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1926359 tn?1331588139

Endo recurrance

Hi There-
I am new to this forum but sadly not to endometriosis.  I have had two reconstructive surgeries- the last in 2010.  I lived pretty much pain free after that until 6 months ago.  My doc had told me to try to get pregnant as soon as possible after last surgery but then I got divorced.  I am now finally in an amazing relationship and want a baby badly with him but am so scared it is not going to be possible.  Now the pain and suffering is almost debilitating.  It is mostly left side and cervical.  It is made worst by any activity, especially walking (tough because I teach dance and theatre for a living)  I am bleeding every 20 days for 7-9 days.  I vomit for 2 days before my period starts.  I do not sleep, or eat, and I barely function.  I am 35 and really want to have a baby now.  I am going to see my specialist on Monday and am just terrified she is going to tell me another surgery is needed because I cannot handle the hormones to stop the bleeding.I am not really asking a question here, more just reaching out for support.  
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1926359 tn?1331588139
i am losing tissue still- looks like scabs?  and my pain is so bad I've literally been crying all day.  So this is not normal right?  I talked to my surgeon's nurse on Tues and she was supposed to talk to the doc and get back to me today but so far I've heard nothing.  I'm scared and I am suffering so much.
Helpful - 0
136956 tn?1688675680
Sorry I meant to respond yesterday. Yes for me 100% taking the bcp continuously helped stop the pain. I was on marvelon. I just recently came off as I am having a hyster may 9th
Helpful - 0
1926359 tn?1331588139
My bleeding has pretty much stopped but the pain is still here and still awful.  The good ol' butcher knife being stabbed through my left lower abdomen and spine.  When you have done the hormones did you have a lessening of pain?  Looking for some hope here.
Helpful - 0
1926359 tn?1331588139
yep either bright red or black.  chunks of skin.  I have t3's but they do almost nothing.  I can't take any more anti inflammatories because they are making my Crohn's flare.  So adding more pain to the misery.  I feel so defeated today.  
Helpful - 0
136956 tn?1688675680
Red or dark tissue right? If so that is what has been happening to me. I'm sorry you are in so much pain. Did the doctor give you any pain meds?
Helpful - 0
1926359 tn?1331588139
Ugh.  Pain getting worst.  Waking up crying at 5 am with stabbing back pain and referred pain into groin.  Bleeding still and losing weird skin like tissue?  Emailed my doc.  No response.  I am so hurting and feeling defeated.
Helpful - 0

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