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Chiari Malformation in Infants
- Chiari Malformation Community
My son, who is 7 months old, was recently diagnosed with Chiari Malformation. The diagnosis was confirmed on Mar 10, 2014 and he was also diagnosed with hydrocephalus. Anyone have this happen with an infant? I'm trying to figure out what the next steps are...


referral please
- Chiari Malformation Community
hello...I was just diagnosed with Chiari Malformation I and I am looking at surgery more than likely next month... my greatest concern about the surgery is that I am not comfortable with the cauterization of the cerebellar tonsils...there are posts wit...


Eyes do not line up
- Eye Care Community
I was looking at my 22 year old son's eyes the other day and I noticed that they do not line up properly. The shape of the opening of the eyes differ too. For example one eye seems smaller than the other eye (shape and opening). When he smiles one eye is m...


Question about MRI
- Chiari Malformation Community
Hi, I have a question about my cine MRI. I got the report and CD to take with me for my 3rd opinion and on the finding it say that the cerebellar tonsils are asymmetric position and extend 3.3mm and 5.2 mm below foramen magnum. So is that normal in chiari...


New Dr
- Chiari Malformation Community
I called to get an appt with Dr frim but they said he is focusing on his pediatric patients right now only and referred me to dr Awad out of Chicago. Anyone heard of him or had an experience with him?!?


Pediatric Anxiety 6 year old
- Anxiety Community
My 6 year old has anxiety with school, since preschool. He always tries to escape the school grounds. Usually after a few days or weeks with Kindergarten, he calmed down still making me pinky swear I will pick him up. Now first grade second day, he's esca...


ty home
- Chiari Malformation Community
Ty all for the well wishes. Just got home from er. Have. Massive headache worse than ever before. Sent me home on dilaudin. Still in a lot of pain. Ill update more. In the morning. Goofight.


Going to TCI next week!
- Chiari Malformation Community
I am relieved to be going to TCI next week. Dr. Bolognese (sp?) has agreed to take me on as a patient. He's ordered a new MRI of the cervical spine to be done a couple of hours prior to meeting with him. My question is...what do you all think he's looki...


Has anyone been to or heard of Dr. Violette Recinos @ Cleveland Clinic?
- Chiari Malformation Community
Some of Her specialities include: "Cavernous Malformation , Chiari Decompression, Chiari Malformation, Craniofacial Reconstruction, Craniosynostosis, Craniosynostosis, Dysembryoplastic neuroepithelial tumor (DNET), Endoscopic Third Ventriculostomy, Ependym...


$$$ rant$$$
- Pregnancy: Social Community
Cribs dont come with mattresses and their $60 omg


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