doctor I see a lot (like my endo), I usually am asking the receptionist "now what does this doctor do again?" when they call to confirm my appointments.   I'm sure they think I'm some sort of doctor-shopping wacko.  :-)

ENT, Endo, Internal Medicine, GI, retinal specialist, neurologist, OB/GYN, rheumatologist, surgeon . . . hmmmm . . . there's more but I can't remember.  Oh, then there's my son's 6 or 7 doctors too.  Wait, wait . . . and the two vets.   No wonder I have a huge stack of medical bills.   LOL    

Did I mention that the nuclear medicine department was having breakfast when I was at the hospital the other day and they all said "hello".  Now that's just too eerie!!

Okay - let's all swear off doctors for a while, okay?

[ChitChatNine]

Wait I beat you .. let me count the ways, but mine aren't all thyroid related ....

1) PCP
2) Orthopedist (severe tibial tendonitis / arthirtis ankle)
3) Endocrinologist (thyroid maintenance & 3mm nodule other side)
4) ENT (well he is history as of now after surgery 1/7)
5) Urologist - Kidney Stones
6) GI (gallstones & atypical colon polyp)
7) OB/GYN - ALL NORMAL THERE LOL!!!!
8) Dermatologist (Melanoma 6/07 but early, stage I cured)

[blksapphire]

If I could get my dr to listen and think outside of the textbook box and treat how we feel.  It would get me off the ledge.  Im ready to  get off this roller coaster and jump off the curb.  Cant get much higher.  The landing might hurt....LOL


Right now I go to five doctors and they are ALL crazy as bleep.They are all nutty as a fruit cake and we all know how nutty that is.

1) PCP
2) Asthma/Allergist
3) Orthopaedic
4) Endocrinologist
5) Surgeon


IF only..............................................

[Totie]

If I could conveience my doctor my symptoms are related to TT and not my head, i would really be happy. (Prozac was prescribed, NEVER going back to a dr.)

Symptoms: frequent urination, thirsty in the middle of the night, night sweats (drenched shirt and bed sheets), muscle cramps in legs, calves, hips and buttocks. Have lost some appetitie, weight, dry skin, unalbe to sleep, but still function without it. Throat has been hurting for the last two years (allergies he says). Have had my kidneys looked at and my ADH level. All okay, not diabetic, not over weight. Have been diagnosed with Fibro and Peripheral Neuropathy. One neurologist actually told me I had neuropathy I  carry the gene he says. The other neurologist said fibro, but did not do any mri or point pressure test. My regular doctor refuses to think that it could be related to my TT since I no longer have one he says. I basically have given up and sad to say, but the best i can hope for is for something to happen to my body (beside losing muscle and inches in hips, and thighs) that will be apparent to my doctor for him to believe me. I am on synthroid medication daily 125mcg.

[stella5349]

If I could just know what is wrong and stop this madness.

[ChitChatNine]

If I had realized that Synthroid for me is better than my own hormone, I wouldn't have had anxiety attacks after the thyroidectomy (partial) bcz internally I was so scared it was going to "take over my emotions and make me a different person who feels, acts, thinks differently!" .. I was {{{{{ TERRIFIED }}}}}}

If I could have trusted those who have taken the med, I wouldn't have worried so much .. but, the If's, What if's, and looking back isn't so great I suppose but it does make you a stronger person realizing what we have been through right ?

:)

C~

[TDCRose]

If I could have been treated 4 years ago when I first went to a doctor so I could get the 4 years back that I cheated my kids out of having a mother that could stay awake late enough at night to drive them home from the movies, or be active with them in the afternoon instead of having to take a nap!

[ChitChatNine]

Thanks for sharing your story .......my daughter recently suffered 3-4yrs with what they thought was acid reflux and IBS and bad menstrual cycle and she ended up 8 days in the hosp last month figuring out what was wrong with bad pain and finally ruled out appendicitis and it was her GALLBLADDER and she had bile reflux for all these yrs and not IBS and not ACID reflux and has not taken a Prevacid since the day of surgery and not been nauseous once and the GB surgery was a success ........ she was only 16 and the pathology revealed this has been chronic for years.

Yes, if only they listened ....... I kept saying I find these viral infections (Gastro) interesting bcz no siblings in the house EVER caught them and I have 4 kids ... yrs later we find out it was a dysfunctioning GB only working at 4%

C~

[kipland]

If I.........lived closer to Dac, I'd go over and give her a great big hug!!  I'll sit in on the pity party too, my friend.  Tin foil hat, rocking back and forth and all.

Lori

[utahmomma]

Dac,

I'll sit in on your pitty party so you can cry on my shoulder.  I understand and I'm sorry.

((HUGS))

[DLA]

If I could be healthy, like I was before my son was born, he would know what it was like to have a mommy who felt like doing more things with him and not just laying around the house and sleeping.  Dang, now I'm crying.  *sigh*  Doesn't seem fair tonight.  

Sorry, pity party for one.

[utahmomma]

If I could lose the 40lbs that this stupid thyroid problem has packed onto me . . .

-or-

If I could keep my TSH and Tg stable and keep from getting recurrences.  :-(

[revins]

If I..... had a dollar for every time a doctor said "I think we may have samples of this drug!!  Let me check!!"... I could buy a small island and retire a very wealthy but still Thyroid Symptomatic old woman.

[authrjenn]

I am not sure if this will help or not , but I will offer my story as a point of reference and let you decide. For the last 6-7 years I noticed subtle changes in my body. My knees hurt at certain times, lower back, tired, unable to sleep, extra energy, no energy etc. All of the symptoms bothered me for about a day or two and then disappeared. Most of the time I thought it was my imagination  or just the "weather, age etc." As time passed some of the symptoms started to run together, so two or three things would happen at the same time. Still, I blamed it on age, menopause, flu bug, etc. Finally in 2004 I had back surgery. Within a few months I felt like a million bucks and thought I had a new lease on life! But eventually, little by little most of my symptoms returned. By 2007, it seemed every join hurt in my body. Instead of 2-3 symptoms , I had a long list and every week I could add a new complaint. My back surgeons attributed my symptoms to spinal cord damage and I went form 2 medications to 6. Pain pills, high blood pressure pills, anti-seizure meds even though I had no history of seizures, and the list goes on. By  July of 2007, I was at my wits end. I had a racing heart, high B/P, anxiety, depression and my body ached from head to toe. My gums were sore, teeth hurt, shakey after every meal, out of puff, and I had to use a wheel chair just to go shopping. Eventually, I started to withdraw from family and friends because I got tired of hearing myself complain about how lousy I felt. I believe they thought I was looking for attention.....Finally,  In december of 2007, I had enough...I consulted with a  doc that ran another thyroid tests (scan) and he found out my thyroid was filled with several cysts,a complex tumour along with hot and cold nodules. In January of this year I had a TT. Since then, I have had a terrible time with my meds and adjusting the dose. However, all of the other symptoms stopped! Especially, the aching joints, feeling tired, stomach pains etc. Later I lesrned I had no spinal problems from surgery... Seems this little thing called a thyroid had been making me sick  for a  long before I or my doctor even knew there was a problem with it. What I learned is; this disease is sneaky and everything we ingest in our systems  affects a diseased thyroid long before we even know about it. I have never been the type of person to just accept a prescription and take it just because my doc thinks I should. I have been more of a lets find out why this is happening and lets fix it, type person. However, the docs I had were not interested in listening to me or looking past the obvious to find the real problem or cure. Now I am working overtime to get off of all of the meds they gave me. My journey helped me to see that every new drug they handed me masked the symptoms and because of this it took 7 years to find out what was wrong with me..... The wear and tear on my body has been horrific, not to mention the mental strain. I really don't care what the problem is, we should never have to work this hard to get a doctor to hear us, believe us or heal us.....Like I said before, this is just my story and my idea to share with you all...Best of Luck.

[kipland]

If I had a doctor who hadn't thought to run the test for thyroid antibodies, I'd still have my cancer filled nodule today.  My TSH, T3 & T4 were all within normal range at that time!!  Who knows how long I would have carried it around, and if it would have spread??  I thank God for that!
Lori

[AR-10]

LOL!!!

*uh-huh*

If I could get back to work we'd all be happier.

[TheCarMan]

If I........could only remember what I was going to type.

[Applecore]

If I could have a doctor that was qualified remove the golf ball size nodules and perhaps my thyroid maybe that would clear up the roller coaster ride I have been on for the past 2 years.  Linda   I agree with you Cherly if a doctor would listen to us instead of the test results.  Fortunately My psychiatrist is listening.  He is changing me from levorthyroxine to synthroid.  I have wanted to take it from the beginning.  He also says I should get a second opinion and have my thyroid out.  He is said it is like following abouncing ball trying to keep everything in check by medicine.   Today I feel anxious in my stomach.  I don't know if it is the extra dose of doxipin he wants me to take at night or if my thyroid is throwing out extra hormone again.  I about drive everyone crazy including my self.  
linda

[kitty9309]

If I could have all the doctors who said my problem was not my thyroid step into my shoes for the last 14 years, I think they may realize that my problem was/is real.

[imedicmommy]

If I could get my old energy back...somedays I think I would prefer having the cancer to feeling the way I do most of the time.......It would be nice to not to be so foggy too.