Endo recurrance

[lulu747]

Hi There-
I am new to this forum but sadly not to endometriosis.  I have had two reconstructive surgeries- the last in 2010.  I lived pretty much pain free after that until 6 months ago.  My doc had told me to try to get pregnant as soon as possible after last surgery but then I got divorced.  I am now finally in an amazing relationship and want a baby badly with him but am so scared it is not going to be possible.  Now the pain and suffering is almost debilitating.  It is mostly left side and cervical.  It is made worst by any activity, especially walking (tough because I teach dance and theatre for a living)  I am bleeding every 20 days for 7-9 days.  I vomit for 2 days before my period starts.  I do not sleep, or eat, and I barely function.  I am 35 and really want to have a baby now.  I am going to see my specialist on Monday and am just terrified she is going to tell me another surgery is needed because I cannot handle the hormones to stop the bleeding.I am not really asking a question here, more just reaching out for support.  

[ticked]

Waiting on some responses now I will get back to you :)

Never feel alone there are many of us out there and when in doubt go to my blog and look at all these faces that have Endo.

http://endendoforever.blogspot.ca/p/the-faces-of-endo.html

[lulu747]

Thanks so much.  You're a total life line to me right now.  I feel so isolated.  Surrounded by support yet so alone in this suffering.  Bless you.

[ticked]

If it's cyclic pain in the shoulder you could have Endo on the lung or diaphragm although that's very rare. Let me check with some sources and see what I come up with :) glad you got some sleep even if it was limited

[lulu747]

I have had the shoulder pain before on the first or second day of my period but not this intense.  That is what is so weird right now- every day for the past 3 weeks has felt like the first day of my period.  Terrible cramping, lower back and shoulder pain, weepiness, and exhaustion.  Last night I took a whole pain pill (I've only been taking a half) and managed to sleep a few hours but this is really catching up with me.  Things are very busy with my work and I'm having a hard time functioning.  Thanks for listening.  I sure do appreciate it.

[ticked]

It sounds like your endometrium is shedding. I have the same thing happen. I would take the meds they give you but try to only take it if 100% needed. If you have shoulder pain is that with your period? Has that ever happened before?

[lulu747]

Ok so pain increasing.  Saw family doc and she prescribed some dilaudid 4 mg.  I am scared to take it because I lived in an opiate haze for years prior to my last surgery and it was so hard to get off.  My pain is being referred into my groin and especially into my left shoulder.  I am still bleeding.  Yesterday I got worried maybe I was having an ectopic pregnancy as I had a friend with these issues who had one and her symptoms echoed mine.  Did a preg test- not pregnant.  Going to hold on till Tuesday when I can have a phone consult with my surgeon.  I am sorry to be a pain but do you think this is normal considering I've been on the norlutate for 3 weeks now?  Agh this is so frustrating.  I'm so exhausted.  I can't stop crying.  I need help and answers.