On Depo Lupron for endo. Feel very pregnant, but negative tests!

[nels2985]

I actually feel a little ridiculous asking this question, but here goes.  I am 25 years old with no previous pregnancies.  I was diagnosed w/ endo last November and had a lap right after Christmas and was then started on Depo Lupron.  I was under the impression that Lupron was a contraceptive (note to others...its NOT!!) so my fiancee and I didn't bother with any form of birth control.  My last Lupron injection was in mid May and by June I was beginning to wonder if I was pregnant.  Of course I don't have a period to go on due to the Lupron treatments, so the easy way to find out is not an option.  The second week in July I finally went in to the doctor because I couldn't shake the feeling of being pregnant.  Both the urine and blood tests came back negative.  I left feeling a little confused but glad to know for sure.  Well, here comes the crazy part, I've tried to put it out of my mind (and have succeeded sometimes) but can't shake the feeling of being pregnant.  My period still hasn't started since my last Lupron injection (May) and I called my doctor last week and she said it should have started by now, but to give it another month before I go in.  My fiancee left me the first week in July, so I haven't had sex since the end of June so if I am pregnant, I would have to be a minimum of 9-10 weeks along.  The nausea is lessening some, but I still have no desire to eat much...nothing really sounds good. Smells about drive me insane (I had to get rid of the air freshner in the house because I couldn't handle it!), I've been having some low back achyness, tired...no EXAUSTED all the time (I'm normally a very active person) and sleeping as much as 12 hours a night, some mild leg cramping and pain in underarms (not so much in the breasts).  And now my normally flat stomach is definitely starting to bulge just a little bit.  Not to mention the headaches...I've even missed work twice because of them!  The "am I pregnant" quizes that I've found have all said that they are 99% sure that I am pregnant, but with negative pregnancy test results still...is that even possible?  What are the chances of being 9 weeks along and still getting a negative on home pregnancy tests?  Would the Depo Lupron have an affect on the level of hormones produced in my body or the test results?   I know there is a possibility of your mind "tricking" your body into thinking that you are pregnant, but the fact that this "feeling" has spanned over 2 months, I'm a little skeptical of that being the case.  I just don't want to go back to the doctor saying "I think you're tests are wrong and I am pregnant".  Like I said I feel a little foolish, but I haven't been able to find anyone else that has this particular question.  Any help would be greatly appreciated!! (If anyone took the time to actually read all of this and get to this point!!)  Have a great day!

[tb_18]

I am SO glad I ran across this! I thought I was going clinically nuts! With weight gain, nausea, sensitive to smell, no period, etc I completely thought I was pregnant and had multiple positive home pregnancy tests. I finally went to the doctor and the blood test came back negative. . I do have a question though, do any of you know what percentage of women actually become pregnant while on lupron depot ? My care provider told me that if I were to become pregnant while on it that it would probably not be viable, but did not give me a percentage.

[kailinelizabeth]

I thought I was crazy! I've done 2 lupron shots 3 months apart and I still haven't gotten my period back from it and I think i'm pregnant now. I've been gaining weight, my stomach is rounder, my blood pressure is up, im nauseated, I've had swelling in my feet, pain in my back and I'm exhausted. I've done two pregnancy tests and they both came back negative but I still think I'm pregnant. I go to the gyno tomorrow so i'm going to ask that they do an ultrasound to see if i'm actually pregnant. That's the only way that they can tell for sure.

[AibhlinnsMom]

I am 34 years old, and I have been dealing with severe endometriosis for literally 20 years.  I have had 7 lap/hyst & D&C surgeries, and I have been on Lupron Depot 3 separate times.  I have had 8 different types of bc to slow the growth.  It has been a roller coaster to say the least.  I empathize with all of you having this same experience on any level.  At this point, surgeries are scheduled for me every 18 months to keep the endo from growing out of control.  I have one child, six years old.  I have no plans for future children, but my doctor would like me to keep my reproductive organs until I am 40 "Just in case" as he puts it.  I have been through every symptom known to the medical community that stems from endomteriosis and ovarian and uteran cysts.  Extreme pain, nausea, vomiting, irregular periods, extremely heavy flow, daily spotting, diarrhea, headaches, anemia, fatigue, pendulum like mood swings, vertigo, urinary tract infections, bladder infections, pain with intercourse, painful orgasms, inability to orgasm, bleeding with intercourse, painful ovulation, back pain, sciatic nerve damage, extreme pain in both legs, bowel damage (and now it is creeping toward my bladder, which could ruin the tube that runs from my kidneys to my bladder and cause kidney failure - this is the reason for the third round of Lupron).
Each time on the Lupron Depot has been a different experience for me.  The first time I was only 21, and I experienced the hot flashes, night sweats and bouts of anxiety attacks and depression.  I was on the monthly shot for 6 months.  My period did not return for a full year after the last shot, and in fact, I had to begin taking a birth control pill to essentially force it back.  My second time on Lupron, I was 29 and had my one year old child - I was again on the monthly shots and this time I didn't have any of the previous symptoms, I simply had no desire to do anything, say anything, go anywhere and I was angry all of the time.  Everything set me off.  This third time has been a completely new experience from the first two trips.  I am happy, giggly even.  I do have headaches and nausea daily.  I have had a couple of mild hot flashes and one evening of night sweats.  But all in all this time has been much improved over the last two.  I share this information because I am an extreme case.  When this was first discovered in me I was 13.  I had my first surgery at 17 years old.  My doctor came out of the OR with tears explaining to my mother that I was on the verge of death and how bad he felt after what he saw.  He knew I had to be in a momentus amount of pain.  I have my same beloved doctor today.  My endo is a rapid grower.  It also webs out (unlike most of you who may have "pockets" of tissue) and adheres to everything it can. My advice to all of my fellow sisters with this horrible disease is first and foremost, find a doctor that is also an advanced surgeon and one that you trust.  I can tell you that I am okay today because my entire history is with one doctor.  My second piece of advice is that regardless of the odd way these shots make you feel, and even if you may have to do them again in the future, they are extremely helpful and worth the side effects that come with them (which are different for everyone).  I wish all of you luck with your conditions, and for those of you trying to conceive, it is possible.  I was told that there was no way I would ever have a child, and I got pregnant a year after one of my surgeries.  It's possible.  

[achilles2]

Are you taking add-back if not you need to ask your doctor for. It helps with the side effects of instant menopause. My doctor says that to prescribe lupron w/o add-back is the equivalent of torture. Also instead of the three month,  did you know that there is a 4 week one. Yes you have to get once a month. But my doctor will not offer the others-- too strong. And he should know he was one of the original researchers.

[ashleybrooke87]

That is very helpful information.  Thank you.  I had lap surgery the day after Christmas to have a mass removed off my right ovary and that's how they found out I had endometriosis everywhere, which is what caused the cyst.  My ovarian tubes were so cystic that the eggs couldn't get through so they just caused cysts almost every month.  My husband got home from Iraq, August of last year and we immediately started TTC.  Literally the next day I was in the ER with the most excruciating pain I've ever felt.  A cyst ruptured on my right ovary.  The next month, the same thing, and the next, etc and still no pregnancy. Then I had my appt at the OB/GYN Nov when she saw a huge 4in mass. Then the surgery date was scheduled. After the surgery I was ordered to be put on a 3 month Depot Lupron treatment.  For me, the hot flashes were AWEFUL! I had at LEAST 5 a day and at LEAST 3 night sweats every night.  My last shot was March 5 and I still have no period, still no baby, and still hot flashes.  Not as bad as when I was on treatment, but they are still there.  My husband and I never used any protection ever since we've been together, about 10 years. And no babies.  When I was little, if someone asked me what I wanted to be when I grew up, I ALWAYS answered, "a mommy." I still give that answer today.  I know God has plans for me to be a mom, I can't see my life without children in it.  I'm the ONLY one in my family left, my generation of course, without children.  It broke my heart every month I had a negative pregnancy test, and now it breaks my heart every week I don't start my period, because I know that means no ovulation.  I'm not giving up hope, I've heard stories of other women, and I know that one day I'll get my big fat positive, I just pray it's one day soon.  Plus I have an OB/GYN appt this Wednesday, so I hope I get good news.  I'm going to pray for every woman on this page as well, and that one day y'all will get your big fat positives too. If you want them of course. :-) Cross your fingers.

[zamarnat000]

Hi, i read all that you had to say about Lupron Depot and the Pregnancy scare.... My name is Natasha, im 20 years old, and just started my Lupron Depot shot about a month ago. I am taking the 3 month period shots for 6 months... My doctor suggested that i use condoms because the shot doesn't protect me against pregnancy, but she also did say they she doesn't see how i could get pregnant on this shot anyways. So i didn't figure i needed to take any pro cations towards the matter. I also have not used any type of protection for over 3 years and have not ever became pregnant, so i didn't think i could anyways being on the shot. I too have had the feeling of being pregnant. The eating habits are more extreme, feeling nausea or ill, headaches, etc. I just figured it was my mind tricking me into thinking i was. I read up on some different sights about girls who have become pregnant while on Lupron Depot...and here is some of what i read: it can increase chances of miscarriages. (it has said nothing about weather or not it can cause berth defects or damage to the baby) and it also said it is a low range % that a woman can get pregnant, while on the shot, but it has happened. You are supposed to gain your period back after taking the shot withing 6 to 8 weeks... but for some girls their periods are never gained back. other woman have gotten pregnant after the shot before their periods have even came back, but it lowers the chances of having more kids later down the road... it is suggested that we wait to start trying for a baby after we gain our periods back. so 1)the problem with not have children later does not accrue and 2) the shot is 100% out of your system for when the child is produced. the first few months are the most important for the baby for it is the when there organs are developing and the brain is most frugal. if you are on the shot while pregnant i am sure that could cause problems for these developments for your baby. I am not a doctor but i have taken many courses due to the fact that i have had so many issues with my woman-hood and found out that i have Endometriosis. I am young, yes, but i know i was born to one day be a mother and even if that comes down to me having to adopt i will. Do not loose hope in having a child one day. Woman all over the world go threw this and other problems and are told they will never have a child, but there are just as many that do get pregnant just after they are cured. I know a woman personally who would have sex with out protection for over 4 years and never for pregnant. She later found out she had Endometriosis and it was so bad to the point that treatment would not work and she had to get the surgery. She not has 3 healthy kids and even one of them is off to college. it was just after she had healed from her surgery that she had gotten pregnant with her first child. so don't give up all hope. You could have been having trouble becoming pregnant before you found out about your condition, but you may become "fertile Murtal" after the operation or treatment!