my son is 2 years old in 2009 was diagnosed with mitochondrial disese,he done the routine muscle biotsy,blood tests and spinal liquid along with and MRI an EEG. now since then we are not told anything else and we see a normal doctor, we have been awaiting to see a specialist nearly over a year,they just keep ignoring our question...
we need to know what other test need to be,and we want to know what complex it is.. the gene mutation,we need to be informed of what need to be doing,and what supplements he should be taking.we need to knw the procedure.
we live in the united kingdom city of London..
we are lookin for an expert or specialist in USA for help,some one that will help us get our answers and find out which type of mitochondrial my son has...many thanks tania
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