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Endo recurrance
Hi There-
I am new to this forum but sadly not to endometriosis. I have had two reconstructive surgeries- the last in 2010. I lived pretty much pain free after that until 6 months ago. My doc had told me to try to get pregnant as soon as possible after last surgery but then I got divorced. I am now finally in an amazing relationship and want a baby badly with him but am so scared it is not going to be possible. Now the pain and suffering is almost debilitating. It is mostly left side and cervical. It is made worst by any activity, especially walking (tough because I teach dance and theatre for a living) I am bleeding every 20 days for 7-9 days. I vomit for 2 days before my period starts. I do not sleep, or eat, and I barely function. I am 35 and really want to have a baby now. I am going to see my specialist on Monday and am just terrified she is going to tell me another surgery is needed because I cannot handle the hormones to stop the bleeding.I am not really asking a question here, more just reaching out for support.
I am new to this forum but sadly not to endometriosis. I have had two reconstructive surgeries- the last in 2010. I lived pretty much pain free after that until 6 months ago. My doc had told me to try to get pregnant as soon as possible after last surgery but then I got divorced. I am now finally in an amazing relationship and want a baby badly with him but am so scared it is not going to be possible. Now the pain and suffering is almost debilitating. It is mostly left side and cervical. It is made worst by any activity, especially walking (tough because I teach dance and theatre for a living) I am bleeding every 20 days for 7-9 days. I vomit for 2 days before my period starts. I do not sleep, or eat, and I barely function. I am 35 and really want to have a baby now. I am going to see my specialist on Monday and am just terrified she is going to tell me another surgery is needed because I cannot handle the hormones to stop the bleeding.I am not really asking a question here, more just reaching out for support.
I just saw my physio/chiropractor and she said the shoulder pain may be caused by me holding myself hunched over in pain from my abdomen. She suggested massage which i really could use. My doc is not in today, so I am waiting to speak with her. The lower abdomen is very swollen and painful today as well. Thanks (:
That thoracic endo sounds scary as hell. I really hope that is not a possibility although I do have all the symptoms. And especially considering the studies I read that said it is most common in women with stage 4 endo who have had previous reconstructive surgeries. Yikes. Fingers crossed this is not it.
That thoracic endo sounds scary as hell. I really hope that is not a possibility although I do have all the symptoms. And especially considering the studies I read that said it is most common in women with stage 4 endo who have had previous reconstructive surgeries. Yikes. Fingers crossed this is not it.
I haven't but I will. God, I do not want to even consider a hysterectomy as my main goal is to get pregnant soon. I think I will call and book a phone appointment with Dr.Williams as the pain is still pretty severe even though the bleeding has basically stopped. I am going to see a physio this afternoon to see if there is anything she can do to help me with the pain. I definitely get the swollen belly (particularly on the left side) when my pain is at it's worst- usually by the end of the day I look pregnant. The only way I can avoid this is by laying absolutely still and doing nothing which is pretty difficult considering I have a very active job. Also, intercourse has become almost unbearably painful. This is new- usually I would only have pain after intercourse and rarely depending on the time of the month. I will look up the things you suggested. Bless.
5) Have u looked at symptoms of thoracic endo ? Just a thought from what you're saying.
Okay here is what was said.
1) Yes, for me the diaphragm pain coincided with my flow, usually day three and extremely predictable. I'm not sure about the new consistent pain though. I would consult with a doc if it is new/worse pain.
2) Just to consider: With adenomyosis you can have chronic uterine pain/cramping. But yes the shoulder pain can be indicative of endo on diaphragm.
3) I have endo on the left side of my diaphragm. I get deep shoulder pain around the time of my period.
4) Yes, it's something to consider esp if the cramping and low back pain doesn't go away. Those are exactly my symptoms. And I always had Horrible periods with severe pain and clots. Endo can cause chronic pain, but the uterine pain can either be pelvic floor disorder, I guess nerve pain too, congested pelvic syndrome (enlarged uterine/ovarian veins; which can be linked to adenomyosis), or adenomyosis. I think that covers the possibilities!
Also can be an indicator of Adeno is swollen lower pelvic region (feel/look like few mo's preggo), enlarged uterus, uterine fibroids, sensation that uterus is weighing down, etc.
If adenomyosis is suspected and a hyst is considered, be sure to get cervix removed too as this is part of the uterus and can contain Adeno
1) Yes, for me the diaphragm pain coincided with my flow, usually day three and extremely predictable. I'm not sure about the new consistent pain though. I would consult with a doc if it is new/worse pain.
2) Just to consider: With adenomyosis you can have chronic uterine pain/cramping. But yes the shoulder pain can be indicative of endo on diaphragm.
3) I have endo on the left side of my diaphragm. I get deep shoulder pain around the time of my period.
4) Yes, it's something to consider esp if the cramping and low back pain doesn't go away. Those are exactly my symptoms. And I always had Horrible periods with severe pain and clots. Endo can cause chronic pain, but the uterine pain can either be pelvic floor disorder, I guess nerve pain too, congested pelvic syndrome (enlarged uterine/ovarian veins; which can be linked to adenomyosis), or adenomyosis. I think that covers the possibilities!
Also can be an indicator of Adeno is swollen lower pelvic region (feel/look like few mo's preggo), enlarged uterus, uterine fibroids, sensation that uterus is weighing down, etc.
If adenomyosis is suspected and a hyst is considered, be sure to get cervix removed too as this is part of the uterus and can contain Adeno
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