THINK you have endo?...what are your symptoms?

[Nina0108]

Just wondering the different symptoms we're experiencing.

I havn't been diagnosed with endo...or anything for that matter!

Lets compare notes, here are my symptoms....

left pelvic pain for about 14 mos
right pelvic pain intermittenly for the past 2 mos (sometimes with left pelvic pain)
CONSTANT pelvic pain
back pain that sometimes wraps along my left side
nausea...everyday...all day for the past 2 mos
irregular periods for the past 3 mos (maybe before? i'm not sure because I didn't have a period secondary to nursing)
oh yeah..FATIGUE! how'd I forget that?!

But like I said, no diagnosis yet, I see my gyn tomorrow for my 2nd abdomenal/transvaginal ultrasound results and to discuss exploratory laparoscopy option...

[thebrat333]

Hi there

Have you had your surgery yet??????

[thebrat333]

Hi there

only two weeks and 1 day left!!!!   Are you getting scared yet??

I know we all want it sorted out but it is really scary though too.

I am trying not to think about it or I will worry myself silly like I did when I had my hydrothermal ablation 4 years ago .   Don't like the anaesthetic  thing really .  


Good luck and sorry haven't been on here for a while forgot to follow the post duh!!!

[achilles2]

Two surgeons? My surgeon, since he is an endo specialist performed my lap and cystoscopy when I had my surgery over 4 years ago. (I even have the pics) He was the one that only diagnosed my endo he also diagnosed my I.C. He is also the one that prescribes the meds for my I.C. He preforms a cystoscopy to make sure there is no endo and to make sure he did not do any damage to the bladder if he had to remove endo or adhesions off the bladder and/or ureter.

He will also call in another surgeon if he thinks he needs to. Such as a colorectal surgeon perform a bowel resection (if needed).

I hope that you get your surgery soon,
achilles2

[thebrat333]

Hi there

wow he seems really good......my gyno did mention maybe getting the surgeon to do both but he said you don't know who you are going to get for sure until the day so um they had to book the other one just in case and if it is really bad will have to go to another town for the next surgery .  

I think it is on my bowel or bladder or both dreading it really.

How are you now????

[achilles2]

That is awful that you do not even know who is going to do your surgery. I recently had my second surgery and I am on my second six month course of lupron with add-back (my first was after my first surgery.) I am hoping that this and continuing to take turmeric, bromelain, drink ginger tea, continuing my gluten free diet, and trying to avoid things like certain oils-- canola, corn, vegetable, will help by keeping down the inflammation and keep the endo under control.

achilles2

(PS While you are waiting you might see if Dian Mills (she is the one whose info I told you about) can even help you before you have surgery.

[thebrat333]

Thanks for that !

I haven't tried the avoid diet thing just waiting for the confirmed diagnosis first and enjoying my food while I can .  

I did give up wheat and dairy for a bit a while ago as part of the blood group diet and it worked but really hard to stick to .

How are you managing ??

The cornflour substitute I used was awful lol

I did bake my own bread with spelt flour and honey and was pretty good but had to slice and freeze it as no preservatives.

I don't drink tea or coffee and just have green tea though which is a good thing as I read somewhere to avoid caffine too for endo.

I hate taking all these pills and they are so expensive too.  I was hoping to be pill free afterwards but from what you are saying that might not be the case :(

You were pretty unlucky having IC as well :(  hope I don't fair that bad when I have mine.