im 20 found out i had endo when i was 18 in 09 my ? is i have pd but bleed for 2 0 3 days that bad.. but 1st day was bad i was soo muh pain,,what can i do help my pain pls ,, what did u guys do? my ? is do any u have kids ,, my ob said by time im 25 cant have any babys after that why is that? do u no pls help me can im young ,, im in soo much pain where i cry i no im in 1st sage what she said when i went there last pls help me name hollie
I had bad cramps and heavy periods at12/13. In my teens, my periods were heavy and long (10-12 days), but I had regular cramps, not extreme pain.
When I was 19, after failed experiments with BCP (side effects unbareable) I had an IUD inserted. Thats when my symptoms really started. Terrible cramps before and during the heaviest days of my period (now only 8 days, but for 3 days I would soak through a super plus tampon within 3 hours). Then came the shooting pains. I would feel bloated and gassy, and have the most intense shooting pain in my rectum when I was on my period. Over the years, it started happening when I had bowel movements and on my period, I thought I would pass out. But the shooting pains came in waves of a few seconds. I also would get diarreha, so I suspected IBS. Some months there was lots of pain, sometimes none.
Then one day lst february, I had just started my period, and get terrible cramps, then came the shooting pains. I tried going to the bathroom to relieve the pain, but it got worst. Those shooting pains didn't come in waves of a few seconds anymore, they just persisted. half any hour of crying and screaming on the floor wanting to die I finally have enough strength to call for an ambulance. but the time I get to hospital I am no longer in pain but have cramps and soreall over. they take out the IUD. I get an ultrasound. I have cysts on both ovaries. They give me one pill for the pain and send me home. A month later I get another ultrasound. My right ovary is cyst-free, but the one on the left has grown to 4 cm. then an MRI shows it is filled with blood. The doctor made it sound like it was normal and to get another MRI in 6 months. During this time I have another similar episode of intense pain, albeit not as intense. Oddly enough, masturbating and having an orgasm made the intense pain go away! But I was so sore I could barely walk for two days. I was treated for PID just in case. I also noticed I was getting pms (irritable just before my period) never got that before...
Now I got the results of the second MRI. The cyst has not changed, and the doctor believes its either a hemorraged cyst that twisted or endometrioma. Given all the symptoms above, my money is on endometriosis. I've just started BCP again and will be seeing the gynecologist next week to confirm, likely will need a laparoscopy.
I'm 24, single, and had planned to get married and have kids around my mid30s, now my entire life is going to change, I'm not sure how to handle this I'm devastated and very depressed now. I don't want fertility problems and I definitly will not consent to have any organs removed.
Hi there
Oh so you do have endo ...you are not going mad!!!
Are you being refered to a specialist to remove it??? surely they are not just going to leave it there??????
xxxx
Rest up take it easy thanks for posting :)
What is this with doctors leaving endo on the ureter? I have two surgeries for endo and twice my doctor removed the endo off the ureter. I am now on my second turn of Lupron-- my doctor uses the every 4 weeks one with add-back. I trust his judgement he probably knows more about Lupron than anything doc-- he is one of the original researchers of Lupron.
Get well soon,
achilles2
PS If you get shoulder pain from the CO2 gas use a heating pad on the shoulder works better than anything else.
Thanks for your wishes!
I'm home from the hospital now, the surgery took about 45 min. I have endo wrapped around my left ureter. My dr didn't remove the endo because of the location, he suggests Lupron. Of course I'm leary of Lupron, I plan to see a urologist for a 2nd opinion. Off to sleep I go...
hi there
good luck really hope they find something treatable xxxxxxx