we are looking for information about Pseudotumor in the lacrimal gland. in the eye.
this is not "Orbital" or "Cerebri" Pseudotumor,
the doctors don't know what do to. with no reaction to steroids. we will start radiation in a few days, but we don't know if it will help.
in the last MRI a few days a go it seems that it getting worst and also spreading to the other eye.
we don't know where to start searching as the internet is so huge and the disease is so rare,
I hope you could help with information or to lead us to some one who can help.
How are you? With Lacrimal gland pseudotumors, aside from diagnsotic tests such as CT scan, blood tests including auto-immune screening, and chest x-ray to rule out infectious issues, a lacrimal gland biopsy may also be indicated. It is best that you have a referral to an opthalmologist for proper management.
There are several articles in Pubmed that may help such as
You can email the authors in the articles to have your case evaluated also. Take care and do keep us posted.
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